Down Syndrome Medical Care Centers in the U.S.

At the Global Down Syndrome Foundation (GLOBAL) we are working to save lives and dramatically improve health outcomes for people with Down syndrome through Medical Care, Research, Education and Advocacy.

We recommend parents or caregivers of children with Down syndrome follow the American Academy of Pediatrics Health Supervision for Children and Adolescents with Down Syndrome. For adults with Down syndrome, we recommend the adult and/or their caregiver follow the GLOBAL Medical Care Guidelines for Adults with Down Syndrome. It is also important to share these resources with your medical professionals!

In addition to following these healthcare guidelines, it is often useful for those with Down syndrome to visit with medical professionals who have significant experience treating patients with Down syndrome.

To this end, we have updated our important map of the U.S. highlighting which states and cities have Down syndrome medical care centers. To be clear, only centers specifically specializing in treating people with Down syndrome are listed. In order to best help parents, caregivers, and individuals with Down syndrome, we have also created a checklist of useful information and we recently re-contacted each center to verify all the information on the checklist.

Please encourage any centers that have not provided their clinic information to do so, and contact us if you have information on medical care centers that should be added. This information was last updated between May and July 2023.