{"id":156128,"date":"2024-05-13T11:05:03","date_gmt":"2024-05-13T17:05:03","guid":{"rendered":"https:\/\/www.globaldownsyndrome.org\/?p=156128"},"modified":"2026-05-20T10:48:56","modified_gmt":"2026-05-20T16:48:56","slug":"global-recauda-400000-en-su-gala-de-aceptacion-en-la-que-los-famosos-del-congreso-dan-un-paso-al-frente-en-favor-de-las-personas-con-sindrome-de-down","status":"publish","type":"post","link":"https:\/\/www.globaldownsyndrome.org\/es_mx\/global-raises-400000-at-their-acceptability-gala-as-celebrities-congress-step-out-for-people-with-down-syndrome\/","title":{"rendered":"GLOBAL recauda $400.000 en su gala AcceptAbility, en la que celebridades y congresistas dan un paso al frente en favor de las personas con s\u00edndrome de Down"},"content":{"rendered":"
\n

La Fundaci\u00f3n Mundial del S\u00edndrome de Down rindi\u00f3 homenaje a los representantes Hudson y Frankel en un acto en el que participaron la cantante y actriz nominada a los Grammy Jordin Sparks y un grupo de danza inclusivo.<\/em><\/p>\n<\/div>\n

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Denver, CO, 10 de mayo de 2024<\/strong> -La pasada noche el Fundaci\u00f3n Mundial del S\u00edndrome de Down<\/a> (GLOBAL) celebr\u00f3 su sexta Gala AcceptAbility<\/em><\/a>La mayor recaudaci\u00f3n de fondos de DC para personas con s\u00edndrome de Down, que recaud\u00f3 $400.000 para apoyar importantes investigaciones y cuidados m\u00e9dicos destinados a mejorar la vida de quienes tienen s\u00edndrome de Down. Representantes Richard Hudson <\/strong>(R-NC) y Lois Frankel<\/strong> (D-FL) recibi\u00f3 el m\u00e1ximo galard\u00f3n de GLOBAL, el Premio Quincy Jones a la Defensa Excepcional, <\/em>y se comprometieron a seguir defendiendo con firmeza en el Congreso una causa que repercuta en la vida de las personas con s\u00edndrome de Down y sus familias.<\/p>\n

\"\"<\/p>\n

\u201cAt GLOBAL, we are working hard every day to elongate life and improve health outcomes for our loved ones with Down syndrome,\u201d says GLOBAL Co-Founder, President, and CEO, Michelle Sie Whitten<\/strong>. \u201cLast night we brought together a room full of bi-partisan support  from Congress, NIH leadership, self-advocates with Down syndrome, and corporate leaders, all celebrating the impact of GLOBAL\u2019s work. The joy and excitement at our event and the tangible outcome of our work together is truly rewarding!\u201d<\/p>\n

El acto, celebrado en el Marriott Marquis de Washington, DC, cont\u00f3 con la presencia de un antiguo alumno galardonado con el premio GLOBAL, el diputado Cathy McMorris Rodgers<\/strong> (R-WA) y su hijo, el Embajador GLOBAL Cole Rodgers<\/strong>. El discurso de la diputada Rodgers conmovi\u00f3 profundamente al p\u00fablico. Su determinaci\u00f3n de aprobar un proyecto de ley de legado que cambia el juego, el Ley del Proyecto INCLUDE de DeOndra Dixon<\/a>, antes de su conmovedora retirada del Congreso, fue un aspecto importante de la velada. El proyecto de ley contribuir\u00e1 a garantizar la financiaci\u00f3n de la investigaci\u00f3n y la atenci\u00f3n m\u00e9dica del s\u00edndrome de Down por parte de los NIH en los a\u00f1os venideros.<\/p>\n

