Global in the News
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Global Down Syndrome Foundation responds to Lewandowski’s comments
June 20, 2018 9NEWS spoke morning with Michelle Sie Whitten, the president of the Global Down Syndrome Foundation about Corey Lewandowski’s comments. |
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Behavioral Characteristics of Individuals with Down Syndrome
June 20, 2018 Children and young adults with Down syndrome can demonstrate increased behavior problems compared to their typically developing peers through childhood and adolescence. Though current tools measure behavior problems in persons with intellectual disabilities, they do not capture all the behavioral problems that can occur in individuals with Down syndrome. |
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CONGRESS AND THE NATIONAL INSTITUTES OF HEALTH PRIORITIZE DOWN SYNDROME RESEARCH FUNDING IN 2018 BUDGET
May 24, 2018 After years of advocacy, the Global Down Syndrome Foundation, its research affiliate, the Linda Crnic Institute for Down Syndrome, and its nationwide network of dedicated members and self-advocates are celebrating House Labor and Health and Human Services Appropriations Subcommittee Chairman Tom Cole’s (R-OK) announcement of a historic and significant 65% increase of Down syndrome research funding at the National Institutes of Health (NIH) from $35 million in FY2017 to $58 million in FY2018. |
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CONGRESS AND THE NATIONAL INSTITUTES OF HEALTH PRIORITIZE DOWN SYNDROME RESEARCH FUNDING IN 2018 BUDGET
May 24, 2018 After years of advocacy, the Global Down Syndrome Foundation, its research affiliate, the Linda Crnic Institute for Down Syndrome, and its nationwide network of dedicated members and self-advocates are celebrating House Labor and Health and Human Services Appropriations Subcommittee Chairman Tom Cole’s (R-OK) announcement of a historic and significant 65% increase of Down syndrome research funding at the National Institutes of Health (NIH) from $35 million in FY2017 to $58 million in FY2018. |
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Meet the Denver woman — and her daughter — responsible for massive boost in Down syndrome research funding
June 13, 2018 Michelle Sie Whitten helped get 65 percent boost in federal spending for Down syndrome research |
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‘I Missed Coaching:’ McCaffrey Looks Forward To Leading Valor Christian
June 12, 2018 In addition to his new duties at Valor, McCaffrey will be busy in the community later this month. He will host the 9th annual Dare to Play Football Camp for individuals with Down syndrome on June 23 and will host the 17th annual Ed McCaffrey football camp from June 25th-28th. |
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Global Down Syndrome Foundation’s ‘Dare to Cheer’ Camp boosts kids’ confidence
June 1, 2018 The week-long camp has served kids with Down syndrome since 2010 by giving them the opportunity to learn dance moves, participate in drills and learn cheerleading routines. |
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Good news for Colorado – epicenter of Down syndrome research
June 1, 2018 For nearly 20 years, Down syndrome has been one of the least funded genetic conditions by our National Institutes of Health (NIH) despite being the leading cause of developmental delay in the U.S. and the world. |
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Global Down Syndrome’s AcceptAbility Gala
June 1, 2018 Severna Park’s Rythym Express dance team—which has five members with Down syndrome—performed at the Global Down Syndrome’s AcceptAbility Gala. |
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Crnic Institute Makes “A Game-Changing Discovery”
May 2018 Researchers from the University of Colorado School of Medicine are conducting breakthrough research indicating that Down syndrome could be considered a disorder of the immune system. |
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Good news for Colorado — epicenter of Down syndrome research
May 31, 2018 For nearly 20 years, Down syndrome has been one of the least funded genetic conditions by our National Institutes of Health (NIH) despite being the leading cause of developmental delay in the U.S. and the world. |
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Global Ambassador from Fairfax Highlights AcceptAbility Gala
May 31, 2018 Fairfax’s Frank Stephens, an advocate and author with Down syndrome who received a standing ovation this year when he testified in front of Congress about the need for more NIH research funding, spoke at the Global Down Syndrome Foundation’s AcceptAbility Gala in D.C. on Thursday, May 17. |
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2018 AcceptAbility Gala with Cassadee Pope and Frank Stephens
