California Down Syndrome Medical Care Centers


There are currently 5 Down syndrome medical care centers in California:


Center for Down Syndrome

Affiliation: Lucile Packard Children’s Hospital
Summary: The Center for Down Syndrome at Lucile Packard Children’s Hospital helps each child with Down syndrome reach his or her full potential and function as independently as possible in all aspects of school and family life. Packard Children’s is one of the few children’s hospitals in the nation to offer these much needed services to children.
Ages Served: 0-18 Years
Hours and Days of Operation: 2 Fridays a month 1-5pm
Address: 730 Welch Road, Palo Alto, CA 94304
Website: http://www.stanfordchildrens.org/en/service/down-syndrome
Email:
Appointments: 650-723-6858
General Phone Number: 650-723-6858
Clinical Director: Melanie Ann Manning MD
Services provided:
Behavioral MD
Psychologist
Registered Dietician
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Pediatric Nurse Practitioner
Genetic Counselor
Feeding Specialist
Developmental Pediatrician
Other Services Provided: Geneticist/ Pediatrician
Year Established: 2006
Patients with Down Syndrome Seen Annually: Approximately 120
Length of Waitlist: 1-2 months
Medicaid Accepted? Yes
Insurance accepted? Yes


CHOC Children’s Down Syndrome Program-An Alliance with the Down Syndrome Association of Orange County

Affiliation: CHOC Children’s, Orange, CA
Summary: The mission of the CHOC Children’s Down Syndrome Program is to support families and primary care pediatricians in optimizing the health care of children with Down syndrome in the Southern California Region.Comprehensive medical assessment of children with Down syndrome from birth to age 18 years. Continuing follow-up care (to be assessed and coordinated with primary care physicians and families based on individual needs). Referrals as required to other sub-specialists and ancillary services. Coordinated care for each patient will be managed by our staff
Ages Served: Birth to age 18 years
Hours and Days of Operation: Wednesday afternoons from 1-5 pm
Address: CHOC Children’s – 455 S. Main St. Orange, CA 92868
Website: http://www.choc.org/neuroscience/index.cfm?id=P00535
Email: downsyndrome@choc.org
Appointments: 888-770-2462
General Phone Number: 714-509-3609
Clinical Director: Dr. Ira T. Lott and Dr. Anne Tournay
Services provided:
Behavioral MD
Psychologist
Registered Dietician
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Pediatric Nurse Practitioner
Genetic Counselor
Feeding Specialist
Developmental Pediatrician
Year Established: 2009
Patients with Down Syndrome Seen Annually: 150-200
Length of Waitlist:

Average wait time for a new patient appointment is 2-3 months though urgent referrals are available

Medicaid Accepted? Yes
Insurance accepted? Yes


Rady Children’s Hospital San Diego Down Syndrome Center – San Diego

Affiliation: Rady Children’s Hospital, San Diego, Down Syndrome Action parent group
Summary: Mission: To improve the quality of life for children with Down syndrome and their families by offering coordinated assessments, connections to resources, education, and advocacy. At clinic, we combine implementation of AAP guidelines, multidisciplinary medical/developmental assessment, genetic counseling, case management, social work, and social services.
Ages Served: Birth to 5
Hours and Days of Operation: 2nd and 4th Tuesday of each month, 8 AM to noon
Address: 7920 Frost Street, suite 200 (Clinic Location), San Diego, CA 92123
Website: http://www.rchsd.org/programs-services/down-syndrome-center/
Email: lmestre@rchsd.org
dmasser-frye@rchsd.org
Appointments: 858-966-5840
General Phone Number: 858-966-5840
Clinical Director: Liesl Mestre and Diane Masser-Frye, Co-Coordinators
Services provided:
Behavioral MD
Psychologist
Nutritionist
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Nurse Practitioner
Genetic Counselor
Clinical Care Coordinator
Geneticist/Pediatrician
Year Established: 2008
Patients with Down Syndrome Seen Annually: approx. 140 with about half being return patients
Length of Waitlist: About 7 months
Medicaid Accepted? Yes
Insurance accepted? Yes


UC Irvine Adult Down Syndrome Clinic

Summary: The clinic provides specialty medical assessment and care for adults with Down syndrome and Alzheimer-type dementia. The clinical team has many years of experience in the evaluation of dementia in adults with Down syndrome and is committed to improving quality-of-life in affected individuals and their families. The presenting symptoms of dementia in adults with Down syndrome are numerous and require careful evaluation as several medical conditions can mimic a dementia. Every individual with Down syndrome age 40 and older should receive an annual assessment for Alzheimer-type dementia.
Ages Served: Adult
Hours and Days of Operation: Clinic is open every Thursday 8 am to 5 pm. Other weekday appointments are available as needed.
Address: UC Irvine Medical Center, Department of Pediatrics,101 The City Dr. Orange, CA 92868
Email: edoran@uci.edu
Appointments: 714-456-8443
General Phone Number: 714-456-8443
Clinical Director: Ira T. Lott, MD/Program Director
Services provided:
Behavioral MD
Psychologist
Registered Dietician
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Pediatric Nurse Practitioner
Genetic Counselor
Feeding Specialist
Developmental Pediatrician
Year Established: 1990
Patients with Down Syndrome Seen Annually: 150-200
Length of Waitlist: 2-4 weeks
Medicaid Accepted? Yes
Insurance accepted? Yes



UCSD Adult Down Syndrome Clinic – La Jolla

Affiliation: UC San Diego Health System
Summary: We evaluate adults with DS who are experiencing cognitive changes, including dementia. We also conduct clinical research on new therapies.
Ages Served: 18 and older
Hours and Days of Operation: Monday-Friday 9AM – 5PM
Address: 9350 Campus Point Drive
La Jolla, CA 92037
Website: http://neurosciences.ucsd.edu/conditions/Pages/down-syndrome.aspx
Email: capmemory@ucsd.edu
Appointments: 858-657-8540
General Phone Number: 858-246-1300
Clinical Director: Michael Rafii, MD, PhD
Services provided:
Behavioral MD
Psychologist
Nutritionist
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Nurse Practitioner
Genetic Counselor
Clinical Care Coordinator
Developmental Pediatrician
Year Established: 2010
Patients with Down Syndrome Seen Annually: 60
Length of Waitlist: None
Medicaid Accepted? Yes
Insurance accepted? Yes

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