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The Latest Research & Medical Care from Our Down Syndrome Experts

 

Important Updates to the NEW 2022 AAP Health Guidelines
for Children and Adolescents with Down Syndrome

Monday, July 25, 2022
12pm – 1:15pm MT

The GLOBAL Webinars are an important benefit for our Members. Held quarterly, these 1+ hour-long webinars cover topics across the lifespan. Webinars are FREE for GLOBAL Members and $10/webinar for non-Members. If you have a family member or dear friend with Down syndrome, this webinar is for you!

In this session, Dr. Nicole Baumer, MD, MEd discussed the new 2022 American Academy of Pediatrics Health Supervision Guidelines for Children and Adolescents with Down Syndrome. She reviewed key recommendations that remain the same, as well as important new changes in the 2022 clinical report. Attendees walked away with a better understanding of updates to the health supervision, screening, diagnosis and treatment of important medical, developmental, and mental health conditions in Down syndrome.

Dr. Nicole Baumer

Nicole Baumer, MD, MEd
Nicole Baumer, MD, MEd is a child neurologist / neurodevelopmental disabilities specialist at Boston Children’s Hospital / Harvard Medical School. Dr. Baumer is Director of the Boston Children’s Hospital Down Syndrome Program. She completed medical training at Harvard Medical school, pediatrics training at Massachusetts General Hospital, and Neurodevelopmental Disabilities Training at Boston Children’s Hospital. Dr. Baumer also studied Special Education, and has a Masters Degree in Education from Harvard Graduate School of Education.  She specializes in clinical care of children with Down syndrome, autism, ADHD, and other neurodevelopmental and behavioral disorders. Her research is focused on neurodevelopment in Down syndrome, and on interventions to optimize health, learning, and development. Dr. Baumer’s older sister, Heather, has Down syndrome and has been a huge inspiration in her life and career. 

Chase Perry

Chase Perry, GLOBAL Ambassador
Chase Turner Perry is a past GLOBAL Ambassador. He lives with his two younger brothers who love him, play with him and annoy him all at the same time. Chase adores his Mom and Dad and a large extended family who think he’s the leader of the band and admires his ability to light up any room. At Cherry Creek High School Chase’s favorite class is Spanish II where he enjoys speaking the language with a most perfect accent. He also can’t wait for his upcoming performance of Peter Pan, his theatre debut role is the narrator. Chase also enjoys playing the guitar, skiing, the Denver Broncos and most of all modeling.

2022 Webinars

COMING SOON – Register Now!

Thursday, October 6, 2022
Joaquín Espinosa, PhD
Register Now

Thursday, January 19, 2023
Dental Care Across the Lifespan of Patients with Down Syndrome
Steven Perlman, DDS and Marc Ackerman, DMD
Register Now

GLOBAL Family-Friendly Guideline

The Family-Friendly version of our groundbreaking GLOBAL Medical Care Guidelines for Adults with Down Syndrome is available NOW!

GLOBAL WEBINARS – MAKING AN IMPACT

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Q&A WITH OUR EXPERTS – A VALUABLE MEMBERSHIP BENEFIT

DEVELOPING AN INDIVDUALIZED FEEDING
PROGRAM FOR YOUR CHILD

Q: What are some of the first signs of trouble with feeding?

A: Some initial signs of feeding difficulties could include food/liquid refusal, growth concerns, coughing/choking with eating/drinking, difficulty moving food/liquid from the front to the back of the mouth, difficulty maintaining a calm alert state during feeding, self-limiting volume, prolonged feedings for an age-appropriate volume of foods, and challenges advancing food textures.

ALZHEIMER’S DISEASE IN DOWN SYNDROME:
UNDERSTANDING THE CONNECTION

Q: If you have had infantile or adult seizures are you more likely to get Alzheimer’s?

A: Typically, if you see late onset seizures in an older adult with Down syndrome, most often you will see that they also have underlying cognitive impairment and they have the pathology of Alzheimer’s disease. Having had seizures as a child, however, has no bearing on your risk of developing Alzheimer’s disease as an adult.

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