Global Down Syndrome Foundation
Research & Medical Care
Down Syndrome Medical Care Centers in the U.S.
Pennsylvania Down Syndrome Medical Care Centers

Pennsylvania Down Syndrome Medical Care Centers

There are currently 5 Down syndrome medical care centers in Pennsylvania:

Down Syndrome Center of Western Pennsylvania – Pittsburgh
Eastern Pennsylvania Down Syndrome Center – Trexlertown
Jefferson Continuing Care Program – Philadelphia
Trisomy 21 Program at The Children’s Hospital of Philadelphia – Philadelphia
Adult Down Syndrome Center at UPMC – Pittsburgh

Down Syndrome Center(s) of Western Pennsylvania – Pittsburgh, Sewickley, Bridgeville, Erie, Hermitage, Johnstown, Washington, PA
Affiliation:	UPMC Children’s Hospital of Pittsburgh, UPMC Montefiore Hospital and UPMC Shae Medical Center
Summary:	We provide comprehensive medical assessments and care coordination for children and adolescents, referrals to sub-specialists who have expertise in meeting the needs of people with Down syndrome, and adult specialty medical assessments provided by an internist who specializes in the care of adults with Down syndrome. The DSC also refers to other specialists who have expertise in meeting the needs of people with Down syndrome. The DSC has developed a Healthy Transitions program for our adolescent patients to successfully transition to adult medical care and future planning.
Ages Served:	All Ages
Hours and Days of Operation:	9:00 AM-4:00 PM; call or email for appointments
Address:	Multiple Locations: UPMC Children’s Hospital of Pittsburgh One Children’s Hospital Drive 4401 Penn Ave. Pittsburgh, PA 15224 UPMC Children’s North 2599 Wexford Bayne Rd. Sewickley, PA 15143 UPMC Children’s South 205 Millers Run Rd., Floor 3 Bridgeville, PA 15017 UPMC Children’s Specialty Care Center Erie at Magee–Womens UPMC Hamot 118 East 2nd St., W1150, Erie, PA 16507	UPMC Children’s Specialty Care Center Hermitage UPMC Outpatient Center 449 N. Hermitage Rd., Hermitage, PA 16148 UPMC Children’s Specialty Care Center Johnstown 865 Eisenhower Blvd., Johnstown, PA 15904 UPMC Children’s Specialty Care Center Washington Washington Hospital: 155 Wilson Ave. Washington, PA 15301
Website:	www.chp.edu/our-services/down-syndrome Facebook: https://www.facebook.com/childrenspgh Instagram: https://instagram.com/childrenspgh/
Email:	DownSyndromeCenter@chp.edu
Appointments:	412-692-7963 and Referral Line: 412-530-1330 or ONLINE: https://www.chp.edu/find-a-doctor
Phone Number:	412-692-7963
Clinical Director:	Kishore Vellody, MD and Andrew McCormick, MD Program Coordinator: Erin Kelly
Services provided:
Behavioral MD Psychologist Nutritionist Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Education/Inclusion Specialist Nurse Practitioner Genetic Counselor Feeding Specialist Pediatrician
Other Services Provided:	Internal Medicine; currently recruiting for an adult patients with Down syndrome research study
Year Established:	1989
Patients with Down Syndrome Seen Annually:	Approx. 725
Length of Waitlist:	3-5 months
Medicaid Accepted:	Yes
Insurance Accepted:	Yes

Eastern Pennsylvania Down Syndrome Center, Trexlertown, PA
Affiliation:	Non profit 501(c)3 organization
Summary:	The Eastern Pennsylvania Down Syndrome Center’s services include: (1) Comprehensive and specialized medical assessments for infants, children and adolescents by one of our physicians (90 minutes in length); (2) Referral of patients to specialists who have an interest in meeting the needs of individuals with Down syndrome; (3) Screening by developmental occupational therapist; (4) Collaboration between medical staff and the patient’s primary care physician; (5) Family support and resources/information to members and community. Our mission is to be a positive influence, respected resource, fierce advocate and dedicated support system for individuals with Down syndrome and their families, educators, healthcare professionals and the community as a whole.
Ages Served:	Birth – Age 13
Hours and Days of Operation:	2 days per week – by appointment only please call or email
Address:	6900 Hamilton Blvd., Trexlertown, PA 18087 Enter through the main entrance and turn right at the front desks. Our office is the first door on your right.
Website:	www.epdsc.net
Email:	TheEPDSC@gmail.com
Appointments:	484-224-5288
Phone Number:	610-402-0184
Clinical Director:	Kerri DiDario, Executive Director
Services provided:
Behavioral MD Psychologist Nutritionist Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Education/Inclusion Specialist Nurse Practitioner Genetic Counselor Feeding Specialist Geneticist/Pediatrician
Year Established:	1995
Patients with Down Syndrome Seen Annually:	Approx. 90-120
Length of Waitlist:	4-7 months
Medicaid Accepted?	Yes
Insurance Accepted?	Yes

