GLOBAL in the News
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Medical Care of Adults With Down Syndrome: A Clinical Guideline October 20, 2020 The first-in-kind Global Guideline was peer reviewed, edited, and published in the Special Communication section of the print and online October 2020 issue of JAMA, the Journal of the American Medical Association.
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Advocates Welcome Down Syndrome Guidance for Adults October 26, 2020 “These guidelines totally changed things for us and for our families,” she says. “We’ll all be more informed about issues to watch for so we can take action much sooner to ensure better health outcomes.”
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People with Down syndrome have 10 times the risk of death from Covid-19 as those without, study finds October 23, 2020 They also found a fourfold increased risk of coronavirus-related hospitalizations for those with Down syndrome, “a group that is not currently strategically protected,” according to the report in the journal Annals of Internal Medicine.
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How to Talk About Inclusion and Ability October 23, 2020 Conversations about inclusion often talk about race and diversity, but one topic that people often leave off the table is ability. In honor of Down Syndrome Awareness Month, Michelle Sie Whitten, the President and CEO of the Global Down Syndrome Foundation, and her daughter, Sophia Whitten, who has Down Syndrome, joined Parenting Impossible to discuss the meaning of true inclusion for people with Down Syndrome and other disabilities in society, research, education, and more.
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Global Down Syndrome Foundation Announces the 1st Evidence-Based Medical Care Guidelines for Adults With Down Syndrome October 20, 2020 The Global Guideline is Published in the Print & Online Versions of JAMA, Ensuring Clinicians Across the U.S. Have Access
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Medical Care For Adults With Down Syndrome: Guidelines By Global Down Syndrome Foundation October 23, 2020 A working group for the Global Down Syndrome Foundation has issued the first evidence-based clinical practice guidelines on the medical care of adults with Down syndrome.The guidelines have been published in the Journal of American Medical Association.
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Medical Care For Adults With Down Syndrome: Guidelines By Global Down Syndrome Foundation October 23, 2020 A working group for the Global Down Syndrome Foundation has issued the first evidence-based clinical practice guidelines on the medical care of adults with Down syndrome.The guidelines have been published in the Journal of American Medical Association.
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The first-in-kind Global Guideline is for clinicians and addresses nine medical areas October 20, 2020 After four years of coordination, compilation, and rigorous assessment and writing, the Global Down Syndrome Foundation Medical Care Guidelines for Adults with Down Syndrome© (Global Guideline) is complete and available at no cost.
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Best Life: Fashion show helps fund Down syndrome research October 6, 2020 October is Down Syndrome Awareness Month. Although one in every 700 babies is born with it, Down syndrome is the least funded major genetic condition by the National Institutes of Health despite being the most frequent chromosomal disorder. One woman is bringing together thousands of people to change that. They’re increasing resources, funding research and working tirelessly to change how people perceive kids with Down syndrome.
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NIH and Fast Grants Award $1M to the Crnic Institute to Study COVID-19 in People With Down Syndrome September 25, 2020 Studying both people and mouse models, the aim is to develop tailored COVID-19 prevention, diagnosis, and treatment for individuals with Down syndrome.
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Understanding the Impact of Immune Dysregulation in COVID-19 Patients with Down Syndrome May Lead to Tailored Prevention, Diagnosis and Treatment September 25, 2020 Researchers at the Linda Crnic Institute for Down Syndrome at the University of Colorado Anschutz Medical Campus (Crnic Institute) have been awarded three grants totaling $1 million, two from the National Institutes of Health (NIH) and one from Fast Grants, to understand how the hyper inflammatory state of the immune system in people with Down syndrome may result in more severe complications upon SARS-CoV-2 infection.
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Africa54 on the VOA September 29, 2020 Down syndrome, also known as Trisomy 21, is a genetic disorder caused by the presence of all or part of a third copy of chromosome 21. It is usually associated with physical growth delays, mild to moderate intellectual disability, and characteristic facial features. Africa 54 health correspondent Linord Moudou speaks with Michelle Sie Whitten, co-founder and executive director of the Global Down Syndrome Foundation, who elaborates on what down syndrome is and what can be done to improve their quality of life.
