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GLOBAL Research & Medical Care Roundtable at NDSC

Global Down Syndrome Foundation Research & Medical Care Roundtable

What Parents, Self-Advocates & Caregivers Should Know​

REGISTER NOW •  Thursday, July 25, 2024
NDSC 52nd Annual Convention, JW Marriott, Phoenix, Arizona

Co-Organized with the NDSC, the GLOBAL Roundtable is a free benefit and features internationally renowned scientists and medical professionals. Important topics to be covered include updates on:

  • Pediatric Care
  • Adult Care
  • Important Clinical Trials
  • Behavioral health
  • Obstructive Sleep apnea
2022 Webinars

Michelle Sie Whitten, MA

Co-Founder, President & CEO, Global Down Syndrome Foundation

GLOBAL Update & Moderator Introductions

Michelle Whitten

David Egan

Author, Speaker, Actor, Advocate, Quincy Jones Exceptional Advocacy Awardee

What Research & Medical Care Means to Me

2022-BBBY-David-Egan-300x300-resize-for-web

Joaquín Espinosa, PhD

Executive Director, Linda Crnic Institute for Down Syndrome; Professor in the Department of Pharmacology at the University of Colorado School of Medicine

Joaquin Espinosa

Melissa Parisi, PhD, MD

Chief of the Intellectual and Developmental Disabilities (IDD)

The NIH INCLUDE Project: Accelerating Research Discoveries for People with DS Across the Lifespan

2024 NDCS Roundtable Parisi headshot and bio

Michael Rafii, MD, PhD

Professor of Clinical Neurology at the Keck School of Medicine and Medical Director of the Alzheimer’s Therapeutic Research Institute (ATRI)

Down Syndrome in a New Era of Alzheimer’s Disease 

Dr. Michael Rafii

Christine Heubi, MD

Surgical Director, Complex Obstructive Sleep Apnea Center
Assistant Professor, UC Department of Otolaryngology, Head and Neck Surgery; Cincinnati Children’s Hospital

Obstructive Sleep Apnea in People with Down Syndrome and the Role of Hypoglossal Nerve

christine_heubi_bio_135x135

Lina Patel, PsyD

Associate Professor of Child and Adolescent Psychiatry at the University of Colorado School of Medicine

Differentiating Challenging Behaviors from Mental Health Concerns: Considerations for Getting Support

Lina Patel Headshot

Nicole Baumer, MD, MEd

Director, Down Syndrome Program; Assistant, Department of Neurology and Developmental Medicine Center; Boston Children’s Hospital

Co-occurring Neurodevelopmental Conditions in Down Syndrome

Nicole Baumer

Bryn Gelaro, MA

Research & Medical Care Senior Director, Global Down Syndrome Foundation

Welcome Remarks/Medical Care Guidelines

Bryn Gelaro