Jefferson Continuing Care Program, Philadelphia, PA
Affiliation:	Sidney Kimmel Medical College
Summary:	All too often, patients with intellectual and developmental disabilities, or other complex childhood-onset conditions, face significant challenges finding and transitioning to the right adult providers when they age out of pediatric care. Our Program delivers individualized primary care services and coordinates care with adult specialists, as needed. We assist with regular screenings, preventative medicine, and care coordination. The expert physicians at Jefferson Health’s Continuing Care Program provide exceptional care in a stress-free environment. We help patients with intellectual and developmental disabilities feel comfortable and gain confidence to grow and thrive.
Ages Served:	Ages 12-99
Hours and Days of Operation:	Mon-Fri, 8:00 AM-4:30 PM
Address:	Jefferson Health 3 Crescent Dr Philadelphia, PA 19112
Website:	https://www.jeffersonhealth.org/clinical-specialties/continuing-care-program Facebook: https://www.facebook.com/jeffersonhealth?utm_source=jefferson&utm_medium=vanity Instagram: https://www.instagram.com/jeffersonhealth/?utm_source=jefferson&utm_medium=vanity
Appointments:	215-503-7136
Phone Number:	215-503-7136
Clinical Director:	Mary Stephens, MPH and Karin Rosemen, LCSW
Services provided:
Behavioral MD Psychologist Nutritionist Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Education/Inclusion Specialist Nurse Practitioner Genetic Counselor Feeding Specialist Geneticist/Pediatrician
Year Established:	2019
Patients with Down Syndrome Seen Annually:	Approx. 46
Length of Waitlist:	8 months
Medicaid Accepted?	Yes
Insurance Accepted?	Yes

Trisomy 21 Program at The Children’s Hospital of Philadelphia, Philadelphia, PA
Affiliation:	Children’s Hospital of Philadelphia
Summary:	Our program offers a multidisciplinary team approach to the evaluation and ongoing treatment of the medical, developmental and behavioral health needs of children and adults with Down syndrome. We serve individuals from infancy through adulthood. The program supports the individuals, their families and their healthcare teams by providing education, healthcare collaboration and a comprehensive review of developmental, behavioral, educational, psychosocial and medical issues common in individuals with Down syndrome.
Ages Served:	All Ages
Hours and Days of Operation:	Pediatric clinics are held on alternating Tuesdays and Thursdays and on the 3rd Wednesday of the month. Adult clinic is held on the first Monday of the month.
Address:	Trisomy 21 Program – Children’s Hospital of Philadelphia, 34th Street & Civic Center Boulevard, Philadelphia, PA 19104
Website:	www.chop.edu/centers-programs/trisomy-21-program
Email:	trisomy21@email.chop.edu
Appointments:	267-426-5283
Phone Number:	267-426-5283
Clinical Director:	Program Director – Mary Pipan, MD; Co-Director – Kim Schadt, MSN, CRNP
Services provided:
Behavioral MD Psychologist Nutritionist Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Education/Inclusion Specialist Nurse Practitioner Genetic Counselor Feeding Specialist Geneticist/Pediatrician
Year Established:	2003
Patients with Down Syndrome Seen Annually:	1,000
Length of Waitlist:	6 to 9 months
Medicaid Accepted?	Yes
Insurance Accepted?	Yes

Adult Down Syndrome Center at UPMC, Pittsburgh, PA
Affiliation:	UPMC Montefiore
Summary:	The Adult Down Syndrome Center of Western Pennsylvania provides comprehensive medical care for adults with Down syndrome. Our multi-disciplinary team ensures patients receive everything from holistic care and support to education and resources in a compassionate environment for patients, families and caregivers.
Ages Served:	Ages 18+
Hours and Days of Operation:	6 sessions per month
Address:	Adult Down Syndrome Center 9th floor UPMC Montefiore 200 Lothrop Street Pittsburgh, PA 15213
Website:	https://www.upmc.com/services/adult-down-syndrome-center
Email:	DownSyndromeCenter@upmc.edu
Appointments:	412-692-7963
Phone Number:	412-692-7963 To reach Program Coordinator, call 412-692-8264
Clinical Director:	Dr. Peter Bulova and Dr. Anna Marie White
Services provided:
Behavioral MD Psychologist Nutritionist Physical Therapist Occupational Therapist	Family Practitioner Apraxia Specialist Speech and Language Pathologist Audiologist Social Worker	Clinical Care Coordinator Nurse Practitioner Genetic Counselor Feeding Specialist Geneticist/Pediatrician
Year Established:	1989
Patients with Down Syndrome Seen Annually:	200
Length of Waitlist:	N/A
Medicaid Accepted?	Yes
Insurance Accepted?	Yes

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