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Living With Disabilities September 28, 2020 This week on Healthy Living, we focus on disability, starting with the story of a nine-year-old boy from Malawi with a physical disability who defies the odds. We hear from Michelle Sie Whitten, President of the Global Down Syndrome Foundation, and a disabled person in Tanzania talks to us on the challenges he faces. Finally, how clear face masks are being made for those with hearing disabilities.
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Michelle Sie Whitten on Creating the Global DS Foundation, Media Representation, + More September 8, 2020 After giving birth to her daughter with Down Syndrome, Michelle Sie Whitten noticed a gap in medical research and quality healthcare for people with DS. And from that moment on, she sought to fill that gap by co-founding the Global Down Syndrome Foundation — the leading organization dedicated to research, medical care, education, and advocacy for people rockin’ an extra chromosome!
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Brittany Bowlen with Big Al and JoJo September 8, 2020 Broncos VP of Strategic Initiatives Brittany Bowlen joined Big Al and JoJo to discuss 5700 being allowed for the Broncos Home Game against Tampa Bay.
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Jamie Foxx: Says His Sister With Down’s Syndrome Is The Real Star! September 4, 2020 Actor, musician, funnyman…there are only a few things that superstar Jamie Foxx can’t do. But if you ask him who’s the real star of the family, he’ll quickly point to his younger sister, DeOndra Dixon.
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YOUR HEALTH: Helping make life easier for patients with Down syndrome August 31, 2020 Painful skin conditions, loss of hair, discolored skin are challenges for Down Syndrome patients. Researchers are going beyond skin deep to help relieve some of these painful conditions people with Down Syndrome may experience.
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Lo que no sabías de Amelia, la hermana de Derek Sheperd en Grey’s Anatomy (Caterina Scorsone en la vida real) August 30, 2020 Cada personaje en Grey’s Anatomy tiene su impronta personal, sin embargo Amelia Sheperd, la hermana de Derek, es una de las más intrigantes. Así es Caterina Scorsone, la actriz que le pone su impronta.
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GLOBAL’s Virtual Be Beautiful Be Yourself Fashion Show attracts an impressive roster of celebrities with a NEW DATE – Saturday, November 14, 2020 August 26, 2020 “Most people with Down syndrome are high risk for COVID-19, so we have put a lot of effort into education and protection over the last five months,” says GLOBAL President and CEO, Michelle Sie Whitten. “The pandemic has presented GLOBAL with many challenges this year, and we’ve met each one with strength, clarity of purpose, and compassion. We hope that people will support our first virtual event and that they know we will work hard to truly save and transform lives.”
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Grey’s Anatomy Star Caterina Scorsone And Spanish Model Marián Ávila To Receive GLOBAL’s Prestigious “Quincy Jones Awards” August 26, 2020 Today, the Global Down Syndrome Foundation (GLOBAL) announced two powerful women who will receive this year’s Quincy Jones Exceptional Advocacy Awards: Grey’s Anatomy star Caterina Scorsone and Spanish model Marián Ávila. Celebrities are showing up in full force to support GLOBAL and honor the accomplished awardees. |
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Health Beat: Life-changer for Down syndrome: Going beyond skin deep August 18th, 2020 Joaquin Espinosa’s team at the Linda Crnic Institute for Down Syndrome has found which part of the immune system is hyperactive and responsible for several painful skin conditions associated with Down syndrome.
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Genes relacionados con síndrome de Down protegerían contra tumores August 8, 2020 ¿Existe relación entre síndrome de Down y cáncer? De acuerdo con un estudio publicado en el journal Scientific Reports, un conjunto de genes con expresión disminuida en personas con síndrome de Down puede proteger a los individuos con este padecimiento de desarrollar tumores.
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Best Life: Life changer for those with Down syndrome August 6, 2020 Each year 6,000 babies are born with Down syndrome in the United States. These babies have an extra chromosome that can cause both mental and physical challenges, as well as autoimmune disorders that cause painful skin lesions, patchy bald spots and loss of skin color. Now, researchers are going beyond skin deep to help relieve some of these painful conditions.
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23-Year-Old With COVID-19 On Ventilator For 41 Days Discharged From Texas Hospital July 14, 2020 A 23-year-old man with Down syndrome who overcame the coronavirus after 56 days, 41 of which were spent on a ventilator, is back home.
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College Students Not Limited by Down Syndrome July 1, 2020 According to a 2011 report from the National Center for Education Statistics, from 2008-2009 (the last year data is available), college students with disabilities accounted for approximately 11.1 percent of all undergraduates. Of those students, about three percent, or 67,266, had an intellectual disability.
