{"id":157353,"date":"2024-08-22T12:00:04","date_gmt":"2024-08-22T18:00:04","guid":{"rendered":"https:\/\/www.globaldownsyndrome.org\/?p=157353"},"modified":"2024-09-11T15:59:03","modified_gmt":"2024-09-11T21:59:03","slug":"washington-post-dsdr","status":"publish","type":"post","link":"https:\/\/www.globaldownsyndrome.org\/hi\/washington-post-dsdr\/","title":{"rendered":"Down Syndrome Regression Disorder vs a Mother\u2019s Love: A Washington Post Mother\u2019s Day Feature"},"content":{"rendered":"<p>For many families, the threat of Down Syndrome Regression Disorder (DSRD) feels harrowing and constant. Gratefully, two scientists are leading the charge to understand and treat this heartbreaking condition, and thanks to one relentless mom\/advocate, they\u2019re working together.<\/p>\n<p>Crnic Institute Executive Director Dr. Joaquin Espinosa and Children\u2019s Hospital Los Angeles Director of Neuroimmunology had no idea they had been developing complementary research on DSRD until mom Linda Roan of Boulder, CO connected the dots for them. The two scientists joined forces to create the first-ever randomized clinical control trial to treat DSRD and secure its funding through NIH\u2019s INCLUDE initiative.<\/p>\n<p>Learn more about this <a href=\"https:\/\/bit.ly\/48S92G0\">groundbreaking clinical trial.<\/a><\/p>\n<iframe src=\"\/\/docs.google.com\/viewer?url=https%3A%2F%2Fwww.globaldownsyndrome.org%2Fwp-content%2Fuploads%2F2024%2F08%2F123397-1.pdf&hl=en_US&embedded=true\" class=\"gde-frame\" style=\"width:100%; height:100%; border: none;\" scrolling=\"no\"><\/iframe>\n<p class=\"gde-text\"><a href=\"https:\/\/www.globaldownsyndrome.org\/wp-content\/uploads\/2024\/08\/123397-1.pdf\" class=\"gde-link\">Download (PDF, 2.21MB)<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>For many families, the threat of Down Syndrome Regression Disorder (DSRD) feels harrowing and constant. Gratefully, two scientists are leading the charge to understand and treat this heartbreaking condition, and thanks to one relentless mom\/advocate, they\u2019re working together. Crnic Institute Executive Director Dr. Joaquin Espinosa and Children\u2019s Hospital Los Angeles Director of Neuroimmunology had no [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"ngg_post_thumbnail":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-157353","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Down Syndrome Regression Disorder vs a Mother\u2019s Love: A Washington Post Mother\u2019s Day Feature | Global Down Syndrome Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.globaldownsyndrome.org\/hi\/washington-post-dsdr\/\" \/>\n<meta property=\"og:locale\" content=\"hi_IN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Down Syndrome Regression Disorder vs a Mother\u2019s Love: A Washington Post Mother\u2019s Day Feature | Global Down Syndrome Foundation\" \/>\n<meta property=\"og:description\" content=\"For many families, the threat of Down Syndrome Regression Disorder (DSRD) feels harrowing and constant. 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Gratefully, two scientists are leading the charge to understand and treat this heartbreaking condition, and thanks to one relentless mom\/advocate, they\u2019re working together. Crnic Institute Executive Director Dr. Joaquin Espinosa and Children\u2019s Hospital Los Angeles\u2026","rel":"","context":"In &quot;Blog&quot;","block_context":{"text":"Blog","link":"https:\/\/www.globaldownsyndrome.org\/hi\/category\/blog\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/www.globaldownsyndrome.org\/wp-content\/uploads\/2024\/05\/2024-Social-Washington-Post-DSRD-Snip-Edited-Landscape-5.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/www.globaldownsyndrome.org\/wp-content\/uploads\/2024\/05\/2024-Social-Washington-Post-DSRD-Snip-Edited-Landscape-5.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/www.globaldownsyndrome.org\/wp-content\/uploads\/2024\/05\/2024-Social-Washington-Post-DSRD-Snip-Edited-Landscape-5.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/www.globaldownsyndrome.org\/wp-content\/uploads\/2024\/05\/2024-Social-Washington-Post-DSRD-Snip-Edited-Landscape-5.jpg?resize=700%2C400&ssl=1 2x"},"classes":[]},{"id":149596,"url":"https:\/\/www.globaldownsyndrome.org\/hi\/new-nih-funded-study-will-investigate-a-debilitating-condition-known-as-down-syndrome-regression-disorder-dsrd\/","url_meta":{"origin":157353,"position":1},"title":"New NIH-funded Study Will Investigate a Debilitating Condition Known as Down Syndrome Regression Disorder (DSRD)","author":"Global Down Syndrome Foundation","date":"\u0938\u093f\u0924\u092e\u094d\u092c\u0930 29, 2022","format":false,"excerpt":"Denver, CO, September 29, 2022 - Scientists and physicians from the Linda Crnic Institute for Down Syndrome at the University of Colorado, Children\u2019s Hospital Colorado (CHCO), and Children\u2019s Hospital Los Angeles (CHLA) have teamed up to identify effective treatments for persons suffering from Down Syndrome Regression Disorder (DSRD). This new\u2026","rel":"","context":"In &quot;Press Releases&quot;","block_context":{"text":"Press Releases","link":"https:\/\/www.globaldownsyndrome.org\/hi\/category\/press-releases\/"},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":161505,"url":"https:\/\/www.globaldownsyndrome.org\/hi\/exclusive-interview-with-dsamt-executive-director-alecia-talbott\/","url_meta":{"origin":157353,"position":2},"title":"Exclusive Interview with Down Syndrome Association of Middle Tennessee Executive Director Alecia Talbott","author":"MaryKate Vandemark","date":"\u091c\u0941\u0932\u093e\u0908 28, 2025","format":false,"excerpt":"For over a dozen years, Alecia Talbott has led the Down Syndrome Association of Middle Tennessee, in Nashville. Recently, GLOBAL\u2019s Vice President \u2013 Strategic Alliances, David Tolleson, and Senior Project Manager, MaryKate Vandemark, met with this dynamic leader to discuss her life, family, appreciation for research, and caring through quilting.\u2026","rel":"","context":"In &quot;Blog&quot;","block_context":{"text":"Blog","link":"https:\/\/www.globaldownsyndrome.org\/hi\/category\/blog\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/www.globaldownsyndrome.org\/wp-content\/uploads\/2025\/07\/DSAMT-Easter-Celebration-2-scaled.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/www.globaldownsyndrome.org\/wp-content\/uploads\/2025\/07\/DSAMT-Easter-Celebration-2-scaled.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/www.globaldownsyndrome.org\/wp-content\/uploads\/2025\/07\/DSAMT-Easter-Celebration-2-scaled.jpg?resize=525%2C300&ssl=1 1.5x, 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