Facebook Pixel tracker hidden image 2024 AcceptAbility Gala | Global Down Syndrome Foundation

2024 AcceptAbility Gala

AcceptAbility Gala Header Image

A fundraiser for the

GLOBAL DOWN SYNDROME FOUNDATION

funding life-changing research and life-saving medical care for children and
adults with Down syndrome

Thursday, May 9, 2024

Marriott Marquis Washington, DC
6:00 PM ET Cocktail Reception | 7:00 PM ET Performance & Program | 9:00 PM ET Concludes

EMCEES

Kyra Phillips, Correspondent, ABC News; Anchor, ABC News Live
John Roberts, Co-Anchor of ‘America Reports with John Roberts & Sandra Smith,’ Fox News

2024 Honorees

Honoree Photo
Isla Eager
2024 Ambassador
It is truly an honor for us to introduce Isla as GLOBAL's 2024 Ambassador. When Isla walks in a room you know it. Someone recently described Isla to us as a “joy bomb”. It’s true. She’s a tornado of activity and non-stop movement but sheds light in every direction she moves. Her teachers call her the “mayor” of the school. But the same can be said when she’s at a doctor’s office, playground, or grocery store. She’s never met a stranger and is quick with a “Hi!”, especially if the person on the receiving end hasn’t noticed her yet.
X
Honoree Photo
Isla Eager
2024 Ambassador

It is truly an honor for us to introduce Isla as GLOBAL's 2024 Ambassador. When Isla walks in a room you know it. Someone recently described Isla to us as a “joy bomb”. It’s true. She’s a tornado of activity and non-stop movement but sheds light in every direction she moves. Her teachers call her the “mayor” of the school. But the same can be said when she’s at a doctor’s office, playground, or grocery store. She’s never met a stranger and is quick with a “Hi!”, especially if the person on the receiving end hasn’t noticed her yet. It’s like she prides herself on the challenge of getting their attention. She will be persistent if the “Hi!” is not reciprocated.

We first learned our baby would likely have Down syndrome when we were about 12 weeks pregnant. It was surprising news to receive, but there was never a doubt about how much she would be loved. Isla gave us a run for our money from day one, needing an emergency transfer to Children’s National where she landed in the Cardiac ICU. Her heart has healed itself remarkably well and so far, we’ve avoided surgery. Isla was diagnosed with infantile spasms when she was about 9 months old, which is a type of seizure that occurs in babies and needs immediate treatment to prevent developmental issues. Luckily, with a long and heavy round of steroids, we were able to stop the seizures and Isla has since shown remarkable progress with her development.

Isla is thriving since starting school last August. She’s a whirlwind of walking, talking, and singing. You’ll be hard pressed to find a two-year-old who is a bigger bookworm. She will pass up a room full of toys for a chance to sit and read, babbling away to herself with full emotion and the occasional “oh no” and “wow”.

We know there may be more medical challenges in Isla’s future. We are grateful for the work the Global Down Syndrome Foundation is doing daily to ensure that when the day comes, we have the research and resources to receive the best medical care possible for Isla. Thank you for supporting this cause and making the quality of life better for those with Down syndrome!

Honoree Photo
Congresswoman Lois Frankel (D-FL)
2024 Quincy Jones Exceptional Advocacy Awardee
From her days as a working mom and now as she describes herself—a working grandmother, Congresswoman Lois Frankel has spent her life delivering positive change to her community as a civic leader, state legislator, mayor, and now Member of the United States House of Representatives. She currently sits on the House Appropriations Committee where she serves on the Labor, Health and Human Services, Education, and Related Agencies and the State, Foreign Operations, and Related Programs subcommittees.
X
Honoree Photo
Congresswoman Lois Frankel (D-FL)
2024 Quincy Jones Exceptional Advocacy Awardee

From her days as a working mom and now as she describes herself—a working grandmother, Congresswoman Lois Frankel has spent her life delivering positive change to her community as a civic leader, state legislator, mayor, and now Member of the United States House of Representatives. She currently sits on the House Appropriations Committee where she serves on the Labor, Health and Human Services, Education, and Related Agencies and the State, Foreign Operations, and Related Programs subcommittees.

A trailblazer in the Florida State Legislature, Lois served as the first woman Democratic minority leader. She became a leading force to improve the economic condition of families and seniors, and to protect human rights and women's reproductive freedom - fights she continues today in Congress as Chair of the Democratic Women's Caucus.

