{"id":567,"date":"2011-08-09T15:11:22","date_gmt":"2011-08-09T15:11:22","guid":{"rendered":"http:\/\/globaldownsyndrome.org.mytempweb.com\/?page_id=567"},"modified":"2020-09-04T15:59:03","modified_gmt":"2020-09-04T21:59:03","slug":"rreth-gdsf","status":"publish","type":"page","link":"https:\/\/www.globaldownsyndrome.org\/sq\/our-story\/about-gdsf\/","title":{"rendered":"Rreth Fondacionit Global t\u00eb Sindrom\u00ebs Down"},"content":{"rendered":"
\"Fondacioni

Fondacioni Global i Sindrom\u00ebs Down punon p\u00ebr t\u00eb p\u00ebrmir\u00ebsuar jet\u00ebn e njer\u00ebzve me Sindrom\u00ebn Down dhe familjeve t\u00eb tyre.<\/p><\/div>\n

Fondacioni Global i Sindrom\u00ebs Down<\/strong> \u00ebsht\u00eb nj\u00eb organizat\u00eb jofitimprur\u00ebse publike 501(c)(3) e dedikuar p\u00ebr p\u00ebrmir\u00ebsimin e ndjesh\u00ebm t\u00eb jet\u00ebs s\u00eb njer\u00ebzve me sindrom\u00ebn Down p\u00ebrmes k\u00ebrkimit, kujdesit mjek\u00ebsor, edukimit dhe avokimit. E themeluar zyrtarisht n\u00eb 2009, fokusi kryesor i GLOBAL \u00ebsht\u00eb t\u00eb mb\u00ebshtes\u00eb Instituti Linda Crnic p\u00ebr Sindrom\u00ebn Down<\/a>, sht\u00ebpia e par\u00eb akademike n\u00eb Shtetet e Bashkuara t\u00eb angazhuar vet\u00ebm p\u00ebr k\u00ebrkimin dhe kujdesin mjek\u00ebsor p\u00ebr njer\u00ebzit me sindrom\u00ebn Down. Meqen\u00ebse sindroma Down \u00ebsht\u00eb gjendja gjenetike e financuar m\u00eb pak n\u00eb Shtetet e Bashkuara, mbledhja e fondeve dhe avokimi i qeveris\u00eb p\u00ebr t\u00eb korrigjuar pabarazin\u00eb alarmante t\u00eb financimit komb\u00ebtar p\u00ebr njer\u00ebzit me sindrom\u00ebn Down \u00ebsht\u00eb nj\u00eb q\u00ebllim kryesor.<\/p>\n

Fondacioni Global i Sindrom\u00ebs Down krijoi dhe organizon B\u00ebhu i Bukur Behu Vet\u00eb Show Fashion<\/a> \u2013 mbledhja e fondeve vjetore m\u00eb e madhe e vetme p\u00ebr t\u00eb p\u00ebrfituar njer\u00ebzit me sindrom\u00ebn Down. GLOBAL organizon dhe financon shum\u00eb programe, konferenca dhe grante, duke p\u00ebrfshir\u00eb Guxoni t\u00eb luani kampin e futbollit me Ed McCaffrey<\/a>, Nxit\u00ebsit e tifoz\u00ebve t\u00eb Denver Broncos guxojn\u00eb t\u00eb g\u00ebzojn\u00eb kampin<\/a>, dhe Grante Arsimore t\u00eb Fondacionit Global Down Syndrome<\/a>.<\/p>\n

GLOBAL \u00ebsht\u00eb nj\u00eb organizat\u00eb gjith\u00ebp\u00ebrfshir\u00ebse pa p\u00ebrkat\u00ebsi apo q\u00ebllime politike apo fetare.<\/p>\n

