DeOndra Dixon INCLUDE Project Act

A huge THANK YOU to the thousands of people who wrote their Members of Congress and the 338 people who joined GLOBAL’s Spokesperson, Academy and Grammy award-winner, Jamie Foxx, in DC to advocate for the passing of this important bill. WE WERE SO CLOSE! Our legislation was in the initial 2024 year-end Continuing Resolution (CR) but alas was pulled from the second version that eventually passed. Please know that our efforts are a powerful tool to get this legislation passed in 2025. The letters and the meetings with SIXTY-TWO Members of Congress in just 1 ½ days made a profound impact.

It was one of the largest, if not the largest, Down syndrome Washington DC Advocacy Fly-In to date! With the momentum of that visit, we are in a STRONG position to get the DeOndra Dixon INCLUDE Project Act passed this year.

In the coming weeks, once we get the DeOndra Dixon INCLUDE Project Act reintroduced, we will need your help to get your Members of Congress to co-sponsor the bills and to vote YES.

In the meantime, if you have any questions please contact us at info@globaldownsyndrome.org and check out our amazing photos from our DeOndra Dixon DC Fly-In!

Legislation Overview:

For nearly two decades, Down syndrome was one of the least funded genetic conditions at our National Institutes of Health (NIH). The Global Down Syndrome Foundation (GLOBAL) has worked hard and successfully advocated with Congress and the NIH to increase Down syndrome research and medical care funding from $18 million in 2009 to $133 million in 2024.

The DeOndra Dixon INCLUDE Project Act, named in memory of GLOBAL’s beloved Ambassador and Jamie Foxx’s younger sister, DeOndra Dixon, will authorize Down syndrome research funding that continue to elongate life and improve health outcomes for people with Down syndrome.