GLOBAL Advocacy – Elongating Life & Improving Health
Policy and Advocacy
Global Down Syndrome Foundation is successfully leading the fight for federal research and medical care funding that focuses on elongating life and dramatically improving health outcomes for children and adults with Down syndrome.
Featured Action
Contact your Members of Congress TODAY!
Help GLOBAL and our Congressional Champions pass the DeOndra Dixon INCLUDE Project Act! This bill protects & helps increase funding for life-changing Down syndrome research & care at the NIH.
It is important to recognize and thank our Congressional Champions who have reintroduced and co-sponsored the 2025 DeOndra Dixon INCLUDE Project Act:
- House of Representatives – Diana DeGette (D-CO-1), Richard Hudson (R-NC-9), Tom Cole (R-OK-4), Rosa DeLauro (D-CT-3), Pete Stauber (R-MN-8), and Eleanor Holmes Norton (D-DC).
- United States Senate – John Hickenlooper (D-CO), Jerry Moran (R-KS), Corey Booker (D-NJ), and Markwayne Mullin (R-OK).
Join Our Esteemed Colleagues – Sign on to GLOBAL’s Congressional Letters of Support
Info@GlobalDownSyndrome.org
As of August 2025: Adult Disability Medical Healthcare, Inc.; Adult Down Syndrome Clinic, Denver Health; Alzheimer’s Association; Alzheimer’s & Cognition Center, University of Colorado; Alzheimer’s Impact Movement (AIM); Anna & John J. Sie Center for Down Syndrome, Children’s Hospital Colorado; Arc Thrift; Bellucci Translational Hearing Center, Creighton University; BioFrontiers Institute, University of Colorado Boulder; Black Down Syndrome Association; Boys Town National Research Hospital; Bringing Up Down Syndrome; Cardiovascular Research and Exercise Lab, University of Nevada, Las Vegas; Club 21 Learning & Resource Center Inc.; Down Country; Down Syndrome Advocacy Foundation; Down Syndrome Association of Atlanta; Down Syndrome Association of Central Florida; Down Syndrome Association Central Kentucky; Down Syndrome Association of Connecticut; Down Syndrome Association of Central Texas; Down Syndrome Association of Delaware; Down Syndrome Association of Greater New Orleans; Down Syndrome Association of Greater Winston-Salem; Down Syndrome Association of Memphis & Mid-South; Down Syndrome Association of Middle Tennessee; Down Syndrome Association of Northeast Indiana; Down Syndrome Association of Northern Virginia; Down Syndrome Association of West Michigan; Down Syndrome Association of Wisconsin; Down Syndrome Center of Puget Sound; Down Syndrome Clinic and Research Center, Kennedy Krieger Institute; Down Syndrome Connections Nevada; Down Syndrome Diagnosis Network; Down Syndrome Indiana, INC.; Down Syndrome Medical Interest Group-USA; Down Syndrome Network of Montgomery County; Down Syndrome Program, Boston Children’s Hospital; Down Syndrome Neurology Program, Children’s Hospital Los Angeles; Down to Defend; Fun Coast Down Syndrome Association; Grays Peak Speech Services, LLC; Inspired to Learn; International Mosaic Down Syndrome Association; Jane and Richard Thomas Center for Down Syndrome at Cincinnati Children’s Hospital Medical Center; Linda Crnic Institute, University of Colorado Anschutz Medical Campus; NTG; Perfect Harmony Health; Rock Life, Slippery Rocky University of Pennsylvania; Rueckert-Hartman College for Health Professionals, Regis University; Sharing Down Syndrome Arizona INC.; Stand Up for Downs; University of Kansas Medical Center, Adults with Down Syndrome Specialty Clinic
GLOBAL Membership Advisory Board-Down Syndrome Alabama; Down Syndrome Alliance of the Midlands; Down Syndrome Association of Central Oklahoma; Down Syndrome Association of Greater Cincinnati; Down Syndrome Association of Greater St. Louis; Down Syndrome Association of Jacksonville; Down Syndrome Association of Minnesota; Down Syndrome Association of Northeast Ohio; Down Syndrome Connection of the Bay Area; Down Syndrome Guild of Dallas; North Carolina Down Syndrome Alliance; Rocky Mountain Down Syndrome Association
United Coalition for Down Syndrome-Down Syndrome Affiliates in Action; GiGi’s Playhouse Down Syndrome Achievement Centers; LuMind IDSC Foundation; National Down Syndrome Congress; National Down Syndrome Society
Our Impact
GLOBAL was established in 2009 specifically to address the life-threatening lack of research and medical care for people with Down syndrome at our National Institutes of Health (NIH). For nearly two decades, Down syndrome was one of the least funded genetic conditions at NIH.
With the support of our families, scientists, medical professionals, and champions in Congress and at the NIH, GLOBAL successfully advocated for the creation of a groundbreaking “trans-NIH” funding project called the INCLUDE Project. This initiative draws funding from 21 of the NIH’s 27 institutes and centers to fund critical Down syndrome research.
In just seven years, our advocacy efforts have added $434 million in additional funding for life-changing Down syndrome research through the INCLUDE Project.
Contact your Members of Congress TODAY!
Help GLOBAL and our Congressional Champions pass the DeOndra Dixon INCLUDE Project Act! This bill protects & helps increase funding for life-changing Down syndrome research & care at the NIH.
All the impactful research studies that have been funded by NIH INCLUDE Project are organized for easy public access by the NIH INCLUDE Data Coordinating Center which is co-managed by GLOBAL’s Affiliate, the Crnic Institute for Down syndrome.
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