Press Releases

The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy. Formally established in 2009, the Foundation’s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. Since Down syndrome is the least-funded genetic condition in the United States, fundraising and government advocacy to correct the alarming disparity of national funding for people with Down syndrome is a major goal.

The Global Down Syndrome Foundation hosts a variety of programs, conferences and events, in addition to partnering with organizations around the world to educate, advocate and improve the lives of people with Down syndrome. These initiatives often require press releases, which are listed by year below.

2020 Press Releases

Press Contacts:
Anca Elena Call | acall@globaldownsyndrome.org | 720-320-3832
Rejena Carmichael | rcarmichael@globaldownsyndrome.org | 240-603-5494

 


GLOBAL DOWN SYNDROME FOUNDATION RAISES CRUCIAL AWARENESS AT THE FIRST EVER VIRTUAL BE BEAUTIFUL BE YOURSELF FASHION SHOW
The unprecedented virtual event was an overwhelming success which raised $1.9 million for
life-saving and transformative funds for Down syndrome research and medical care


11/19/20


NIH Award Funds Data Coordinating Center for Down Syndrome Research
The new initiative will fuel collaboration and discovery about the biology of Down syndrome and its co-occurring medical conditions

11/5/20


MULTIPLATINUM ARTIST RACHEL PLATTEN, THE FRAY’S ISAAC SLADE, & THE RANSOM NOTES TO PERFORM AT GLOBAL’S BE BEAUTIFUL BE YOURSELF FASHION SHOW
Exclusive $25 Tickets Gives a Remarkable Opportunity to
Experience this Inspirational and Star-studded Celebration

10/28/20


A LOVING TRIBUTE TO DEONDRA DIXON
With the heaviest of hearts and full of sorrow, we are beyond sad to share the news that our beloved Global Ambassador DeOndra Dixon has passed.
10/24/20


GLOBAL DOWN SYNDROME FOUNDATION ANNOUNCES THE 1ST EVIDENCE-BASED MEDICAL CARE GUIDELINES FOR ADULTS WITH DOWN SYNDROME
The Global Guideline is Published in the Print & Online Versions of JAMA, Ensuring Clinicians Across the U.S. Have Access
10/20/20


NIH AND FAST GRANTS AWARD $1M TO THE CRNIC INSTITUTE TO STUDY COVID-19 IN PEOPLE WITH DOWN SYNDROME
Understanding the Impact of Immune Dysregulation in COVID-19 Patients with Down Syndrome May Lead to Tailored Prevention, Diagnosis and Treatment
9/25/20


NATHANIEL JULIUS STATEMENT
We are simultaneously saddened and enraged by the tragic death of Nathaniel Julius, a 16-year-old with Down syndrome from Eldorado Park South Africa, who was shot and killed earlier this week during a police/gang-related shootout.
9/1/20


GREY’S ANATOMY STAR CATERINA SCORSONE AND SPANISH MODEL MARIÁN ÁVILA TO RECEIVE GLOBAL’S PRESTIGIOUS “QUINCY JONES AWARDS”
GLOBAL’s Virtual Be Beautiful Be Yourself Fashion Show attracts an impressive roster of celebrities with a NEW DATE – Saturday, November 14, 2020
8/26/20


GLOBAL DOWN SYNDROME FOUNDATION AWARDS OVER $116K IN COVID-19 RELIEF GRANTS TO OVER 140 FAMILIES & 42 DOWN SYNDROME ORGS IN NEED
Amidst the COVID-19 pandemic, GLOBAL helps provide economic support, shelter, food, and medical care to Down Syndrome Organizations and the Families they serve in 23 states and 4 countries
7/23/20


DESPITE CORONAVIRUS, CELEBRITIES SIGN UP IN FULL FORCE FOR GLOBAL’S BE BEAUTIFUL BE YOURSELF FASHION SHOW
Jamie Foxx, DeOndra Dixon, Caterina Scorsone, John C. McGinley, Walt Snodgrass and more support the World’s Largest Event Benefitting People with Down Syndrome
6/30/20


BLACK LIVES MATTER STATEMENT
Today we stand together with people from all over the world. We call for justice and demand systemic change that will protect us from racism, discrimination and brutality. Even beyond protection we demand real change that provides equity in research, medical care, education, the justice system, and every area that allows us freedom and the opportunity of good health, productivity, and happiness.
6/5/20


GLOBAL DOWN SYNDROME FOUNDATION, NATIONAL DOWN SYNDROME CONGRESS, & INTERNATIONAL MOSAIC DOWN SYNDROME ASSOCIATION EXPAND COLLABORATIONS
Lifespan of Resources will have a National and International Impact
5/7/20


IN THE FACE OF ETHICAL ABERRATIONS IN SEVERAL STATES
COLORADO STANDS STRONG AGAINST DISCRIMINATION IN COVID-19 CARE

140 Organizations Help Ensure People with Disabilities Will Receive Equitable Treatment under Colorado’s Newly Published “Critical Care Triage Guidance for Crisis Standards of Care”
4/9/20


NATIONAL DOWN SYNDROME ORGANIZATIONS COMBINE EFFORTS TO PUBLISH Q&A ON COVID-19 AND DOWN SYNDROME
An Important Resource for Families During Unprecedented and Uncertain Times
3/17/20


UPDATE ON THE CORONAVIRUS DISEASE (COVID-19) FROM THE GLOBAL DOWN SYNDROME FOUNDATION
Some things to consider if you have Down syndrome or a loved one with Down syndrome
3/12/20


GLOBAL DOWN SYNDROME FOUNDATION ANNOUNCES EIGHT GRANT WINNERS AT THE NATIONAL DS AFFILIATES IN ACTION CONFERENCE
Global grants fund a total of 80 jobs for people with Down syndrome in the US and Peru
2/28/20


2019 Press Releases

2018 Press Releases

2017 Press Releases

2016 Press Releases

2015 Press Releases

2014 Press Releases

2013 Press Releases

2012 Press Releases

2011 Press Releases

2010 Press Releases

2009 Press Releases

2008 Press Releases