Entre los famosos apasionados por la causa se encontraban la cantante, compositora y actriz nominada a los Grammy y multiplatino Jordin Sparks<\/strong>actor, escritor y conferenciante Frank Stephens<\/strong>autora y conferenciante David Egan<\/strong>; y galardonada corresponsal de ABC News y presentadora de ABC News LIVE Kyra Phillips <\/strong>y su hija Sage Roberts.<\/strong><\/p>\n

Reconocer el liderazgo transformador del diputado Rosa DeLauro<\/strong> (D-CT), el premio GLOBAL Rosa DeLauro Advancement, dotado con una beca postsecundaria, se concedi\u00f3 a Damani Tichawonna de Washington, DC<\/strong> como lo fue el GLOBAL Tom Cole<\/strong> Premio de Fomento a Julia Greene<\/strong>. La representante Rosa DeLauro estuvo presente para entregar personalmente los dos Premios al Progreso a los merecedores galardonados, dejando a la audiencia inspirada para hacer a\u00fan m\u00e1s por las personas con s\u00edndrome de Down y sus familias.<\/p>\n

Con la ayuda del Embajador GLOBAL Isla Eager<\/strong> y su familia, Erin Book Mullen<\/strong>y copresidentes Julie Riccio <\/strong>y Amy Best Weiss<\/strong>, la inspiradora gala atrajo a 300 asistentes y recaud\u00f3 $400.000 para la investigaci\u00f3n y la atenci\u00f3n m\u00e9dica de GLOBAL que salvan vidas. GLOBAL apoya a m\u00e1s de 200 investigadores en el Campus M\u00e9dico Anschutz de la Instituto Crnic para el S\u00edndrome de Down<\/a> y en el Centro de Alzheimer y Cognici\u00f3n<\/a>, as well as  2,500 patients from 33 states and 10 countries at the Centro Sie para el s\u00edndrome de Down<\/a>. Durante casi dos d\u00e9cadas, el s\u00edndrome de Down fue una de las afecciones gen\u00e9ticas menos financiadas a nivel federal en Estados Unidos.<\/p>\n

\"Las personas con s\u00edndrome de Down enriquecen nuestro mundo de maneras \u00fanicas\", afirma el diputado Hudson. \"GLOBAL est\u00e1 allanando el camino para que las personas con discapacidades diferentes puedan vivir sus vidas con todo su potencial, sin barreras, prejuicios ni obst\u00e1culos que se interpongan en su camino. Es un honor para m\u00ed apoyar sus esfuerzos y recibir este premio, y seguir\u00e9 abogando por pol\u00edticas que mejoren la vida de las personas con s\u00edndrome de Down.\"<\/p>\n

\"Fue un honor estar con tantos grandes defensores del s\u00edndrome de Down y recibir un reconocimiento tan generoso\", dice el Representante Frankel. \"Estoy orgulloso de apoyar la misi\u00f3n de GLOBAL de alargar la vida y mejorar la salud de las personas con s\u00edndrome de Down. Su Gala AcceptAbility fue una velada inspiradora que nos recuerda a todos que debemos seguir haciendo inversiones cr\u00edticas en la investigaci\u00f3n del s\u00edndrome de Down para defender la salud y la dignidad de cada persona.\"<\/p>\n

Al final de la velada, Jordin Sparks<\/strong> cautiv\u00f3 al p\u00fablico no s\u00f3lo con su hermosa voz, sino tambi\u00e9n conectando con sus fans y subiendo al escenario a autogestores con s\u00edndrome de Down, mientras interpretaba en un ambiente \u00edntimo y sincero algunos de sus mayores \u00e9xitos, entre ellos \"No Air\" y \"One Step at a Time,\" <\/em>and  solo dancer Robert Wallop<\/strong> y el grupo de danza inclusiva RhythmXpress<\/strong> deleit\u00f3 a los asistentes con actuaciones de baile al ritmo de \"Bones\" de Imagine Dragons, \"Firework\" de Katy Perry y \"Fireball\" de Mini Pop Kids.<\/p>\n

