Press Releases

The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy. Formally established in 2009, the Foundation’s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. Since Down syndrome is the least-funded genetic condition in the United States, fundraising and government advocacy to correct the alarming disparity of national funding for people with Down syndrome is a major goal.

The Global Down Syndrome Foundation hosts a variety of programs, conferences and events, in addition to partnering with organizations around the world to educate, advocate and improve the lives of people with Down syndrome. These initiatives often require press releases, which are listed by year below.

2018 Press Releases

Press Contact:
Anca Elena Call | acall@globaldownsyndrome.org | 720-320-3832


CONGRESS AND THE NATIONAL INSTITUTES OF HEALTH PRIORITIZE DOWN SYNDROME RESEARCH FUNDING IN 2018 BUDGET
Chairman Tom Cole Announces Historic NIH Budget Increase at the Global Down Syndrome Foundation AcceptAbility Gala
5/24/18


GLOBAL DOWN SYNDROME FOUNDATION INVITED BACK TO TESTIFY BEFORE CONGRESS AT THE FY2019 PUBLIC WITNESSES HEARING AND THANKS HOUSE SUBCOMMITTEE ON LABOR, HEALTH AND HUMAN SERVICES, EDUCATION AND RELATED AGENCIES
Testimony focuses on reversing two decades of decreased and flat funding and positive new language in the 2018 Omnibus Bill
4/26/18


GLOBAL DOWN SYNDROME FOUNDATION MEMBERSHIP GRANTS HELP EMPLOY 48 PEOPLE WITH DOWN SYNDROME ACROSS THE COUNTRY
In its third successful year, Global Down Syndrome Foundation (Global) awarded $16,900 to 9 organizations through their Self-Advocate Employment Initiative Grants. The Grants, a benefit of Global membership, empower local Down syndrome organizations to hire individuals with Down syndrome and help find sustainable funding from other sources in the future.
4/11/18


OMNIBUS SPENDING BILL INCLUDES SIGNIFICANT INCREASE FOR DOWN SYNDROME RESEARCH AT THE NATIONAL INSTITUTES FOR HEALTH (NIH)
Global Down Syndrome Foundation Applauds Congressional Champions and Looks Forward to Partnering with the Trans-NIH Down Syndrome Initiative

3/22/18


HUNDREDS CELEBRATE WORLD DOWN SYNDROME DAY AS GOV. HICKENLOOPER SIGNS LEGISLATION TO ELIMINATE THE “R” WORD
Gov. John Hickenlooper joined forces with the Global Down Syndrome Foundation (Global) and hundreds of self-advocates, families and community partners to celebrate World Down Syndrome Day at the Colorado State Capitol today
3/21/18


ON THE EVE OF OMNIBUS SPENDING NEGOTIATIONS REPUBLICANS AND DEMOCRATS AGREE TO SUPPORT DOWN SYNDROME RESEARCH
Groundbreaking Research Grants announced on World Down Syndrome Day
3/21/18


VETERANSAGAINSTALZHEIMER’S APPLAUDS CONGRESS FOR INTRODUCING BILL PROMISING TO HELP VETERANS WITH ALZHEIMER’S
The Medical Improvement of Neurodegenerative Disease (MIND) Act of 2018 Directs the Department of Veteran Affairs to Establish New Alzheimer’s Disease Research, Education, and Clinical Centers
3/20/18


COFFMAN INTRODUCES THE ‘MIND’ ACT OF 2018
Directs VA to Establish Centers for Alzheimer’s Research
3/7/18


GLOBAL DOWN SYNDROME FOUNDATION ANNOUNCES ROSTER OF AUTHORS COMMITTED TO ESTABLISHING MEDICAL CARE GUIDELINES FOR ADULTS WITH DOWN SYNDROME
New guidelines aim to address different standards of care and the doubling of life expectancy for individuals with Down syndrome
2/8/18


GLOBAL DOWN SYNDROME FOUNDATION RESPONDS TO SHOCKING REPORT – SHARES TRANSLATED PRENATAL TESTING INFORMATION WITH ICELAND
The Global Down Syndrome Foundation announced today that it has translated important prenatal testing information into Icelandic and provided the resource to the Icelandic Down Syndrome Association.
1/11/18


2017 Press Releases

2016 Press Releases

2015 Press Releases

2014 Press Releases

2013 Press Releases

2012 Press Releases

2011 Press Releases

2010 Press Releases

2009 Press Releases

2008 Press Releases