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Despite Coronavirus, Celebrities Sign Up In Full Force For GLOBAL’s Be Beautiful Be Yourself Fashion Show June 30, 2020 Today, the Global Down Syndrome Foundation (GLOBAL) announced an impressive roster of dedicated celebrity supporters for its marquee Be Beautiful Be Yourself Fashion Show scheduled for Saturday, October 3. The annual event is the largest fundraiser for Down syndrome in the world, raising over $20 million to date for life-saving and transformative research and medical care..
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Despite Coronavirus, Celebrities Sign Up In Full Force For GLOBAL’s Be Beautiful Be Yourself Fashion Show June 30, 2020 Today, the Global Down Syndrome Foundation (GLOBAL) announced an impressive roster of dedicated celebrity supporters for its marquee Be Beautiful Be Yourself Fashion Show scheduled for Saturday, October 3. The annual event is the largest fundraiser for Down syndrome in the world, raising over $20 million to date for life-saving and transformative research and medical care..
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Despite Coronavirus, Celebrities Sign Up In Full Force For GLOBAL’s Be Beautiful Be Yourself Fashion Show June 30, 2020 Today, the Global Down Syndrome Foundation (GLOBAL) announced an impressive roster of dedicated celebrity supporters for its marquee Be Beautiful Be Yourself Fashion Show scheduled for Saturday, October 3. The annual event is the largest fundraiser for Down syndrome in the world, raising over $20 million to date for life-saving and transformative research and medical care..
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ATUALIDADE: “EU TENHO SÍNDROME DE DOWN E NÃO DEVERIA PRECISAR JUSTIFICAR A MINHA EXISTÊNCIA” June 23, 2020 Em avassalador discurso de 7 minutos, talentoso rapaz com a síndrome dá recado aos “progressistas” que querem eliminá-la matando gente
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Christian & Ed McCaffrey Surprise Military Family in Grand Fashion June 20, 2020 In the spirit of Father’s Day, Carolina Panthers All-Pro running back Christian McCaffrey and his dad Ed, a former NFL wideout and 3x-Super Bowl champ, teamed up with USAA and the USO of North Carolina.
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Further understanding the connection between Alzheimer’s disease and Down syndrome June 16, 2020 Improved medical care of individuals with Down syndrome (DS) has led to an increase in life expectancy to over the age of 60 years. In conjunction, there has been an increase in age‐related co‐occurring conditions including Alzheimer’s disease (AD).
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Against odds, Kenosha woman is ‘star of the show’ June 15, 2020 Diane Guzdek has outlived expectations by five decades. When she was born with Down syndrome in 1960, her parents were told she might not live past age 10. On July 28, she marks her 60th birthday.
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Whitefish woman with Down syndrome models for awareness June 4, 2020 Whitefish resident Cedar Vance has an electrifying, bubbly personality that can light up a stage — and often she does just that.
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“In viaggio verso un sogno”, on the road con Zack e la sindrome di Down May 29, 2020 Arriva in Italia la pellicola, titolo originale “The Peanut Butter Falcon”, che dal 1° giugno è on demand sulle principali piattaforme digitali. Diretto da Tyler Nilson e Michael Shwart ha in Zack Gottsagen, attore con sindrome di Down, un indiscusso protagonista. Il film rivelazione negli Usa arriva da noi grazie a Officine Ubu e la collaborazione dell’Aipd e di CoorDown
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Hyper Immune System May Be Key to Down Syndrome Symptoms May 19, 2020 The genetic mutation that causes Down syndrome (Trisomy 21) increases the risk of autoimmune disease, pneumonia, and cognitive challenges. But it protects from some cancers and often leads to people valued for kindness and joy. |
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Coronavirus discoveries can come along faster with adaptive clinical trials May 18, 2020 As the medical profession scrambles to treat patients sick and dying from COVID-19, improvisation has become one of its most improbable — and important — tools. Could the same strategy be applied to coronavirus research, to suss out the best treatments for infected patients at a quicker pace?
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How hospitals make tough ethical calls about which lives to save during a pandemic May 13, 2020 Frank Stephens has traveled around the world, held multiple jobs and even received a standing ovation from US Congressional representatives after testifying on Capitol Hill.
