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DeOndra Dixon INLCUDE Project Act

Call to Action! Contact Your Representative & Senators to Support the DEONDRA DIXON INCLUDE PROJECT ACT OF 2024 (H.R. 7406; S. 3981) which will ensure funding for life-changing Down syndrome research & medical care

An Important time in history for people with Down syndrome!

With YOUR help we can pass legislation that will ensure our federal government is investing in research and medical care that benefits children and adults with Down syndrome.

The DeOndra Dixon INCLUDE Project Act (H.R. 7406; S. 3981) will be voted on by Congress before the end of the year. Please contact your Congress Members TODAY and ask them to co-sponsor this bill! Let them know this bill is important to you and to the 450,000 people with Down syndrome in the US and their families.

For nearly two decades, Down syndrome was one of the least funded genetic conditions at our National Institutes of Health (NIH). The Global Down Syndrome Foundation (GLOBAL) has worked hard and successfully advocated with Congress and the NIH to increase Down syndrome research and medical care funding from $18 million in 2009 to $130 million in 2023.

The DeOndra Dixon INCLUDE Project Act, named in memory of GLOBAL’s beloved Ambassador and Jamie Foxx’s younger sister, DeOndra Dixon, will authorize Down syndrome research funding for FIVE-year increments with an aim to eventually increase Down syndrome research funding to $250 million a year.

Just plug in your zip code, then ADD YOUR STORY in the prompt before the pre-drafted email and click “Send Email”, and letters to your Senators and Representative will auto-populate and send.


GLOBAL garners support from

leading hospitals, research universities, national disability organizations, local and national Down syndrome non-profits in support of the DeOndra Dixon INCLUDE Act of 2024


People with Down syndrome deserve and need this investment. We have increased lifespan from 28 years in the 1980s to 60 years today – but that is not enough. We also need to address shorter lifespan through research of minorities and investment in rural areas.In addition, there are many health issues our adults face in their last 10 to 20 years of life that must be addressed. This legislation will help GLOBAL fulfill its mission of elongating life and improving health outcomes for children and adults with Down syndrome.

It is important to recognize and thank our Congressional Champions who have supported GLOBAL’s advocacy: this bill was introduced in the House of Representatives by Cathy McMorris Rodgers (R-WA-5), and co-sponsored by Diana DeGette (D-CO-1), Tom Cole (R-OK-4), Rosa DeLauro (D-CT-3), Pete Stauber (R-MN-8), and Eleanor Holmes Norton (D-DC). This bill was also introduced in the United States Senate by Senators John Hickenlooper (D-CO) and Jerry Moran (R-KS).