Tambi\u00e9n asistieron otras personalidades Kim Owens<\/strong> del Congreso Nacional sobre el S\u00edndrome de Down y Ley Dria<\/strong> de la Asociaci\u00f3n del S\u00edndrome de Down del Sur de Nueva Jersey .<\/p>\n

Para saber m\u00e1s sobre GLOBAL, visite www.globaldownsyndrome.org<\/a>.<\/p>\n

###<\/p>\n

Acerca de la Fundaci\u00f3n Mundial del S\u00edndrome de Down<\/strong><\/p>\n

En Fundaci\u00f3n Mundial del S\u00edndrome de Down<\/a> (GLOBAL) es la mayor organizaci\u00f3n sin \u00e1nimo de lucro de Estados Unidos que trabaja para salvar vidas y mejorar dr\u00e1sticamente los resultados sanitarios de las personas con s\u00edndrome de Down. GLOBAL ha donado m\u00e1s de $32 millones para crear el primer instituto de investigaci\u00f3n del s\u00edndrome de Down, que presta apoyo a m\u00e1s de 400 cient\u00edficos y a m\u00e1s de 2.400 pacientes con s\u00edndrome de Down de 33 estados y 10 pa\u00edses. En estrecha colaboraci\u00f3n con el Congreso y los Institutos Nacionales de Salud, GLOBAL es la principal organizaci\u00f3n de defensa de la investigaci\u00f3n y la atenci\u00f3n m\u00e9dica del s\u00edndrome de Down en Estados Unidos. GLOBAL cuenta con m\u00e1s de 110 organizaciones de s\u00edndrome de Down en todo el mundo y forma parte de una red de afiliados - la Instituto Crnic para el S\u00edndrome de Down<\/a>El Centro Sie para el s\u00edndrome de Down<\/a>y el Centro de Alzheimer y Cognici\u00f3n de la Universidad de Colorado<\/a> - todo ello en el Anschutz Medical Campus. Entre las publicaciones m\u00e9dicas de GLOBAL de gran difusi\u00f3n figuran DIRECTRICES GLOBALES DE ATENCI\u00d3N M\u00c9DICA PARA ADULTOS CON S\u00cdNDROME DE DOWN<\/a>, <\/u>Informaci\u00f3n prenatal y neonatal sobre el s\u00edndrome de Down<\/a>y el galardonado El mundo del s\u00edndrome de Down\u2122<\/em><\/a> revista. GLOBAL tambi\u00e9n organiza la Gala AcceptAbility<\/em><\/a> en Washington DC, y el Desfile de moda Be Beautiful Be Yourself<\/em><\/a>la mayor organizaci\u00f3n mundial de recaudaci\u00f3n de fondos para el s\u00edndrome de Down.<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

Global Down Syndrome Foundation Honored Reps. Hudson and Frankel at Event that Featured Grammy-Nominated Singer and Actress Jordin Sparks and an Inclusive Dance Troupe Denver, CO, May 10, 2024 –Last night the Global Down Syndrome Foundation (GLOBAL) held its sixth annual AcceptAbility Gala, DC\u2019s largest fundraiser for people with Down syndrome, that raised $400,000 to support important research […]<\/p>\n","protected":false},"author":3,"featured_media":156131,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"ngg_post_thumbnail":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[8],"tags":[],"class_list":["post-156128","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-press-releases"],"acf":[],"yoast_head":"\nGLOBAL Raises $400,000 at their AcceptAbility Gala as Celebrities & Congress Step Out for People with Down Syndrome | Global Down Syndrome Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.globaldownsyndrome.org\/es_mx\/global-recauda-400000-en-su-gala-de-aceptacion-en-la-que-los-famosos-del-congreso-dan-un-paso-al-frente-en-favor-de-las-personas-con-sindrome-de-down\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"GLOBAL Raises $400,000 at their AcceptAbility Gala as Celebrities & Congress Step Out for People with Down Syndrome | Global Down Syndrome Foundation\" \/>\n<meta property=\"og:description\" content=\"Global Down Syndrome Foundation Honored Reps. 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