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Disability advocates file federal complaint against some states April 18, 2020 Disability advocates file a federal complaint against some states over rationing treatment, Alicia Acuna reports. |
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Meet Michelle Sie Whitten of Global Down Syndrome Foundation May 12, 2020 Today we’d like to introduce you to Michelle Sie Whitten.
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A united front for high-risk individuals May 10, 2020 Coronavirus has a special impact on individuals with Down syndrome, so organizations dedicating to improving the lives of those with the genetic condition are working to help them decide the best way to operate right now.
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HUMAN INTEREST ‘Dear Mom’: Powerful Hallmark Mother’s Day ad features girl with Down syndrome May 10, 2020 A new Mother’s Day advertisement from Hallmark focuses on a mother raising a daughter who has Down syndrome — and their normal life.
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Global Down Syndrome Foundation, National Down Syndrome Congress, & International Mosaic Down Syndrome Association Expand Collaborations May 7, 2020 Today, Global Down Syndrome Foundation (GLOBAL), the National Down Syndrome Congress (NDSC), and the International Mosaic Down Syndrome Association (IMDSA) have announced that they will expand existing collaborations aimed at consolidating and creating Down syndrome resources across the lifespan for families.
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Global Down Syndrome Foundation, National Down Syndrome Congress, & International Mosaic Down Syndrome Association Expand Collaborations May 7, 2020 Today, Global Down Syndrome Foundation (GLOBAL), the National Down Syndrome Congress (NDSC), and the International Mosaic Down Syndrome Association (IMDSA) have announced that they will expand existing collaborations aimed at consolidating and creating Down syndrome resources across the lifespan for families.
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Global Down Syndrome Foundation, National Down Syndrome Congress, & International Mosaic Down Syndrome Association Expand Collaborations May 7, 2020 Today, Global Down Syndrome Foundation (GLOBAL), the National Down Syndrome Congress (NDSC), and the International Mosaic Down Syndrome Association (IMDSA) have announced that they will expand existing collaborations aimed at consolidating and creating Down syndrome resources across the lifespan for families.
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Why People With Down Syndrome May Be At Risk for Severe COVID-19 May 6, 2020 People with Down syndrome may be more susceptible to developing some of the most serious consequence of COVID-19, including the so-called cytokine storms that can lead to acute respiratory distress syndrome, cardiac damage, and multiorgan failure, according to a monograph published in Cell Reports Medicine, a new journal published by publisher that publishes Cell. |
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Síndrome de Down e COVID-19 – Perguntas e respostas April 27, 2020 Veja algumas perguntas e respostas do Grupo de Interesse Médico sobre Síndrome de Down dos EUA a dúvidas frequentes de pessoas com síndrome de Down, suas mães pais e quem presta apoio. |
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A caretaker’s dilemma April 25, 2020 Cousin vowed to care for man with Down syndrome, but what happens as both get old? |
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Global Down Syndrome Fashion Show Virtual Auditions Registration Open Now! April 23, 2020 The Be Yourself Fashion Show on May 27 from 5:00 – 8:00 pm is the world’s largest fundraiser benefitting people with Down syndrome by supporting life-changing and life-saving research and medical care. |
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People with Down Syndrome at higher risk from COVID-19, leading to more disruption to life April 22, 2020 According to the Global Down Syndrome Foundation, many people with Down Syndrome are considered high risk for complications related to COVID-19. |
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Crise sanitaire : trisomie 21 et Covid-19 April 21, 2020 Un document de la Gobal Down Syndrome Foundation répond aux questions spécifiques concernant les personnes avec trisomie et le COVID-19. Certaines doivent être considérées comme vulnérables. |
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Concerns growing over medical care discrimination April 18, 2020 Concerns growing over medical care discrimination amid the COVID-19 pandemic, Alicia Acuna reports. |
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Questions answered about COVID-19 and individuals with Down syndrome April 14, 2020 Many caregivers of people with Down syndrome have plenty of questions about COVID-19 and how it will affect those individuals. |
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In The Face Of Ethical Aberrations In Several States Colorado Stands Strong Against Discrimination In COVID-19 Care April 9, 2020 The Governor’s Expert Emergency Epidemic Response Committee developed Crisis Standards of Care (CSC) after collaboration with experts and communities. Governor Polis has authorized the Colorado Department of Public Health and Environment to enact the standards when or if necessary. |
