North Carolina Down Syndrome Medical Care Centers


There are currently 2 Down syndrome medical care centers in North Carolina:


Down Syndrome Center – Charlotte

Affiliation: Levine Children’s Hospital at Carolinas Medical Center
Ages Served: All
Hours and Days of Operation: Third Thursday of each month
Address: 1000 Blythe Blvd., Charlotte, NC 28203
Website: www.levinechildrenshospital.org/body.cfm?id=142
Email: amy.blevins@carolinashealthcare.org
General Phone Number: 704-381-6810
Clinical Director: Amy Blevins, MS, CGC, clinic coordinator
Services provided:
Behavioral MD
Psychologist
Nutritionist
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Nurse Practitioner
Genetic Counselor
Clinical Care Coordinator
Geneticist/Pediatrician
Year Established: 1994
Patients with Down Syndrome Seen Annually: 30 through DS clinic (and 200+ through our general genetics clinic)
Length of Waitlist: Yes, several months for DS clinic; shorter wait for general genetics clinic with triage and work-in appts for babies with a new diagnosis
Medicaid Accepted? NC Medicaid
Insurance accepted? Yes

Duke Children’s Comprehensive Down Syndrome Program – Durham

Affiliation: Duke University Medical Center
Ages Served: up to age 18
Hours and Days of Operation: Durham location – first and third Thursdays of each month, 8:00am – 3:00pm; Raleigh location – second Wednesday of each month, 8:00am – 3:00pm
Address: 3000 Erwin Road Durham, NC 27705
Website: http://www.dukechildrens.org/services/medical_genetics/down_syndrome_clinic
Email: sarah.hart@duke.edu
General Phone Number: 919-684-0307
Clinical Director: Dr. Priya Kishnani and Dr. Gordon Worley
Services provided:
 Behavioral MD
 Psychologist
 Nutritionist
 Physical Therapist
 Occupational Therapist
 Family Practitioner
 Apraxia Specialist
 Speech and Language Pathologist
 Audiologist
 Social Worker
 Education/Inclusion Specialist
 Nurse Practitioner
 Genetic Counselor
 Clinical Care Coordinator
 Feeding Specialist
Year Established: 1995
Patients with Down Syndrome Seen Annually: 620
Length of Waitlist: Yes, 3-4 months
Medicaid Accepted? Yes
Insurance accepted? Yes

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