May 21, 2018 Singer Cassadee Pope performed at Global Down Syndrome Foundation’s (Global) AcceptAbility Gala at the Ritz Carlton, Washington, DC. During the event, Global’s 2018 Ambassador, author, actor and self-advocate Frank Stephens helped present the Quincy Jones Exceptional Advocacy Awards to Congressman Tom Cole of Oklahoma and Congresswoman Rosa DeLauro of Connecticut. |
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AcceptAbility Gala raises funds for Down syndrome research
May 18, 2018 Last night, the Global Down Syndrome Foundation hosted its inaugural AcceptAbility Gala at the Ritz Carlton to raise funds for one of the most common, yet under-funded chromosomal conditions – an estimated 400,000 Americans are affected by Down syndrome each year. |
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Out and about…
May 18, 2018 The Global Down Syndrome Foundation held its annual AcceptAbility Gala at the Ritz Carlton to present the Quincy Jones Exceptional Advocacy Awards to Reps. Tom Cole (R-Okla.) and Rosa DeLauro (D-Conn.) |
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The fight to fund Down syndrome research
May 16, 2018 On Thursday, the Global Down Syndrome Foundation will host its Acceptability Gala to raise much-needed funds, and president and CEO Michelle See Whitten joined gala Ambassador Frank Stephens to discuss their mission. |
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LeAnn Rimes Supports Global’s AcceptAbility Gala with Special Performance; DeOndra Dixon, Frank Stephens & Local Dancers with Down Syndrome Featured
May 14, 2018 Reps. Tom Cole (R-OK) and Rosa DeLauro (D-CT) to be Honored with Quincy Jones Exceptional Advocacy Award |
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Models Auditioning for BE BEAUTIFUL BE YOURSELF Fashion Show
May 11, 2018 Celebrities and advocates will be rocking the runway October 20th for the 10th Annual Be Beautiful Be Yourself Fashion Show, the single largest fundraiser for Down Syndrome research in the country. This year’s ambassador and two-time model, Sam Levin, tells us about the May 24th Model Auditions! |
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Jamie Foxx to receive honorary doctorate degree from Jarvis Christian College
April 25, 2018 Academy-Award winning actor Jamie Foxx will receive an honorary doctorate degree from Jarvis Christian College this spring. |
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“Close to Heart” | Global Down Syndrome Foundation New Headquarters
April 16, 2018 Global Down Syndrome Foundation builds a legacy that only begins with construction. |
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New law updates language related to dementia
April 13, 2018 Potter says first-of-its-kind measure recognizes the ‘expansion of our mission’ |
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Colorado takes the R-word out of the books and makes it history
April 3, 2018 It was fitting that Gov. John Hickenlooper signed the bill into law during a celebration at the Capitol on World Down Syndrome Day, with new friends from the Denver-based Global Down Syndrome Foundation all around. |
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Colorado takes the R-word out of the books and makes it history
April 3, 2018 We don’t use that word in Colorado anymore. Not in our laws and not in the government offices that serve all the people. No one deserves to be put down by public servants. No one. |
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Colorado gets rid of the “R”
March 28, 2018 March 21 is known for being the first full day of spring and numerically it’s 3-21 is used to celebrate World Down Syndrome Day, symbolic of the three sets of the 21st chromosome that people with Down Syndrome have. The 2018 World Down Syndrome Day in Colorado was celebrated with the removal of the “r” word from Colorado legislation. |
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The Retromer Complex and Sorting Nexins in Neurodegenerative Diseases
March 26, 2018 In this review, we summarized the functions of the retromer complex and SNXs in five neurodegenerative disorders, including Alzheimer’s Disease, Parkinson’s Disease, and Down syndrome among others. |
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Omnibus Spending Bill Includes Significant Increase for Down Syndrome Research at the National Institutes of Health (NIH)
March 22, 2018 The Global Down Syndrome Foundation applauds Congress for including funding for a new trans-National Institutes of Health (NIH) initiative to study Down syndrome in the final Fiscal Year 2018 Omnibus Appropriations legislation that is expected to pass this week. |
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Omnibus Spending Bill Includes Significant Increase for Down Syndrome Research at the National Institutes of Health (NIH)
