Illinois – Down Syndrome Organizations

There are currently 15 Down syndrome organizations in Illinois:


BUDS (Bringing Up Down Syndrome)

Address: P.O. Box 11, Arenzville, IL 62611
Phone: (217) 997-5879
Email: briggsj@frontiernet.net

Celebrate Differences

Address: 5 E. Washington St., Oswego, IL 60543
Phone: 630-885-3006
Email: info@celebratedifferences.org
Organization Leader: Rebecca & Jeff Christiansen, Executive Director & Founder
Website: www.celebratedifferences.org

Central Illinois Down Syndrome Organization

Address: PO Box 595, Normal, IL 61761
Phone: 309-452-3264, 309-874-2038
Email: info@cidso.org
Organization Leader: Steve Newbold, President
Website: www.cidso.org

Champaign County Down Syndrome Network

Address: P.O. Box 1143, Champaign, IL 61824
Phone: 217-351-4163, 217-721-2350, 217-355-6289
Email: info@champaigndsn.org, president@champaigndsn.org, newparents@champaigndsn.org
Organization Leader: Melissa Hoerner
Website: www.champaigndsn.org

Down Syndrome Support

Address: 2325 E. Lincoln Hwy. Suite 210, New Lenox, IL 60451
Phone: 815-272-1068
Email: info@dssupport.net
Website: www.dssupport.net

Family Ideas Network for Down Syndrome

Address: PO Box 1441, Crystal Lake, IL 60039
Phone: 815-575-9864
Email: onepercent2@gmail.com
Operation Leader: Michael Fisher, President
Website: findsdownsyndrome.com

Frankie’s Fund

Address: 700 Arbor Ave., Wheaton, IL 60189-6309
Phone: 630-665-7077
Email: frankiesfund@sbcglobal.net

GiGi’s Playhouse

Address: 1069 W. Golf Rd, Hoffman Estates, IL 60169
Phone: 847-885-PLAY (7529)
Email: gianni4567@aol.com
Organization Leader: Nancy Gianni, President and Founder, ngianni@gigisplayhouse.org
Website: www.gigisplayhouse.org

Heart of Illinois Down Syndrome Association

Address: c/o Bethel Lutheran Church, 425 N. Missouri Ave., Morton, IL 61550
Phone: 309-712-4852
Email: info@hoidsa.org
Organization Leader: Carol Nepolello, Board President, c.nepolello@comcast.net
Website: www.hoidsa.org

Kankakee Area Down Syndrome Society

Address: 730 Bunker Hill Drive, Bourbonnais, IL 60914
Phone: 815-210-8944
Email: info@kadss.org, sara@joshlundmark.com
Website: kadss.org/

Lincoln Land Down Syndrome Society

Address: One North Old State Capitol Plaza, Suite 501, Springfield, IL 62701-1323
Phone: 217-622-3500
Email: jsat870@sbcglobal.net, info@lldss.org
Organization Leader: Julie Ressler, LLDSS President
Website: www.lldss.org

Livingston Area Down Syndrome Society

Address: 13298 N. 3400 E. Rd, Chatsworth, IL 60921
Phone: 815-589-2202
Email: info@ladss.org, david@ladss.org
Operation Leader: Mary & David Melvin, Founders
Website: www.ladss.org

National Association for Down Syndrome

Address: PO Box 206, Wilmette, IL 60091
Phone: 630-325-9112
Email: info@nads.org
Operation Leader: Steve Connors, President
Website: www.nads.org

Riverbend Down Syndrome Association

Address: 528 Grafton Hills Dr, Grafton, IL 62037
Phone: 618-667-8771, 618-288-2555
Email: secretary@riverbendds.org
Operation Leader: Marc Mitchell
Website: www.riverbendds.org

Ups for Downs (United Parent Support for Down Syndrome)

Address: Hartford Plaza, 1070 S. Roselle Road, Schaumburg, IL 60193
Phone: 847-895-2100
Email: info@upsfordowns.org
Website: upsfordowns.org

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