{"id":16,"date":"2011-06-01T10:34:13","date_gmt":"2011-06-01T10:34:13","guid":{"rendered":"http:\/\/globaldownsyndrome.org.mytempweb.com\/?page_id=16"},"modified":"2026-08-17T16:31:36","modified_gmt":"2026-08-17T22:31:36","slug":"%e0%a6%86%e0%a6%ae%e0%a6%be%e0%a6%a6%e0%a7%87%e0%a6%b0-%e0%a6%97%e0%a6%b2%e0%a7%8d%e0%a6%aa","status":"publish","type":"page","link":"https:\/\/www.globaldownsyndrome.org\/bn\/our-story\/","title":{"rendered":"\u0986\u09ae\u09be\u09a6\u09c7\u09b0 \u0997\u09b2\u09cd\u09aa"},"content":{"rendered":"<div class=\"wpb-content-wrapper\" id=\"wpb-content-root\"><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\">\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<h2><strong><img loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-2121 alignright\" title=\"Bill &amp; Will Harmon\" src=\"\/wp-content\/uploads\/2011\/06\/Bill_Will_Harmon.jpg\" alt=\"Bill and Will Harmon\" width=\"225\" height=\"150\"><\/strong>\u0997\u09cd\u09b2\u09cb\u09ac\u09be\u09b2 \u09a1\u09be\u0989\u09a8 \u09b8\u09bf\u09a8\u09a1\u09cd\u09b0\u09cb\u09ae \u09ab\u09be\u0989\u09a8\u09cd\u09a1\u09c7\u09b6\u09a8 \u09b8\u09ae\u09cd\u09aa\u09b0\u09cd\u0995\u09c7<strong><br \/>\n<\/strong><\/h2>\n<p><strong>The Global Down Syndrome Foundation<\/strong>&nbsp;is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy. Formally established in 2009, the Foundation\u2019s primary focus is to support the&nbsp;<a title=\"\u09a1\u09be\u0989\u09a8 \u09b8\u09bf\u09a8\u09a1\u09cd\u09b0\u09cb\u09ae\u09c7\u09b0 \u099c\u09a8\u09cd\u09af \u09b2\u09bf\u09a8\u09cd\u09a1\u09be \u0995\u09cd\u09b0\u09a8\u09bf\u0995 \u0987\u09a8\u09b8\u09cd\u099f\u09bf\u099f\u09bf\u0989\u099f\" href=\"http:\/\/www.globaldownsyndrome.org\/our-story\/linda-crnic-institute\/\">\u09a1\u09be\u0989\u09a8 \u09b8\u09bf\u09a8\u09a1\u09cd\u09b0\u09cb\u09ae\u09c7\u09b0 \u099c\u09a8\u09cd\u09af \u09b2\u09bf\u09a8\u09cd\u09a1\u09be \u0995\u09cd\u09b0\u09a8\u09bf\u0995 \u0987\u09a8\u09b8\u09cd\u099f\u09bf\u099f\u09bf\u0989\u099f<\/a>, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. Since Down syndrome is the least-funded genetic condition in the United States, fundraising and government advocacy to correct the alarming disparity of national funding for people with Down syndrome is a major goal.<\/p>\n<p><em><a title=\"Read more about us\" href=\"http:\/\/www.globaldownsyndrome.org\/our-story\/about-gdsf\/\">Read more about us<\/a>.<\/em><\/p>\n<hr>\n<h2>Our History<\/h2>\n<p>In 2006, <a title=\"John J. and Anna Sie\" href=\"?page_id=1038\">John J. and Anna Sie<\/a>&nbsp;organized a summit gathering some of the world\u2019s best scientists, including Nobel Laureate Tom Cech, to explore the possibility of break-through research for people with Down syndrome. That same year, the idea of the first academic home for Down syndrome research was born.<\/p>\n<p><em><a title=\"\u0987\u09a4\u09bf\u09b9\u09be\u09b8\" href=\"?page_id=569\">Read more about the history of the Global Down Syndrome Foundation<\/a>.<\/em><\/p>\n<hr>\n<h2>\u09a8\u09c7\u09a4\u09c3\u09a4\u09cd\u09ac<\/h2>\n<p>Meet the people behind the Global Down Syndrome Foundation, including our <a title=\"\u09aa\u09b0\u09bf\u099a\u09be\u09b2\u09a8\u09be \u09aa\u09b0\u09cd\u09b7\u09a6\" href=\"?page_id=945\">\u09aa\u09b0\u09bf\u099a\u09be\u09b2\u09a8\u09be \u09aa\u09b0\u09cd\u09b7\u09a6<\/a>. Also get to know the <a title=\"Leaders at Linda Crnic Institute for Down Syndrome\" href=\"?page_id=951\">leaders at the Linda Crnic Institute for Down Syndrome<\/a> \u098f\u09ac\u0982 <a title=\"\u0986\u09a8\u09be \u098f\u09ac\u0982 \u099c\u09a8 \u099c\u09c7. \u09b8\u09bf \u09b8\u09c7\u09a8\u09cd\u099f\u09be\u09b0 \u09ab\u09b0 \u09a1\u09be\u0989\u09a8 \u09b8\u09bf\u09a8\u09a1\u09cd\u09b0\u09cb\u09ae\" href=\"?page_id=578\">\u0986\u09a8\u09be \u098f\u09ac\u0982 \u099c\u09a8 \u099c\u09c7. \u09b8\u09bf \u09b8\u09c7\u09a8\u09cd\u099f\u09be\u09b0 \u09ab\u09b0 \u09a1\u09be\u0989\u09a8 \u09b8\u09bf\u09a8\u09a1\u09cd\u09b0\u09cb\u09ae<\/a>.<\/p>\n<p><em><a title=\"Read more about Global's leadership\" href=\"?page_id=571\">Read more about the Leadership of the Global Down Syndrome Foundation.