March 22, 2018 The Global Down Syndrome Foundation applauds Congress for including funding for a new trans-National Institutes of Health (NIH) initiative to study Down syndrome in the final Fiscal Year 2018 Omnibus Appropriations legislation that is expected to pass this week. |
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On the Eve of Omnibus Spending Negotiations Republicans and Democrats Agree to Support Down Syndrome Research
March 21, 2018 First Lady Valerie Sununu (R-New Hampshire) and First Lady Robin Hickenlooper (D-Colorado) joined forces to celebrate World Down Syndrome Day and to support Down syndrome research.The two first ladies have organized the Light the Way Campaign to shine a light on the groundbreaking research advances being made to empower individuals with Down syndrome. |
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On the Eve of Omnibus Spending Negotiations Republicans and Democrats Agree to Support Down Syndrome Research
March 21, 2018 With partisan politics threatening to lead to a government shutdown, First Lady Valerie Sununu (R-New Hampshire) and First Lady Robin Hickenlooper (D-Colorado) have joined forces to celebrate World Down Syndrome Day and to support Down syndrome research. |
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Derogatory ‘R’ word removed from Colorado statutes
March 21, 2018 A derogatory phrase was removed from Colorado state statutes on Wednesday. The words “mental retardation” will no longer appear in any Colorado laws after Gov. John Hickenlooper signed the bill into law. Nineteen Colorado state statutes currently include the “R” word. Mac Macsovits knows the impact of the word. His son, Guion, has Down syndrome. |
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Interview With Actor John C. McGinley On Raising A Son With Down Syndrome
March 21, 2018 In August of 1997, actor John C. McGinley and his then-wife Lauren Lambert had a son, Max. The couple had eschewed an amniocentesis — a procedure in which doctors use a needle to draw fluid from the amniotic sac in order to test for various conditions a child may have — due to the risk of miscarriage. So it was only when Max was born that McGinley and Lambert discovered that he had Down syndrome. |
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Celebrating World Down Syndrome Day
March 21, 2018 President & CEO Michelle Sie Whitten and Ambassador DeOndra Dixon discuss World Down Syndrome Day. |
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‘R’ Word Banned From State Statutes On World Down Syndrome Day
March 21, 2018 On Wednesday, Gov. John Hickenlooper signed an act that will strip the word demeaning people with Down syndrome and other mental disabilities and conditions, removing its appearance in hundreds of statutes. |
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World Down Syndrome Day (Skip to 2:15)
March 21, 2018 Dr. Huntington Potter and Beth Burczyk discuss World Down Syndrome Day (WDSD), 21 March, a global awareness day which has been officially observed by the United Nations since 2012. |
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Día Mundial del Síndrome de Down
March 21, 2018 Esta tarde durante el segmento “Desde el Capitolio,” Carlos Rausseo se sentó a platicar con el Doctor Joaquín Espinosa, director ejecutivo de CRNIC, Institute for Down Syndrome. Hablaron sobre el DíaI Mundial del Síndrome de Down. |
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Why the Capitol Will Be Lit in Blue and Yellow This Wednesday
March 20, 2018 Governors and First Spouses around the country will participate in the “Light the Way Campaign,” celebrating the empowerment of people with Down syndrome. |
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Global president & CEO Michelle Sie Whitten and Global ambassador Sophia Whitten talked about the significance of World Down Syndrome Day
March 18, 2018 World Down Syndrome Day is March 21 and the celebration at Denver’s Capitol building is gearing up to be the best one to date! |
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VeteransAgainstAlzheimer’s Applauds Congress For Introducing Bill Promising To Help Veterans With Alzheimer’s
March 18, 2018 The Medical Improvement of Neurodegenerative Disease (MIND) Act of 2018 Directs the Department of Veterans Affairs to Establish New Alzheimer’s Disease Research, Education, and Clinical Centers |
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Sessions Cosponsors The MIND Act Of 2018 To Direct The VA To Establish Centers For Alzheimer’s Research
March 7, 2018 Today, U.S. Congressman Pete Sessions (R-TX) joined Congressman Mike Coffman (R-CO) and Congresswoman Cathy McMorris Rodgers (R-WA) to introduce H.R. 5191, the ‘Medical Improvement of Neurodegenerative Diseases (MIND) Act of 2018′. H.R. 5191 directs the Department of Veterans’ Affairs (VA) to establish Alzheimer’s disease research, education, and clinical centers and requires a scientific specialization in research likely to be transformative, including the connection between Down syndrome and Alzheimer’s Disease. |