Lexoni m\u00eb shum\u00eb p\u00ebr ne<\/a>.<\/em><\/p>\n

\n

Misioni, Vizioni dhe Vlerat tona<\/strong><\/h2>\n

Q\u00ebllimi yn\u00eb \u00ebsht\u00eb t\u00eb p\u00ebrmir\u00ebsojm\u00eb ndjesh\u00ebm jet\u00ebn e njer\u00ebzve me sindrom\u00ebn Down p\u00ebrmes K\u00ebrkimit, Kujdesit Mjek\u00ebsor, Edukimit dhe Avokimit. Ne punojm\u00eb p\u00ebr t\u00eb edukuar qeverit\u00eb, organizatat arsimore dhe shoq\u00ebrin\u00eb p\u00ebr t\u00eb ndikuar n\u00eb ndryshimet legjislative dhe sociale n\u00eb m\u00ebnyr\u00eb q\u00eb \u00e7do person me sindrom\u00ebn Down t\u00eb ket\u00eb nj\u00eb shans t\u00eb barabart\u00eb p\u00ebr nj\u00eb jet\u00eb t\u00eb k\u00ebnaqshme.<\/p>\n

Lexoni m\u00eb shum\u00eb p\u00ebr misionin, vizionin dhe vlerat tona<\/a>.<\/em><\/p>\n

\n

Nj\u00eb v\u00ebshtrim personal n\u00eb themelimin e Fondacionit<\/strong><\/h2>\n
\"Anna

Anna dhe John J. Sie<\/p><\/div>\n

\n

I themeluar zyrtarisht nga Anna dhe John J. Sie n\u00eb 2009 n\u00eb Denver, Kolorado, Fondacioni Global i Sindrom\u00ebs Down \u00ebsht\u00eb nj\u00eb organizat\u00eb jofitimprur\u00ebse e dedikuar p\u00ebr t\u00eb p\u00ebrmir\u00ebsuar ndjesh\u00ebm jet\u00ebn e njer\u00ebzve me sindrom\u00ebn Down p\u00ebrmes k\u00ebrkimit, kujdesit mjek\u00ebsor, edukimit dhe avokimit.<\/p>\n

Kur mbesa e par\u00eb e Sies lindi me sindrom\u00ebn Down, familja personalisht p\u00ebrjetoi shum\u00eb situata shqet\u00ebsuese rreth diagnoz\u00ebs, kujdesit sh\u00ebndet\u00ebsor dhe edukimit t\u00eb mbes\u00ebs s\u00eb tyre. Para lindjes, atyre iu dhan\u00eb informacione t\u00eb pasakta p\u00ebr jet\u00ebgjat\u00ebsin\u00eb q\u00eb do t\u00eb kishte mbesa e tyre, dhe k\u00ebshillimi gjenetik ishte i fokusuar n\u00eb p\u00ebrfundimin dhe jo zgjedhjet e arsimuara.<\/p>\n<\/div>\n

Lexoni m\u00eb shum\u00eb rreth themelimit t\u00eb Fondacionit<\/a>.<\/em><\/p>\n

 <\/p>\n

 <\/p>\n

\n

\"Logoja<\/p>\n

Logoja jon\u00eb<\/strong><\/h2>\n

Dizajni yn\u00eb i bukur i ri na ndihmon t\u00eb theksojm\u00eb natyr\u00ebn globale t\u00eb pun\u00ebs son\u00eb dhe fokusin ton\u00eb n\u00eb k\u00ebrkimin dhe kujdesin mjek\u00ebsor.<\/p>\n

 <\/p>\n

 <\/p>\n

<\/p>\n

\n

Karriera<\/h2>\n

Fondacioni Global i Sindrom\u00ebs Down poston periodikisht mund\u00ebsi emocionuese dhe shp\u00ebrblyese p\u00ebr t\u00eb p\u00ebrdorur aft\u00ebsit\u00eb tuaja p\u00ebr t\u00eb \u00e7uar m\u00eb tej misionin e nj\u00eb organizate emocionuese.<\/p>\n

Lexoni p\u00ebr hapjet aktuale t\u00eb pun\u00ebs<\/a>.<\/em><\/p>","protected":false},"excerpt":{"rendered":"

The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy. Formally established in 2009, GLOBAL\u2019s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed solely […]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":16,"menu_order":0,"comment_status":"open","ping_status":"open","template":"","meta":{"_acf_changed":false,"ngg_post_thumbnail":0,"footnotes":""},"class_list":["post-567","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nAbout the Global Down Syndrome Foundation<\/title>\n<meta name=\"description\" content=\"The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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