Global Down Syndrome Foundation
Research & Medical Care Roundtable 2019

What Parents, Self-Advocates & Caregivers Should Know

Thursday, June 27th, 2019
David L. Lawrence Convention Center
1000 Fort Duquesne Blvd.

A free benefit included in NDSC Annual Convention registration.

On Thursday, June 27th, from 1:00pm to 5:00pm, the Global Down Syndrome Foundation is hosting its Research & Medical Care Roundtable. Co-organized with the National Down Syndrome Congress’s Annual Convention in Pittsburgh, this Roundtable will feature renowned scientists and medical professionals.
Topics include:

  • Alzheimer’s Disease and Down Syndrome: Research Today and What the Future May Hold
  • NIH Priorities for Alzheimer’s Disease and Down Syndrome
  • Alzheimer’s Disease Overall State of Research
  • Autoimmune Disorders can Accelerate Alzheimer’s Disease
  • Findings from Pittsburgh Adult Down Syndrome Clinic
  • Avoiding Misdiagnosis of Alzheimer’s Disease in People with Down Syndrome

Lunch will be provided upon check-in once you arrive.


Mike Rafii, MD, PhD

Associate Professor of Clinical Neurology, Keck School of Medicine, University of Southern California; Medical Director of the Alzheimer’s Therapeutic Research Institute and the NIH-funded Alzheimer’s Clinical Trial Consortium; Principal Investigator for the Down Syndrome Biomarker Initiative; Steering Committee Member of the NIH-funded Alzheimer’s Biomarker Consortium

Laurie Ryan, PhD

Chief of the Dementias of Aging Branch, Division of Neuroscience at the National Institute of Aging, part of the National Institutes of Health

Huntington Potter, PhD

Professor of Neurology, University of Colorado School of Medicine; Rocky Mountain Alzheimer’s Disease Center Director, Alzheimer’s Disease Program Director at the Linda Crnic Institute for Down Syndrome

Joaquín Espinosa, PhD

Executive Director, Linda Crnic Institute for Down Syndrome, Professor in the Department of Pharmacology at the University of Colorado School of Medicine, Co-Leader of the Molecular Oncology program at the University of Colorado Cancer Center, and founding Director of the Functional Genomics Facility at the University of Colorado

Peter Bulova, PhD

Associate Professor of Medicine, Director of the University of Pittsburgh Adult Down Syndrome Center, Co-Director of the Magee Center for Women with Disabilities, Board President of the Down Syndrome Medical Interest Group (DSMIG-USA)

Dennis McGuire, LCSW, PhD

Senior Consultant on Adult Medical Strategies for Global Down Syndrome Foundation, Down Syndrome