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Denver’s Global Down Syndrome Foundation pulled into abortion debate
March 6, 2018 As the criminalization of aborting fetuses likely to be born with Down syndrome gains momentum in Utah and other states, it was just a matter of time until the Global Down Syndrome Foundation was called in. |
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Babies with Down syndrome are put on center stage in the U.S. abortion fight
March 5, 2018 Highly controversial legislation has put Down syndrome front and center in the abortion debate when the condition is becoming more widely understood and accepted in the United States. |
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Babies with Down syndrome are put on center stage in the U.S. abortion fight
March 6, 2018 Highly controversial legislation has put Down syndrome front and center in the abortion debate when the condition is becoming more widely understood and accepted in the United States. |
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DSAIA Leadership Conference
February 20, 2018 The Down Syndrome Affiliates in Action Conference is focused on improving the way Down syndrome organizations deliver programs/services and operate as a nonprofit. The conference also helps deepen the connection the many DS leaders have within the community while allowing them to learn and network with the best in our community. |
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Global Down Syndrome Foundation announces roster of authors committed to establishing Medical Care Guidelines for Adults with Down syndrome
February 8, 2018 The Global Down Syndrome Foundation announced today the full roster of authors committed to establishing new medical care guidelines for adults with Down syndrome (“Guidelines”). The Guidelines will draw and build upon previous, important work in the field. |
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Global Down Syndrome Foundation announces roster of authors committed to establishing Medical Care Guidelines for Adults with Down syndrome
February 8, 2018 The Global Down Syndrome Foundation announced today the full roster of authors committed to establishing new medical care guidelines for adults with Down syndrome (“Guidelines”). The Guidelines will draw and build upon previous, important work in the field. |
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Gerber’s new ‘spokesbaby’ has Denver Down syndrome charity buzzing
February 7, 2018 Lucas Warren became the first Gerber Baby with Down Syndrome. And at a Denver charity, it couldn’t be more ecstatic. |
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In a first, Gerber names boy with Down syndrome ‘Spokesbaby’
February 7, 2018 An 18-month-old boy with Down syndrome has been named by baby food maker Gerber as its “Spokesbaby” for 2018, the company said on Wednesday, an action hailed by advocates for people with the genetic condition. |
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Global Down Syndrome’s new headquarters to offer education and life skills
February 7, 2018 Global Down Syndrome Foundation held a sneak preview of its soon-to-open new headquarters in Cherry Creek North on Jan. 30. The new center will provide computer and cooking classes, along with life skills for both children and adults with Down Syndrome. The facility will also feature a library and a fitness center. |
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Researchers Believe Down Syndrome Is an Immune System Disorder, Not a Brain Disorder
February 6, 2018 A recent study published in Scientific Reports, and publicized by the Global Down Syndrome Foundation earlier this year, is changing the perception of Down syndrome as a brain disorder and categorizing it as immune system dysfunction instead. |
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Tour of new Global Down Syndrome Foundation headquarters
January 30, 2018 The new headquarters should be open in June! |
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New HQ For Global Down Syndrome Foundation Developing
January 30, 2018 The new headquarters for the Global Down Syndrome Foundation is under construction in Cherry Creek. |
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The Global Down Syndrome Foundation is building a new headquarters in Cherry Creek
January 30, 2018 The Global Down Syndrome Foundation has a new headquarters under construction in Cherry Creek. Today, self-advocates of the Down syndrome community toured the building’s early progress. In addition to offices and conference rooms, the four-story space will feature an education center, a library and a gym. |
