DeOndra Dixon INCLUDE Project Act

THANK YOU for helping us get the DeOndra Dixon INCLUDE Project Act (H.R. 7406; S. 3981) over the finish line by the end of the year. We are SO close, but we have one last push! Members of Congress are continuing to deliberate as to whether or not to pass the Continuing Resolution (CR) and whether to keep our DeOndra Dixon INCLUDE Project Act as part of the CR package. 

Please write to your Members of Congress ASAP TODAY through our Phone2Action platform! It takes less than 5 minutes!  

As of December 17, 2024, the DeOndra Dixon INCLUDE Project Act was included in the year end Continuing Resolution (CR), as shown in Sec. 710 on page 5 of the CR Health Provision. This is already a HUGE accomplishment and we were able to have NO monetary cap (versus the $90M or $250M) which gives us maximum flexibility. HOWEVER, we need the VOTES in Congress to make sure we are not pulled out of the CR during negotiations. Please write your Members of Congress TODAY!! Passing this bill would be the best holiday gift ever! 

Gratefully, Michelle and the GLOBAL Team 

Legislation Overview:

For nearly two decades, Down syndrome was one of the least funded genetic conditions at our National Institutes of Health (NIH). The Global Down Syndrome Foundation (GLOBAL) has worked hard and successfully advocated with Congress and the NIH to increase Down syndrome research and medical care funding from $18 million in 2009 to $130 million in 2023.

The DeOndra Dixon INCLUDE Project Act, named in memory of GLOBAL’s beloved Ambassador and Jamie Foxx’s younger sister, DeOndra Dixon, will authorize Down syndrome research funding that continue to elongate life and improve health outcomes for people with Down syndrome.