Prior to her election to Congress, Lois served as Mayor of West Palm Beach, raising her city to a new vitality and earning a reputation as an innovative problem solver.

On a personal note, Lois is an avid abstract painter who is very proud of her son, and even more proud to be “Lolo” to her grandsons.

We are proud to announce Congresswoman Lois Frankel as a 2024 Quincy Jones Exceptional Advocacy Awardee.

Honoree Photo
Congressman Richard Hudson (R-NC)
2024 Quincy Jones Exceptional Advocacy Awardee
Richard Hudson has served in Congress since 2013, currently representing North Carolina’s 9th Congressional District. He sits on the Energy and Commerce Committee and was elected by his colleagues to House leadership as the fifth-ranking Republican in the 118th Congress, placing him as one of the highest-ranking Congressmen from North Carolina in history. In Congress, Rep. Hudson is dedicated to working across the aisle on solutions to support our veterans, defend our Constitutional rights, create jobs, and improve our quality of life.
X
Honoree Photo
Congressman Richard Hudson (R-NC)
2024 Quincy Jones Exceptional Advocacy Awardee

Richard Hudson has served in Congress since 2013, currently representing North Carolina’s 9th Congressional District. He sits on the Energy and Commerce Committee and was elected by his colleagues to House leadership as the fifth-ranking Republican in the 118th Congress, placing him as one of the highest-ranking Congressmen from North Carolina in history. In Congress, Rep. Hudson is dedicated to working across the aisle on solutions to support our veterans, defend our Constitutional rights, create jobs, and improve our quality of life.

To grow our economy, Rep. Hudson has championed middle-class tax cuts and is focused on solutions to create jobs. As a member of the Energy and Commerce Committee, Rep. Hudson is also committed to making health care more affordable and accessible, improving health care for veterans, addressing the tragedy of veteran suicide, and unleashing American energy to lower costs and create jobs in North Carolina. He has also led efforts to clean up chemicals in drinking water which impact our overall quality of life.

Richard grew up in Charlotte, graduated from Myers Park High School, and earned his Bachelor of Arts degree in History and Political Science from the University of North Carolina at Charlotte, while serving as Student Body President. His past volunteer leadership service includes membership on the Rowan-Cabarrus Community College Board of Trustees, Board of Governors of the UNC Charlotte Alumni Association, Board of Managers of the West Cabarrus YMCA, and Board of Directors of the Cabarrus Jaycees.

Richard, his wife Renee, and their son reside in Southern Pines, NC.

We are proud to announce Congressman Richard Hudson as a 2024 Quincy Jones Exceptional Advocacy Awardee.

2024 Hosts & Special Guests

Special Guest Photo
Congressman
Robert Aderholt
Special Guest Photo
Senator
Bob Casey
Special Guest Photo
Democratic Whip
Katherine Clark
Special Guest Photo
Congressman
Tom Cole
Special Guest Photo
Congresswoman
Rosa DeLauro
Special Guest Photo
Senator
John Hickenlooper
Special Guest Photo
Senator
Jerry Moran
Special Guest Photo
Delegate
Eleanor Holmes Norton
Special Guest Photo
Congresswoman
Cathy McMorris Rodgers
Special Guest Photo
Congressman
Pete Sessions
Special Guest Photo
Congressman
Pete Stauber
Special Guest Photo
Author & Speaker
David Egan
Special Guest Photo
GLOBAL Board Member
Frank Stephens
Special Guest Photo
ABC News'
Kyra Phillips
Special Guest Photo
Fox News'
John Roberts

Thank You to Our 2024 Supporters

Top Billboard – $6,000

AdvaMed
AT&T Services, Inc.
Arnold & Porter
Avoq
Clarion Capital Partners
David Egan & Family
Discover Financial Services
JMA Solutions
Koch Industries
Merck
Natalie & Guy Harrison
Narrative Strategies
Targeted Victory
Visa
The Whitten Family
Williams & Jensen

Silver – $10,000

Anna & John J. Sie Foundation
The Ashbrook Family
NCTA
Steampunk
Frank Stephens, GLOBAL Board Member

 

 

