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Bill and Will HarmonО Глобальном фонде синдрома Дауна

Глобальный фонд синдрома Дауна is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy. Formally established in 2009, the Foundation’s primary focus is to support the Институт синдрома Дауна имени Линды ЦрникПервый академический центр в США, занимающийся исключительно исследованиями и медицинским обслуживанием людей с синдромом Дауна. Поскольку синдром Дауна является наименее финансируемым генетическим заболеванием в Соединенных Штатах, сбор средств и защита интересов правительства для исправления тревожной диспропорции в национальном финансировании людей с синдромом Дауна является одной из главных целей.

Подробнее о нас.

Our History

In 2006, John J. and Anna Sie organized a summit gathering some of the world’s best scientists, including Nobel Laureate Tom Cech, to explore the possibility of break-through research for people with Down syndrome. That same year, the idea of the first academic home for Down syndrome research was born.

Read more about the history of the Global Down Syndrome Foundation.

Лидерство

Meet the people behind the Global Down Syndrome Foundation, including our Совет директоров. Also get to know the leaders at the Linda Crnic Institute for Down Syndrome и Центр синдрома Дауна Анны и Джона Дж. Си.

Read more about the Leadership of the Global Down Syndrome Foundation.

Global staffStaff

A group of highly talented and motivated people manage the day-to-day business of the Global Down Syndrome Foundation.

Read more about them here.

Институт синдрома Дауна имени Линды ЦрникThe Linda Crnic Institute for Down Syndrome

The Institute provides the world’s first fully integrated institute for Down syndrome with the highest quality basic, translational and clinical research, clinical trials, therapeutic development, medical care, education and advocacy in the pursuit of the mission.

Read more about the Linda Crnic Institute.

Анна и Джон Дж. Си

John J. and Anna Sie

Центр синдрома Дауна Анны и Джона Дж. Си

The Sie Center at Children’s Hospital opened its doors to patients with Down syndrome from all over the world and the US in November of 2010. The Sie Center is comprised of a multi-disciplinary “Dream Team” of experts with more than 80 years of combined experience in caring for children with Down syndrome and developmental disabilities.

Read more about the Anna and John J. Sie Center for Down Syndrome.