Massachusetts Down Syndrome Medical Care Centers


There are currently 3 Down syndrome medical care centers in Massachusetts:


MassGeneral Hospital Down Syndrome Program – Boston

Affiliation: Massachusetts General Hospital
Summary: The MassGeneral Hospital Down Syndrome Program utilizes state-of-the-art resources to provide compassionate, comprehensive care through a multi-disciplinary approach for people with Down syndrome of all ages. National experts from Massachusetts General Hospital, MassGeneral Hospital for Children, and Massachusetts Eye and Ear Infirmary are ready to help our patients with any medical issue that may occur.
Ages Served: All
Hours and Days of Operation: Our office is open Monday through Friday, 8 a.m.-5 p.m. Clinics are: Tuesday morning, Wednesday morning, Friday afternoon
Address: 55 Fruit St., Yawkey Center for Outpatient Care, Suite 6C, Boston, MA 02114
Website: massgeneral.org/downsyndrome
Email: downsyndrome@partners.org
Appointments: 617-643-8912
General Phone Number: 617-726-1561
Clinical Director: Dr. Brian G. Skotko & Dr. Alison T. Schwartz
Services provided:
Behavioral MD
Psychologist
Nutritionist
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Nurse Practitioner
Genetic Counselor
Clinical Care Coordinator
Geneticist/Pediatrician
Year Established: 2006
Patients with Down Syndrome Seen Annually: 400
Length of Waitlist: No – can generally see patients urgently within 1 to 2 weeks
Medicaid Accepted? Yes
Insurance accepted? Yes


Boston Children’s Hospital Down Syndrome Program – Boston

Affiliation: Boston Children’s Hospital
Summary: We offer multidisciplinary family-centered care from birth to age 21. Children ages birth to 3 see a team including developmental pediatrician, physical therapist, speech pathologist with special expertise in feeding/swallowing, nutritionist, dentist, and an audiologist. Children ages 3 to 21 have a developmental pediatric visit coordinated with other specialists as needed. We also offer prenatal consultation through the Advanced Fetal Care Center at Boston Children’s Hospital.
Ages Served: Birth to 21
Hours and Days of Operation: Birth to age 3 on Thursdays, 8:30 a.m.- noon; ages 3-21 on Wednesdays, 1-5 p.m.
Address: 300 Longwood Avenue, Boston, MA  02115
Website: childrenshospital.org/downsyndrome
Email: angela.lombardo@childrens.harvard.edu
Appointments: 857-218-4329
General Phone Number: 857-218-4329
Clinical Director: Angela Lombardo, Program Coordinator
Services provided:
Behavioral MD
Psychologist
Nutritionist
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Psychiatrist
Nurse Practitioner
Genetic Counselor
Dentist/Orthodontist
Neurology Fellow
Year Established: 1967
Down Syndrome Patients Seen Annually: More than 400
Length of Waitlist: No
Medicaid Accepted? Yes
Insurance accepted? Yes


Aging and Developmental Disabilities Program at Tewksbury Hospital, Aging and Developmental Disabilities Program at Worcester

Affiliation: Tewksbury Hospital
Summary: The Aging and Developmental Disabilities Program is an outpatient consultative service based in 2 clinical sites: Tewksbury, MA, and Worcester, MA. It is open to any client served by the Massachusetts Department of Developmental Services who has questions or concerns related to growing older. Adults with Down syndrome comprise a significant proportion of the patients seen in consultation. The common theme for patients seen in consultation is regarding change as a function of growing older: either a change in memory, function, or behavior. Dr. Moran is a geriatrician specializing in adults with I/DD, and evaluations include memory testing, functional assessments, and a comprehensive medical workup of the root cause of observed changes.
Ages Served: ~35+
Hours and Days of Operation: 9:30-3:30, Tuesday (Tewksbury) and Wednesday (Worcester)
Address: Tewksbury Hospital, 365 East Street, Tewksbury, MA 01876-1998
Email: jane.mccuemagner@massmail.state.ma.us (Worcester) and kim.dale@massmail.state.ma.us (Tewksbury)
Appointments: 978-863-2267
General Phone Number: 978-863-2267
Clinical Director: Julie Moran, D.O. Consultant, Intellectual and Developmental Disabilities/Geriatrics, Clinical Instructor of Medicine, Harvard Medical School
Services provided:
Behavioral MD
Psychologist
Registered Dietician
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Pediatric Nurse Practitioner
Genetic Counselor
Feeding Specialist
Developmental Pediatrician
Other Services Provided: Geriatrician specializing in adults with intellectual and developmental disabilities
Year Established: 2008
Patients with Down Syndrome Seen Annually: 150+
Length of Waitlist: 6-12 months
Medicaid Accepted? Yes
Insurance accepted? Yes

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