Pennsylvania Down Syndrome Medical Care Centers


There are currently 3 Down syndrome medical care centers in Pennsylvania:


Down Syndrome Center of Western Pennsylvania – Pittsburgh

Affiliation: Children’s Hospital of Pittsburgh/UPMC, UPMC Montefiore
Summary: The Down Syndrome Center of WPA provides medical consultation, referrals to community medical specialists, information and resources to families and other caregivers. The Down Syndrome Center of WPA supports two distinct programs. The pediatric patients are seen at Children’s Hospital of Pittsburgh of UPMC by Kishore Vellody, MD, Medical Director and Susan Geisler, MD , faculty clinician. The adult patients are seen at UPMC Montefiore in Pittsburgh, PA by Peter Bulova, MD Director of Adult Down Syndrome Center and Co-director for Women with Disabilities program at Magee Womens Hospital. The Down Syndrome Center of Western PA is supported by private charities, community programs and other contributions.
Ages Served: All
Hours and Days of Operation: Adults on Tuesday morning; Pediatric clinic days vary each month.
Address: Children’s Hospital of Pittsburgh of UPMC, 4401 Penn Ave., Pittsburgh, PA 15224
Website: www.chp.edu/downsyndrome
Email: downsyndromecenter@gmail.com
Appointments: 412-692-7963, option 1
General Phone Number: 412-692-7963
Clinical Director: Sheila Cannon, M.Ed.
Services provided:
Behavioral MD
Psychologist
Nutritionist
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Developmental/Inclusion Specialist
Nurse Practitioner
Genetic Counselor
Feeding Specialist
Geneticist/Pediatrician
Year Established: 1989
Patients with Down Syndrome Seen Annually: 550 (This number represents completed appointments per year. Some of our patients require multiple visits per year)
Length of Waitlist: Adult wait list –  4 months; pediatric – new patients within a few weeks, depending on provider availability.
Medicaid Accepted? Yes
Insurance accepted? Yes.  Family should discuss out of network insurance questions with the insurance provider


Eastern Pennsylvania Down Syndrome Center – Trexlertown

Summary: The Eastern Pennsylvania Down Syndrome Center’s services include: (1) Comprehensive and specialized medical assessments for infants, children and adolescents by one of our physicians (90 minutes in length); (2) Referral of patients to specialists who have an interest in meeting the needs of individuals with Down syndrome; (3) Screening by developmental occupational therapist; (4) Collaboration between medical staff and the patient’s primary care physician; (5) Family support and resources/information to members and community.
Ages Served: Infants, children and adolescents
Hours and Days of Operation: 2 days per week – by appointment only
Address: P.O. Box 60, 6900 Hamilton Blvd., Trexlertown, PA 18087
Website: www.epdsc.net
Email: TheEPDSC@gmail.com
General Phone Number: 610-402-0184
Clinical Director: Dr. Donald Levick
Services provided:
Behavioral MD
Psychologist
Nutritionist
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Nurse Practitioner
Genetic Counselor
Feeding Specialist
Geneticist/Pediatrician
Year Established: 1999
Patients with Down Syndrome Seen Annually: 80-90
Length of Waitlist: 4-6 months
Medicaid Accepted? Yes
Insurance accepted? Yes


Trisomy 21 Program at The Children’s Hospital of Philadelphia – Philadelphia

Affiliation: The Children’s Hospital of Philadelphia
Ages Served: All
Hours and Days of Operation: Pediatric clinics are held weekly on alternating Tuesdays and Thursdays. Adult clinics are held as needed on Thursdays and Fridays
Address: Trisomy 21 Program – ARC, 510-b, The Children’s Hospital of Philadelphia, 34th Street and Civic Center Boulevard, Philadelphia, PA 19104
Website: chop.edu/service/trisomy-21/
Email: trisomy21@email.chop.edu
General Phone Number: 267-426-5283
Clinical Director: Program Director – David Lynch, MD, PhD; Clinical Director – Mary Pipan, MD
Services provided:
Behavioral MD
Psychologist
Nutritionist
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Nurse Practitioner
Genetic Counselor
Feeding Specialist
Geneticist/Pediatrician
Year Established: 2003
Patients with Down Syndrome Seen Annually: 1,000
Length of Waitlist: Six to nine months
Medicaid Accepted? Yes
Insurance accepted? Yes

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