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Comedian’s Netflix Special Is Under Fire For Insulting People With Down Syndrome
January 30, 2018 Comedians often talk about the fact that they push limits and hover over the line of “funny” and “gone too far” with their jokes, but for one comedian, the internet is sure of the fact that he went way too far when he insulted the Down syndrome community. |
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Indiana mom’s campaign to remove Netflix routine gains traction, backing of advocacy groups
January 24, 2018 Several Down Syndrome advocacy groups have rallied to the cause started by an Indiana mother seeking to have a comedy special removed from the streaming service Netflix. |
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Netflix Special Sparks Outrage, Bullying in Down Syndrome Community
January 19, 2018 A comedian has sparked outrage this week for his use of the R-word in his second Netflix special and his suggestion it be replaced with the term, “21st chromosome,” directly mocking people with Down syndrome. |
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‘My Son Has Down Syndrome And He Is My Greatest Teacher’
January 18, 2018 Amanda Booth had been a mother for four months when she and her husband Mike discovered that their newborn son, Micah, had Down Syndrome. |
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Insta Inspo: Amanda at @lifewithmicah
January 18, 2018 After sharing that, at four months, their son had been diagnosed with Down’s syndrome, the new normal for model Amanda and her husband, Mike, became about spreading awareness and acceptance of the condition. |
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The art of renovation
January 17, 2018 The new year begins with renewal and new vision for the Denver Art Museum. The North Building’s Jan. 10 ceremonial groundbreaking welcomed the construction of Italian architect Gio Ponti’s only work in the United States. The North Building will be renamed for Lanny and Sharon Martin and the new Welcome Center will bear the names of John and Anna Sie. |
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“Home & Family” interviews Ambassador DeOndra Dixon & Global’s Michelle Sie Whitten
January 12, 2018 An exclusive interview with the unstoppable DeOndra Dixon, & Global President and CEO Michelle Sie Whitten discussing Global’s impact and the Be Beautiful Be Yourself Fashion Show. |
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Global responds to shocking report – shares translated prenatal testing information with Iceland
January 11, 2018 The Global Down Syndrome Foundation announced today that it has translated important prenatal testing information into Icelandic and provided the resource to the Icelandic Down Syndrome Association. The translation is a first step to support the association’s efforts in providing accurate information about Down syndrome to pregnant women and families in Iceland. |
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Should Congress provide more funding for Down syndrome research? (2 letters)
January 4, 2018 There remains a significant and persistent disparity in federal funding for Down syndrome research. Fortunately, at the recent hearing on Down syndrome referenced in the editorial, there was overwhelming bipartisan support for increased federal funding. |
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New Research Will Help Her Daughter With Down Syndrome, This Colorado Mom Says
January 3, 2018 Michelle Sie Whitten, who heads the Denver-based Global Down Syndrome Foundation, has big hopes for new research at the University of Colorado, where scientists say they have upended the conventional wisdom that Down syndrome is a brain disorder. Instead, they classify it as a malfunction of the immune system. |
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CU Uncovers a “Game-Changing Discovery” in Down Syndrome
January 3, 2018 Scientists working at the Linda Crnic Institute for Down Syndrome, based at the University of Colorado Anschutz Medical Campus, have discovered how that extra chromosome may be affecting those with Down syndrome. |
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Editorial: Congress fails those born with Down syndrome
January 3, 2018 According to analysis by the Denver-based Global Down Syndrome Foundation, the syndrome is one of the least funded genetic conditions supported by the National Institutes of Health, yet it is the leading cause of developmental disability. |
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Congress should give it up for Down syndrome research
January 2, 2018 On levels both moral and practical, Congress has for years been failing those born with Down syndrome and their families. We hope the new year brings about a stark reversal in the second-class treatment this unique population is receiving. |