{"id":16,"date":"2011-06-01T10:34:13","date_gmt":"2011-06-01T10:34:13","guid":{"rendered":"http:\/\/globaldownsyndrome.org.mytempweb.com\/?page_id=16"},"modified":"2018-08-01T16:39:15","modified_gmt":"2018-08-01T22:39:15","slug":"historia-jone","status":"publish","type":"page","link":"https:\/\/www.globaldownsyndrome.org\/sq\/our-story\/","title":{"rendered":"Historia jon\u00eb"},"content":{"rendered":"

\"Bill<\/strong>Rreth Fondacionit Global t\u00eb Sindrom\u00ebs Down
\n<\/strong><\/h2>\n

Fondacioni Global i Sindrom\u00ebs Down<\/strong> \u00ebsht\u00eb nj\u00eb organizat\u00eb jofitimprur\u00ebse publike 501(c)(3) e dedikuar p\u00ebr p\u00ebrmir\u00ebsimin e ndjesh\u00ebm t\u00eb jet\u00ebs s\u00eb njer\u00ebzve me sindrom\u00ebn Down p\u00ebrmes k\u00ebrkimit, kujdesit mjek\u00ebsor, edukimit dhe avokimit. I themeluar zyrtarisht n\u00eb vitin 2009, fokusi kryesor i Fondacionit \u00ebsht\u00eb t\u00eb mb\u00ebshtes\u00eb Instituti Linda Crnic p\u00ebr Sindrom\u00ebn Down<\/a>, sht\u00ebpia e par\u00eb akademike n\u00eb Shtetet e Bashkuara t\u00eb angazhuar vet\u00ebm p\u00ebr k\u00ebrkimin dhe kujdesin mjek\u00ebsor p\u00ebr njer\u00ebzit me sindrom\u00ebn Down. Meqen\u00ebse sindroma Down \u00ebsht\u00eb gjendja gjenetike e financuar m\u00eb pak n\u00eb Shtetet e Bashkuara, mbledhja e fondeve dhe avokimi i qeveris\u00eb p\u00ebr t\u00eb korrigjuar pabarazin\u00eb alarmante t\u00eb financimit komb\u00ebtar p\u00ebr njer\u00ebzit me sindrom\u00ebn Down \u00ebsht\u00eb nj\u00eb q\u00ebllim kryesor.<\/p>\n

Lexoni m\u00eb shum\u00eb p\u00ebr ne<\/a>.<\/em><\/p>\n

\n

Historia jon\u00eb<\/h2>\n

ne vitin 2006, John J. dhe Anna Sie<\/a> organizoi nj\u00eb samit duke mbledhur disa nga shkenc\u00ebtar\u00ebt m\u00eb t\u00eb mir\u00eb n\u00eb bot\u00eb, duke p\u00ebrfshir\u00eb laureatin e Nobelit Tom Cech, p\u00ebr t\u00eb eksploruar mund\u00ebsin\u00eb e k\u00ebrkimit t\u00eb p\u00ebrparuar p\u00ebr njer\u00ebzit me sindrom\u00ebn Down. Po at\u00eb vit lindi ideja e sht\u00ebpis\u00eb s\u00eb par\u00eb akademike p\u00ebr k\u00ebrkimin e sindrom\u00ebs Down.<\/p>\n

Lexoni m\u00eb shum\u00eb rreth historis\u00eb s\u00eb Fondacionit Global Down Syndrome<\/a>.<\/em><\/p>\n

\n

Lidershipi<\/h2>\n

Njihuni me njer\u00ebzit q\u00eb q\u00ebndrojn\u00eb pas Fondacionit Global Down Syndrome, duke p\u00ebrfshir\u00eb ton\u00ebn Bordi i Drejtor\u00ebve<\/a>. Gjithashtu njihuni me drejtues n\u00eb Institutin Linda Crnic p\u00ebr Sindrom\u00ebn Down<\/a> dhe Qendra Anna dhe John J. Sie p\u00ebr Sindrom\u00ebn Down<\/a>.<\/p>\n

Lexoni m\u00eb shum\u00eb rreth Udh\u00ebheqjes s\u00eb Fondacionit Global t\u00eb Sindrom\u00ebs Down.<\/a><\/em><\/p>\n

\n

\"Stafi<\/strong>Stafi<\/h2>\n

Nj\u00eb grup njer\u00ebzish shum\u00eb t\u00eb talentuar dhe t\u00eb motivuar drejtojn\u00eb biznesin e p\u00ebrditsh\u00ebm t\u00eb Fondacionit Global Down Syndrome.<\/p>\n

Lexoni m\u00eb shum\u00eb rreth tyre k\u00ebtu<\/a>.<\/em><\/p>\n

\n

\"Instituti<\/a><\/strong>Instituti Linda Crnic p\u00ebr Sindrom\u00ebn Down<\/h2>\n

Instituti ofron institutin e par\u00eb plot\u00ebsisht t\u00eb integruar n\u00eb bot\u00eb p\u00ebr sindrom\u00ebn Down me cil\u00ebsin\u00eb m\u00eb t\u00eb lart\u00eb k\u00ebrkimore baz\u00eb, p\u00ebrkthimore dhe klinike, prova klinike, zhvillim terapeutik, kujdes mjek\u00ebsor, edukim dhe advokim n\u00eb ndjekje t\u00eb misionit.<\/p>\n

Lexoni m\u00eb shum\u00eb p\u00ebr Institutin Linda Crnic<\/a>.<\/em><\/p>\n

\n
\"Anna

John J. dhe Anna Sie<\/p><\/div>\n

Qendra Anna dhe John J. Sie p\u00ebr Sindrom\u00ebn Down<\/h2>\n

Qendra Sie n\u00eb Spitalin e F\u00ebmij\u00ebve hapi dyert e saj p\u00ebr pacient\u00ebt me sindrom\u00ebn Down nga e gjith\u00eb bota dhe SHBA n\u00eb n\u00ebntor t\u00eb vitit 2010. Qendra Sie p\u00ebrb\u00ebhet nga nj\u00eb "Ekipi i \u00ebndrrave" multidisiplinare t\u00eb ekspert\u00ebve me m\u00eb shum\u00eb se 80 vjet t\u00eb kombinuara p\u00ebrvoj\u00eb n\u00eb kujdesin ndaj f\u00ebmij\u00ebve me sindrom\u00ebn Down dhe paaft\u00ebsi zhvillimore.<\/p>\n

Lexoni m\u00eb shum\u00eb rreth Qendr\u00ebs Anna dhe John J. Sie p\u00ebr Sindrom\u00ebn Down<\/a>.<\/em><\/p>","protected":false},"excerpt":{"rendered":"

About Global Down Syndrome Foundation The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy. Formally established in 2009, the Foundation\u2019s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the […]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":20,"comment_status":"open","ping_status":"open","template":"","meta":{"_acf_changed":false,"ngg_post_thumbnail":0,"footnotes":""},"class_list":["post-16","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nOur Story | Global Down Syndrome Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.globaldownsyndrome.org\/sq\/historia-jone\/\" \/>\n<meta property=\"og:locale\" content=\"sq_AL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Our Story | Global Down Syndrome Foundation\" \/>\n<meta property=\"og:description\" content=\"About Global Down Syndrome Foundation The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy. 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