<\/a><\/em><\/p>\n<hr>\n<h2><strong><img loading=\"lazy\" decoding=\"async\" class=\"alignright size-full wp-image-2331\" title=\"Global staff\" src=\"\/wp-content\/uploads\/2011\/06\/staff_anca.jpg\" alt=\"Global staff\" width=\"225\" height=\"150\"><\/strong>Staff<\/h2>\n<p>A group of highly talented and motivated people manage the day-to-day business of the Global Down Syndrome Foundation.<\/p>\n<p><em><a title=\"Global Staff\" href=\"https:\/\/www.globaldownsyndrome.org\/bn\/%e0%a6%86%e0%a6%ae%e0%a6%be%e0%a6%a6%e0%a7%87%e0%a6%b0-%e0%a6%97%e0%a6%b2%e0%a7%8d%e0%a6%aa\/%e0%a6%95%e0%a6%b0%e0%a7%8d%e0%a6%ae%e0%a7%80\/\">Read more about them here<\/a>.<\/em><\/p>\n<hr>\n<h2><strong><a title=\"\u09a1\u09be\u0989\u09a8 \u09b8\u09bf\u09a8\u09a1\u09cd\u09b0\u09cb\u09ae\u09c7\u09b0 \u099c\u09a8\u09cd\u09af \u09b2\u09bf\u09a8\u09cd\u09a1\u09be \u0995\u09cd\u09b0\u09a8\u09bf\u0995 \u0987\u09a8\u09b8\u09cd\u099f\u09bf\u099f\u09bf\u0989\u099f\" href=\"?page_id=573\"><img decoding=\"async\" class=\"alignright size-full\" title=\"\u09a1\u09be\u0989\u09a8 \u09b8\u09bf\u09a8\u09a1\u09cd\u09b0\u09cb\u09ae\u09c7\u09b0 \u099c\u09a8\u09cd\u09af \u09b2\u09bf\u09a8\u09cd\u09a1\u09be \u0995\u09cd\u09b0\u09a8\u09bf\u0995 \u0987\u09a8\u09b8\u09cd\u099f\u09bf\u099f\u09bf\u0989\u099f\" src=\"https:\/\/www.globaldownsyndrome.org\/wp-content\/uploads\/2018\/08\/2018_Crnic_logo.jpg\" alt=\"\u09a1\u09be\u0989\u09a8 \u09b8\u09bf\u09a8\u09a1\u09cd\u09b0\u09cb\u09ae\u09c7\u09b0 \u099c\u09a8\u09cd\u09af \u09b2\u09bf\u09a8\u09cd\u09a1\u09be \u0995\u09cd\u09b0\u09a8\u09bf\u0995 \u0987\u09a8\u09b8\u09cd\u099f\u09bf\u099f\u09bf\u0989\u099f\" width=\"350\"><\/a><\/strong>The Linda Crnic Institute for Down Syndrome<\/h2>\n<p>The Institute provides the world\u2019s first fully integrated institute for Down syndrome with the highest quality basic, translational and clinical research, clinical trials, therapeutic development, medical care, education and advocacy in the pursuit of the mission.<\/p>\n<p><em><a title=\"Linda Crnic institute for Down Syndrome\" href=\"?page_id=573\">Read more about the Linda Crnic Institute<\/a>.<\/em><\/p>\n<hr>\n<div id=\"attachment_2123\" style=\"width: 235px\" class=\"wp-caption alignright\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-2123\" class=\"size-full wp-image-2123\" title=\"Anna and John J. Sie\" src=\"\/wp-content\/uploads\/2011\/06\/anna_and_john_sie.jpg\" alt=\"Anna and John J. Sie\" width=\"225\" height=\"150\"><p id=\"caption-attachment-2123\" class=\"wp-caption-text\">John J. and Anna Sie<\/p><\/div>\n<h2>\u0986\u09a8\u09be \u098f\u09ac\u0982 \u099c\u09a8 \u099c\u09c7. \u09b8\u09bf \u09b8\u09c7\u09a8\u09cd\u099f\u09be\u09b0 \u09ab\u09b0 \u09a1\u09be\u0989\u09a8 \u09b8\u09bf\u09a8\u09a1\u09cd\u09b0\u09cb\u09ae<\/h2>\n<p>The Sie Center at Children&#8217;s Hospital opened its doors to patients with Down syndrome from all over the world and the US in November of 2010.&nbsp;The Sie Center is comprised of a multi-disciplinary \u201cDream Team\u201d of experts with more than 80 years of combined experience in caring for children with Down syndrome and developmental disabilities.<\/p>\n<p><em><a title=\"Anna and John J Sie Center for Down Syndrome\" href=\"?page_id=578\">Read more about the Anna and John J. Sie Center for Down Syndrome<\/a>.<\/em><\/p>\n\n\t\t<\/div>\n\t<\/div>\n<\/div><\/div><\/div><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"About Global Down Syndrome Foundation The Global Down Syndrome Foundation&nbsp;is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy. Formally established in 2009, the Foundation\u2019s primary focus is to support the&nbsp;Linda Crnic Institute for Down Syndrome, the first academic home in the [...]","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":20,"comment_status":"open","ping_status":"open","template":"","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"ngg_post_thumbnail":0,"footnotes":""},"class_list":["post-16","page","type-page","status-publish","hentry"],"acf":[],"aioseo_notices":[],"aioseo_head":"\n\t\t<!-- All in One SEO 5.0.1.1 - aioseo.com -->\n\t<meta name=\"description\" content=\"The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy. 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