DeOndra Dixon INLCUDE Project Act

With YOUR help we can pass legislation that will ensure our federal government is investing in research and medical care that benefits children and adults with Down syndrome.

The DeOndra Dixon INCLUDE Project Act (H.R. 7406; S. 3981) will be voted on by Congress before the end of the year. Please contact your Congress Members TODAY and ask them to co-sponsor this bill! Let them know this bill is important to you and to the 450,000 people with Down syndrome in the US and their families.

For nearly two decades, Down syndrome was one of the least funded genetic conditions at our National Institutes of Health (NIH). The Global Down Syndrome Foundation (GLOBAL) has worked hard and successfully advocated with Congress and the NIH to increase Down syndrome research and medical care funding from $18 million in 2009 to $130 million in 2023.

The DeOndra Dixon INCLUDE Project Act, named in memory of GLOBAL’s beloved Ambassador and Jamie Foxx’s younger sister, DeOndra Dixon, will authorize Down syndrome research funding for FIVE-year increments with an aim to eventually increase Down syndrome research funding to $250 million a year.

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