Global Webinar Series

FALL 2019

What Families Need to Know: Utilizing the Pediatric Medical Care Guidelines for Down Syndrome

What You Need to Know

Overview & Speakers:

This webinar discusses the importance of utilizing the American Academy of Pediatrics Guidelines Health Supervision of patients with Down Syndrome, published in 2011. Find out what families need to know. Key takeaways from this presentation are:

• To better comprehend the utilization of the Guidelines in medical care of our kids

• To recognize the importance of ongoing thyroid, hearing and vision

• To understand the increased risk of respiratory illnesses including pulmonary illnesses, pneumonia, and aspiration in individuals with Down Syndrome

Francis Hickey, MD

Fran Hickey, MD joined the Linda Crnic Institute for Down Syndrome as Medical Director of its Anna and John J. Sie Center for Down Syndrome in 2010 and he has been involved in the care of individuals with Down syndrome for over 2 decades. Since 2010, Dr. Hickey has organized a multi-disciplinary team of experts interested in children with Down syndrome along with a dedicated research team. He has evaluated nearly 1800 unique individuals with Down Syndrome from across the country and internationally the past 9 years. Sie Center clinics developed include: General Clinics, Infant Clinic, Feeding Clinic, School Age Clinic, Prenatal Clinic, and 2 Sleep Clinics. His research has concentrated on clinical studies involving identification and interventions for comorbidities found in children with Down syndrome. Dr. Hickey has directed over 30 research projects. He has authored or co-authored 30 articles in scholarly publications on Down syndrome. Also, he has developed an academic teaching program on Down syndrome for residents, medical students and fellows who have rotated through the Sie Center clinic. The team developed an innovative Down Syndrome Guideline Chart 1-page summary chart of AAP Guidelines Health Supervision of Down Syndrome Patients. Dr. Hickey and his wife, Kris, are the parents of four children, one of whom has Down syndrome.

Key Takeaways:

Powerpoint Presentation: Click to Download

Additional Handout: Click to Download

Questions & Answers: Coming Soon!

Important Notice

The Global Down Syndrome Foundation’s employees and/or volunteers are NOT acting as your medical professional or attorney. Responses you receive via electronic mail, phone, or in any other manner DO NOT create or constitute a doctor-patient or attorney-client relationship between you and the Global Down Syndrome Foundation (Global), or any employee of, or other person associated with, Global.

Information received from Global’s employees or volunteers, or from this website, should NOT be considered a substitute for the advice of a medical professional or lawyer. Globaldownsyndrome.org DOES NOT provide any medical or legal advice. You should consult with your own doctor or lawyer for medical or legal advice. This website is a general service that provides information over the internet. The information contained on this website is general information and should not be construed as medical advice to be applied to any specific factual situations.

Global Webinars:

Fall 2019: What Families Need to Know: Utilizing the Pediatric Medical Care Guidelines for Down Syndrome

Summer 2019: Self-Advocates Win Landmark Federal Funding for Research: Join Global – Join the Movement

Spring 2019: Take A Deep Breath: Lung Infection & Cognition in Down Syndrome

Winter 2018: Physical Therapy for Children with Down syndrome & How to Set your Child Up for Successful Learning Experiences

Fall 2018: Supporting Aging Adults with Down syndrome and Alzheimer’s Disease

Summer 2018: Developing an Individualized Feeding Plan for Your Child with Down Syndrome

Spring 2018: An Unprecedented and Exciting Down Syndrome Research Discovery Engine – The Crnic Institute Human Trisome Project

Winter 2017: Get Moving, Be Awesome! – Physical Therapy & Fitness for Adolescents & Adults with Down Syndrome

Fall 2017: Promoting Skills to Survive & Thrive in the Teen & Adult Years

Summer 2017: Multimodal Approach to Teaching Children with Down syndrome Speech & Language Skills

Spring 2017: Potty Time! A Journey to Successful Toilet Training