Be Beautiful Be Yourself Fashion Show is Nov. 2 in Denver
October 30th, 2019 by Global Down Syndrome Foundation
Danville resident gets break on the big screen
October 28th, 2019 by Global Down Syndrome Foundation
Be Beautiful Be Yourself Fashion Show Back & Better Than Ever
October 26th, 2019 by Global Down Syndrome Foundation
Ariana Perez: Annapolis teen is ambassador at Global Down Syndrome Be Beautiful Be Yourself Fashion Show
October 26th, 2019 by Global Down Syndrome Foundation
The 11th Annual Be Beautiful Be Yourself Fashion Show happens in Denver on November 2nd
October 26th, 2019 by Global Down Syndrome Foundation
Anticipation, Excitement Grows For Be Beautiful, Be Yourself Fashion Show
October 26th, 2019 by Global Down Syndrome Foundation
The Peanut Butter Falcon — Actor Zack Gottsagen & Advocate Shelley Gottsagen
October 26th, 2019 by Global Down Syndrome Foundation
Global Webinar Series – Fall 2019 Recap
October 24th, 2019 by Global Down Syndrome Foundation
FALL 2019
What Families Need to Know: Utilizing the Pediatric Medical Care Guidelines for Down Syndrome
What You Need to Know
Overview & Speakers:
This webinar discusses the importance of utilizing the American Academy of Pediatrics Guidelines Health Supervision of patients with Down Syndrome, published in 2011. Find out what families need to know. Key takeaways from this presentation are:
• To better comprehend the utilization of the Guidelines in medical care of our kids
• To recognize the importance of ongoing thyroid, hearing and vision
• To understand the increased risk of respiratory illnesses including pulmonary illnesses, pneumonia, and aspiration in individuals with Down Syndrome
Fran Hickey, MD joined the Linda Crnic Institute for Down Syndrome as Medical Director of its Anna and John J. Sie Center for Down Syndrome in 2010 and he has been involved in the care of individuals with Down syndrome for over 2 decades. Since 2010, Dr. Hickey has organized a multi-disciplinary team of experts interested in children with Down syndrome along with a dedicated research team. He has evaluated nearly 1800 unique individuals with Down Syndrome from across the country and internationally the past 9 years. Sie Center clinics developed include: General Clinics, Infant Clinic, Feeding Clinic, School Age Clinic, Prenatal Clinic, and 2 Sleep Clinics. His research has concentrated on clinical studies involving identification and interventions for comorbidities found in children with Down syndrome. Dr. Hickey has directed over 30 research projects. He has authored or co-authored 30 articles in scholarly publications on Down syndrome. Also, he has developed an academic teaching program on Down syndrome for residents, medical students and fellows who have rotated through the Sie Center clinic. The team developed an innovative Down Syndrome Guideline Chart 1-page summary chart of AAP Guidelines Health Supervision of Down Syndrome Patients. Dr. Hickey and his wife, Kris, are the parents of four children, one of whom has Down syndrome. |
Key Takeaways:
Powerpoint Presentation: Click to Download
Additional Handout: Click to Download
Important Notice
The Global Down Syndrome Foundation’s employees and/or volunteers are NOT acting as your medical professional or attorney. Responses you receive via electronic mail, phone, or in any other manner DO NOT create or constitute a doctor-patient or attorney-client relationship between you and the Global Down Syndrome Foundation (Global), or any employee of, or other person associated with, Global.
Information received from Global’s employees or volunteers, or from this website, should NOT be considered a substitute for the advice of a medical professional or lawyer. Globaldownsyndrome.org DOES NOT provide any medical or legal advice. You should consult with your own doctor or lawyer for medical or legal advice. This website is a general service that provides information over the internet. The information contained on this website is general information and should not be construed as medical advice to be applied to any specific factual situations.
GLOBAL Webinars Archive
2023
2023
2022
2021
2019
CPAP, Hearing Aids, & Glasses, Oh My! How to Help my Child & Adult Wear their Medical Equipment
What Families Need to Know: Utilizing the Pediatric Medical Care Guidelines for Down Syndrome
Self-Advocates Win Landmark Federal Funding for Research: Join GLOBAL – Join the Movement
Take A Deep Breath: Lung Infection & Cognition in Down Syndrome
2018
Be Beautiful Be Yourself
October 23rd, 2019 by Global Down Syndrome Foundation
Shia LaBeouf Wants You at the Be Beautiful Be Yourself Fashion Show
October 23rd, 2019 by Global Down Syndrome Foundation
Shia LaBeouf has a message for YOU! Shia’s breakout film, The Peanut Butter Falcon, co-starring Global’s Quincy Jones Exceptional Advocacy Award winner, Zack Gottsagen, is now the most successful indie film of the year! Last year at Global’s Be Beautiful Be Yourself Fashion Show, co-stars Shia and Dakota Johnson danced on stage with Zack as he accepted his award with celebratory roars from Armory Films producers and writers/directors Tyler and Michael below in the audience.
Zack and his crew had planned to attend this year but we are thrilled to announce they cannot – BECAUSE (wait for it) – Zack’s performance in The Peanut Butter Falcon has earned Oscar buzz and the entire crew needs to be in LA so that Zack can be the FIRST (but not last) actor with Down syndrome to be nominated for an Academy Award!
Global is a proud executive producer of the film, and wants more actors with Down syndrome in Hollywood! Please join us in our fight for health and research equity for people with Down syndrome at the LARGEST fundraiser for Down syndrome in the world! Learn more here: www.bebeautifulbeyourself.org
To learn more about Peanut Butter Falcon click here.