Global Down Syndrome Foundation
Research & Medical Care
Down Syndrome Medical Care Centers in the U.S.
Massachusetts Down Syndrome Medical Care Centers

Massachusetts Down Syndrome Medical Care Centers

There are currently 3 Down syndrome medical care centers in Massachusetts:

Massachusetts General Hospital Down Syndrome Program – Boston
Boston Children’s Hospital Down Syndrome Program – Boston
Aging and Developmental Disabilities Program at Tewksbury Hospital and Central Residential Services in Worcester – Tewksbury

Massachusetts General Hospital Down Syndrome Program, Boston, MA
Affiliation:	Massachusetts General Hospital
Summary:	The MassGeneral Hospital Down Syndrome Program utilizes state-of-the-art resources to provide compassionate, comprehensive care through a multi-disciplinary approach for people with Down syndrome of all ages. The Massachusetts General Hospital Down Syndrome Clinic sees patients of all ages, from the prenatal consultation through adulthood. We additionally have a robust research program aimed at improving the health of all people with Down syndrome. Our program follows about 700 patients, seeing around 500 annually, prenatal through adult. We also have an online medical information tool, Down Syndrome Clinic To You (www.DSC2U.org) which is a commercially available product we developed to reach a wider audience of patients than we can see in-person. National experts from Massachusetts General Hospital, MassGeneral Hospital for Children, and Massachusetts Eye and Ear Infirmary are ready to help our patients with any medical issue that may occur.
Ages Served:	All Ages
Hours and Days of Operation:	Our office is open Monday through Friday, 8:00 am – 4:00 pm. We have clinic on 2nd Monday morning (pediatrics, Lexington), Tuesday mornings (pediatrics), 3rd Wednesday mornings (pediatrics), 1st, 2nd, 4th Thursday afternoons (adults), and Friday afternoons (adolescents and adults).
Address:	55 Fruit St., Yawkey Center for Outpatient Care, Suite 6C, Boston, MA 02114
Website:	massgeneral.org/downsyndrome
Email:	downsyndrome@partners.org
Appointments:	617-643-8912
Phone Number:	617-643-8912 Fax: 617-726-4148
Clinical Director:	Dr. Brian G. Skotko
Services provided:
Behavioral MD Psychologist Nutritionist Registered Dietician Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Education/Inclusion Specialist Nurse Practitioner Genetic Counselor Clinical Care Coordinator Geneticist/Pediatrician
Year Established:	2006
Patients with Down Syndrome Seen Annually:	Over 500
Length of Waitlist:	Waitlist is ~Over 10 years, 185 patients waiting. We recommend using www.DSC2U.org in the meantime. Our Down Syndrome Clinic is currently at full capacity. In order to continue serving our established patients, we are no longer able to accept new patients. Alternatively, we are proud to offer two virtual options for everyone: Down Syndrome Clinic to You (DSC2U) and Online Second Opinion. More info: <<https://www.massgeneral.org/children/down-syndrome/dsc2u-and-online-second-opinions>> and <<https://www.dsc2u.org/organizations>>
Medicaid Accepted?	Yes
Insurance Accepted?	Yes

Boston Children’s Hospital Down Syndrome Program, Boston, MA
Affiliation:	Boston Children’s Hospital
Summary:	We offer multidisciplinary family-centered care from birth to age 21. Children ages birth to 3 see a team including developmental pediatrician, physical therapist, speech pathologist with special expertise in feeding/swallowing, nutritionist, dentist, and an audiologist. Children ages 3 to 21 have a developmental pediatric visit coordinated with other specialists as needed. We also offer prenatal consultation through the Advanced Fetal Care Center at Boston Children’s Hospital.
Ages Served:	Birth – Age 21
Hours and Days of Operation:	Wednesday and Thursdays, by appointment
Address:	2 Brookline Place 4th floor, Brookline, MA 02445
Website:	childrenshospital.org/downsyndrome Facebook: https://www.facebook.com/BostonChildrensHospital/ Instagram: https://www.instagram.com/bostonchildrens/
Email:	downsyndromeprogram@childrens.harvard.edu
Appointments:	857-218-4329
General Phone Number:	857-218-4329
Clinical Director:	Dr. Nicole Baumer, Director and Angela Lombardo, Program Coordinator
Services provided:
Behavioral MD Psychologist Nutritionist Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Psychiatrist Nurse Practitioner Genetic Counselor Dentist/Orthodontist Neurology Fellow
Year Established:	1967
Down Syndrome Patients Seen Annually:	More than 500
Length of Waitlist:	Approx. 6-9 months
Medicaid Accepted?	Yes
Insurance Accepted?	Yes

Aging and Developmental Disabilities Program at Tewksbury Hospital and Central Residential Services, Tewksbury, MA
Affiliation:	Tewksbury Hospital Central Residential Services
Summary:	The Aging and Developmental Disabilities Program is an outpatient consultative service based in 2 clinical sites: Tewksbury, MA, and Worcester, MA. It is open to any client served by the Massachusetts Department of Developmental Services who has questions or concerns related to growing older. Adults with Down syndrome comprise a significant proportion of the patients seen in consultation. The common theme for patients seen in consultation is regarding change as a function of growing older: either a change in memory, function, or behavior. Dr. Moran is a geriatrician specializing in adults with I/DD, and evaluations include memory testing, functional assessments, and a comprehensive medical workup of the root cause of observed changes.
Ages Served:	Ages 45+
Hours and Days of Operation:	Tewksbury: Thursday Worcester: Wednesday 2x monthly by appointment
Address:	Tewksbury Hospital, 365 East Street, Tewksbury, MA 01876-1998
Email:	lisa.cobb@massmail.state.ma.us
Website:	https://www.mass.gov/locations/tewksbury-hospital
Appointments:	774-314-3560
Clinical Director:	Julie Moran, D.O. Consultant, Intellectual and Developmental Disabilities/Geriatrics, Clinical Instructor of Medicine, Harvard Medical School
Services provided:
Behavioral MD Psychologist Registered Dietician Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Education/Inclusion Specialist Nurse Practitioner Genetic Counselor Feeding Specialist Developmental Pediatrician
Other Services Provided:	Alzheimer’s Screening, D.O. Geriatrician specializing in adults with intellectual and developmental disabilities
Year Established:	2008
Patients with Down Syndrome Seen Annually:	100+
Length of Waitlist:	3-6 months
Medicaid Accepted?	No, Services provided by the Department of Developmental Services
Insurance Accepted?	No, Services provided by the Department of Developmental Services

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