{"id":157353,"date":"2024-08-22T12:00:04","date_gmt":"2024-08-22T18:00:04","guid":{"rendered":"https:\/\/www.globaldownsyndrome.org\/?p=157353"},"modified":"2024-09-11T15:59:03","modified_gmt":"2024-09-11T21:59:03","slug":"washington-post-dsdr","status":"publish","type":"post","link":"https:\/\/www.globaldownsyndrome.org\/uk\/washington-post-dsdr\/","title":{"rendered":"Down Syndrome Regression Disorder vs a Mother\u2019s Love: A Washington Post Mother\u2019s Day Feature"},"content":{"rendered":"<p>For many families, the threat of Down Syndrome Regression Disorder (DSRD) feels harrowing and constant. Gratefully, two scientists are leading the charge to understand and treat this heartbreaking condition, and thanks to one relentless mom\/advocate, they\u2019re working together.<\/p>\n<p>Crnic Institute Executive Director Dr. Joaquin Espinosa and Children\u2019s Hospital Los Angeles Director of Neuroimmunology had no idea they had been developing complementary research on DSRD until mom Linda Roan of Boulder, CO connected the dots for them. The two scientists joined forces to create the first-ever randomized clinical control trial to treat DSRD and secure its funding through NIH\u2019s INCLUDE initiative.<\/p>\n<p>Learn more about this <a href=\"https:\/\/bit.ly\/48S92G0\">groundbreaking clinical trial.<\/a><\/p>\n<iframe src=\"\/\/docs.google.com\/viewer?url=https%3A%2F%2Fwww.globaldownsyndrome.org%2Fwp-content%2Fuploads%2F2024%2F08%2F123397-1.pdf&hl=en_US&embedded=true\" class=\"gde-frame\" style=\"width:100%; height:100%; border: none;\" scrolling=\"no\"><\/iframe>\n<p class=\"gde-text\"><a href=\"https:\/\/www.globaldownsyndrome.org\/wp-content\/uploads\/2024\/08\/123397-1.pdf\" class=\"gde-link\">Download (PDF, 2.21MB)<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>For many families, the threat of Down Syndrome Regression Disorder (DSRD) feels harrowing and constant. Gratefully, two scientists are leading the charge to understand and treat this heartbreaking condition, and thanks to one relentless mom\/advocate, they\u2019re working together. Crnic Institute Executive Director Dr. Joaquin Espinosa and Children\u2019s Hospital Los Angeles Director of Neuroimmunology had no [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"ngg_post_thumbnail":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-157353","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"acf":[],"aioseo_notices":[],"aioseo_head":"\n\t\t<!-- All in One SEO 5.0.0.1 - aioseo.com -->\n\t<meta name=\"description\" content=\"For many families, the threat of Down Syndrome Regression Disorder (DSRD) feels harrowing and constant. 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