Platinum – $25,000

The Mullen Family

Gold – $15,000

American Express
Intuit
Kroger
PhRMA
PwC

2023 AcceptAbility Gala Highlights

2023 Photo Highlights

2023 Photos – Step & Repeat

2023 Photos – AcceptAbility Highlights

About Global Down Syndrome Foundation

The Global Down Syndrome Foundation (GLOBAL) is the largest non-profit in the U.S. working to save lives and dramatically improve health outcomes for people with Down syndrome. GLOBAL has donated more than $32 million to establish the first Down syndrome research institute supporting over 400 scientists and over 2,200 patients with Down syndrome from 33 states and 10 countries. Working closely with Congress and the National Institutes of Health, GLOBAL is the lead advocacy organization in the U.S. for Down syndrome research and medical care. GLOBAL has a membership of over 120 Down syndrome organizations worldwide and is part of a network of Affiliates – the Crnic Institute for Down Syndrome, the Sie Center for Down Syndrome, and the University of Colorado Alzheimer’s and Cognition Center – all on the Anschutz Medical Campus.

GLOBAL’s widely circulated medical publications include GLOBAL Medical Care Guidelines for Adults with Down Syndrome, Prenatal Testing and Information about Down Syndrome, and the award-winning Down Syndrome WorldTM magazine. GLOBAL also organizes the Be Beautiful Be Yourself Fashion Show, the largest Down syndrome fundraiser in the world. Visit globaldownsyndrome.org and follow us on social media (Facebook & Twitter: @GDSFoundation, Instagram: @globaldownsyndrome).

By registering, attending, or viewing at any time the Global Down Syndrome Foundation’s (the “Foundation”) AcceptAbility Gala event, or any reproductions, derivate works, or related content thereof (the “Event”), you agree to be bound by the following terms. You agree that the Event may contain copyrighted, trademarked or proprietary information or content protected by intellectual property or other laws. You agree to not instigate, maintain, or authorize any action, claim, or lawsuit against the Foundation, or any other person, on the grounds that the Event infringes any intellectual property rights or related laws. The Foundation does not make any express or implied warranties, endorsements, or representations whatsoever as to the Event or its content. You agree that the Foundation shall in no event be liable for any direct, indirect, incidental, consequential, or exemplary damages arising directly or indirectly from the Event. You hereby grant the Fountain the right to record, film, live stream, photograph, or capture your likeness in any media in connection with the Event and to distribute, broadcast, or use such media without any further approval by or compensation to you. You agree to not record, rebroadcast, repost, retransmit, or reproduce the Event, any of its content, or any portion thereof without the express written permission of the Foundation. Any public sharing, redistribution, or reproduction of the Event or any portion thereof in any form is strictly prohibited without the express written permission of the Foundation. The Foundation intends to pursue any and all remedies available to it under law or equity in response to any breach of these terms.

2024 GALA FACT SHEET

2024 GALA SPONSORSHIP OPPORTUNITIES

2024 GALA SPONSORSHIP PLEDGE FORM

2024 GLOBAL ACCOMPLISHMENTS

ROSA DELAURO AND TOM COLE GLOBAL ADVANCEMENT AWARDS

REGISTER TO VOLUNTEER

2024 GALA CHAIRS

Julie Riccio
Director, Regulatory Affairs and Public Policy, PwC

Amy Best Weiss
Executive VP, Global Government Affairs, American Express

2024 GALA COMMITTEE

Jan Adams
Founder & CEO, JMA Solutions

Cory Alexander
Strategic Advisor, UnitedHealth Group

John Ashbrook
Founding Partner, Cavalry LLC

Kevin Brennan
Principal, Bluebird Strategies

Emilie Eager
Communications Consultant

David Egan
Author, Advocate, & Speaker

Natalie Farr Harrison
SVP Government Relations, Avoq

Erin Book Mullen
Principal, Williams & Jensen, PLLC

Matthew Perin
Head of Government Relations and Regulatory Affairs, Kroger

Cliff Riccio
Senior Vice President & Chief, Government Relations, NCTA

Frank Stephens
Author, Actor, and Advocate

Salo Zelermyer
Vice President for Federal Affairs and Counsel, Valero

2024 CONGRESSIONAL HOSTS

Rep. Robert Aderholt
Senator Bob Casey
Rep. Katherine Clark
Rep. Tom Cole
Rep. Rosa DeLauro
Senator John Hickenlooper
Rep. Cathy McMorris Rodgers
Senator Jerry Moran
Rep. Eleanor Holmes Norton
Rep. Pete Sessions
Rep. Pete Stauber