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In The Face Of Ethical Aberrations In Several States Colorado Stands Strong Against Discrimination In COVID-19 Care April 9, 2020 The Governor’s Expert Emergency Epidemic Response Committee developed Crisis Standards of Care (CSC) after collaboration with experts and communities. Governor Polis has authorized the Colorado Department of Public Health and Environment to enact the standards when or if necessary. |
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National Down Syndrome Organizations Combine Efforts To Publish Q&A On COVID-19 And Down Syndrome March 27, 2020Today, an important Q&A on COVID-19 and Down syndrome was published by a consortium of national Down syndrome organizations: the Down Syndrome Medical Interest Group-USA (DSMIG-USA), Global Down Syndrome Foundation (Global), LuMind IDSC Foundation (LuMind IDSC), National Down Syndrome Congress (NDSC), National Down Syndrome Society (NDSS), and National Task Group on Intellectual Disabilities and Dementia Practices (NTG). |
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3 Advocates to Celebrate on World Down Syndrome Day
March 21, 2020 Karen Gaffney has achieved a huge number of firsts through her passion for swimming and her advocacy for people with Down Syndrome. |
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Shia LaBeouf is not an ‘American Honey’ (and he’s okay with it)
March 21, 2020 On March 17th, 2020 Netflix added to its library an interesting: American Honey, and independent movie produced by A24. |
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New Down Syndrome Study Goes Beyond Skin Deep
March 19, 2020 Researchers hope drug trial turns corner in genetic disease |
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How My Pregnancy Exposed The Silent Genocide Of Babies With Down Syndrome
March 18, 2020 It has never been a better time to be a person with Down syndrome, unless he is still in the womb. |
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Michelle Sie Whitten Speaks Out on COVID-19
March 13, 2020 World Down Syndrome Day is Saturday March 21st. For more information head to GlobalDownSyndrome.org You can also text “Global” to 40469 to sign a petition that will help ensure a bright and healthy future for people with Down Syndrome. |
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Update on the Coronavirus Disease (COVID-19) from the Global Down Syndrome Foundation
March 12, 2020 Some things to consider if you have Down syndrome or a loved one with Down syndrome |
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Update on the Coronavirus Disease (COVID-19) from the Global Down Syndrome Foundation
March 12, 2020 Global and our affiliates have received numerous inquiries about whether or not people with Down syndrome are more at risk than typical people when it comes to exposure to the coronavirus disease (COVID-19). |
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Woman With Down Syndrome Surpasses Expectations and Celebrates 72nd Birthday
March 11, 2020 For any family, celebrating an elderly loved one’s birthday is a time to cherish a long life lived and wish for health and many more years to come. That celebration was made all the more special for Gerry Hall, a Kentucky woman who has Down syndrome. |
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Their Voice: Down syndrome community achieves great things
March 8, 2020 I didn’t see the movie “The Peanut Butter Falcon” until two weeks ago. The movie starred Zack Gottsagen, a 34-year-old actor who has Down syndrome. I had heard of it before and remember also hearing that Zack was the first person with Down syndrome to present at the Academy Awards this year. |
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Remarkable Women Finalist: Michelle Sie Whitten
March 6, 2020 Michelle Sie Whitten is a finalist for our Remarkable Women Award. Michelle is the Co-Founder, President and CEO of the Global Down Syndrome Foundation. Global is dedicated to significantly improving the lives of people with Down Syndrome through research, medical care, education and advocacy. |
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Michelle Sie Whitten & Global Down Syndrome Foundation
March 3, 2020 Michelle Sie Whitten runs an international non-profit organization and she does it with an incredible amount of passion, knowledge, and skill. |
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Global Down Syndrome Foundation Announces Eight Grant Winners At The National DS Affiliates In Action Conference
February 28, 2020 Today, Global Down Syndrome Foundation (Global) announced eight new Global Self-Advocate Employment Initiative Grant winners at the national Down Syndrome Affiliates in Action (DSAIA) Annual Leadership Conference. |
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Global Announces 8 New Global Employment Grant Winners
February 28, 2020 Today, Global Down Syndrome Foundation (Global) announced eight new Global Self-Advocate Employment Initiative Grant winners at the national Down Syndrome Affiliates in Action (DSAIA) Annual Leadership Conference. |