2024 HONORARY CONGRESSIONAL COMMITTEE

Rep. Pete Aguilar
Rep. Don Bacon
Rep. Troy Balderson
Rep. Nanette Barragán
Rep. Stephanie Bice
Rep. Gus Bilirakis
Senator Marsha Blackburn
Rep. Lisa Blunt Rochester
Senator Katie Britt
Senator Sherrod Brown
Rep. Shontel Brown
Rep. Julia Brownley
Rep. Larry Bucshon
Senator Shelley Capito
Senator Ben Cardin
Rep. Buddy Carter
Rep. Lori Chavez-DeRemer
Rep. Emanuel Cleaver
Rep. James Clyburn
Rep. Gerry Connolly
Rep. Jason Crow
Rep. Diana DeGette
Rep. Jenniffer Gonzalez-Colon
Rep. Mark DeSaulnier
Rep. Debbie Dingell
Rep. Neal Dunn
Rep. Lois Frankel
Rep. Virginia Foxx
Rep. John Garamendi
Rep. Andrew Garbarino
Rep. Robert Garcia
Rep. Sylvia Garcia
Rep. Jimmy Gomez
Rep. Michael Guest
Rep. Brett Guthrie
Rep. Jahana Hayes
Senator Maggie Hassan
Senator Chris Van Hollen
Rep. Richard Hudson
Rep. Glenn Ivey
Rep. Hank Johnson
Rep. John Joyce
Rep. Jen Kiggans
Senator Amy Klobuchar
Rep. Young Kim
Rep. Rick Larsen
Rep. Susie Lee
Rep. Mike Levin
Rep. Ted Lieu
Rep. Morgan Luttrell
Senator Joe Manchin
Senator Ed Markey
Senator Roger Marshall
Rep. Thomas Massie
Rep. Doris Matsui
Rep. Lucy McBath
Rep. Gregory Meeks
Rep. Grace Meng
Rep. Mariannette Miller-Meeks
Rep. Marc Molinaro
Rep. Jared Moskowitz
Rep. Seth Moulton
Senator Markwayne Mullin
Senator Lisa Murkowski
Senator Chris Murphy
Senator Patty Murray
Rep. Jay Obernolte
Rep. Bill Pascrell
Rep. Scott Peters
Rep. Brittany Pettersen
Rep. Katie Porter
Rep. Amata Radewagen
Rep. Delia Ramirez
Rep. Jamie Raskin
Rep. Mike Rogers
Rep. John Rutherford
House Majority Leader Steve Scalise
Rep. Bradley Schneider
Democratic Leader Charles E. Schumer
Senator Kyrsten Sinema
Senator Cindy Hyde-Smith
Rep. Abigail Spanberger
Rep. Dale Strong
Rep. Dina Titus
Rep. Jill Tokuda
Rep. Paul Tonko
Rep. David Trone
Rep. Juan Vargas
Rep. Marc Veasey
Senator Elizabeth Warren
Rep. Debbie Wasserman Schultz
Rep. Maxine Waters
Senator Roger Wicker

2024 LIVE AUCTION DONORS

Carlo Tamburro
The Mullen Family
Elite Island Resorts
The Whitten Family

 

ACCEPTABILITY GALA MEDIA

Press Contact:

Shawn Flaherty
Email: shawn_flaherty@creativestratpr.com
Cell: 703-554-3609

Anca Elena Call
Email: acall@globaldownsyndrome.org
Cell: 720-320-3832

Singer Jordin Sparks Performs and Rep. Frankel and Rep. Hudson Honored at Global Down Syndrome Foundation’s May 9th AcceptAbility Gala in DC

Important NIH INCLUDE Legislation Aimed at Increasing Lifespan and Dramatically Improving Health Outcomes for People with Down Syndrome Introduced by GLOBAL Champion, Congresswoman Cathy McMorris Rodgers

CELEBS AND CONGRESS STEP UP FOR PEOPLE WITH DOWN SYNDROME IN DC!

GLOBAL Applauds Congress for $15 million Increase for NIH Down Syndrome/INCLUDE Research Initiative in Recently Passed Fiscal Year 2023 Omnibus Spending Bill

Watch Frank Stephens’ Congressional Testimony