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The Latest Research & Medical Care from Our Down Syndrome Experts

 

Health Sexuality and Adults with Down Syndrome

Wednesday, January 17, 2024
12pm – 1:15pm MT

GLOBAL Webinars are an important benefit for our Members. Held quarterly, these 1+ hour-long webinars cover topics across the lifespan. Webinars are FREE for GLOBAL Members and $10/webinar for non-Members. If you have a family member or dear friend with Down syndrome, this webinar is for you!

We know that individuals with Down syndrome are social beings that want to have healthy relationships. In this session, Dr. Katie Frank will discuss:

– Why it is important to teach sexuality education

– What topics should be addressed 

– How to talk about these topics

Resources will also be shared, including visual supports, in addition to books and free online resources. 

Katie Frank, PhD
Katie Frank PhD, OTR/L, has worked as an occupational therapist at the Adult Down Syndrome Center since 2016 and in the field of occupational therapy since 2001. She also serves as the president of the Down Syndrome Medical Interest Group-USA. Dr. Frank earned her degree in occupational therapy from Saint Louis University and her PhD in Disability Studies from the University of Illinois at Chicago. Most of her work has been with individuals with Down syndrome of all ages. Dr. Frank’s experience includes treatment and evaluation as well as facilitating groups for people with Down syndrome, conducting trainings for staff, families, and caregivers, and offering a variety of other educational opportunities across the United States. Her research has been published in peer-reviewed journals.

2022 Webinars

Save The Date – Upcoming Webinars

Wednesday, January 17, 2024
Health Sexuality and Adults with Down Syndrome
Katie Frank, Ph.D.

Wednesday, April 17, 2024 
Take it With a Grain of Salt- Lab Interpretation in Down Syndrome
Kishore Vellody, M.D.

GLOBAL Family-Friendly Guideline

The Family-Friendly version of our groundbreaking GLOBAL Medical Care Guidelines for Adults with Down Syndrome is available NOW!

GLOBAL WEBINARS – MAKING AN IMPACT

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Q&A WITH OUR EXPERTS – A VALUABLE MEMBERSHIP BENEFIT

SLEEP APNEA ACROSS THE LIFESPAN
IN PEOPLE WITH DOWN SYNDROME

Q: How does one define moderate vs severe sleep apnea? What percent in oxygen saturation during OSA episodes is the average range?

A: They are defined based on the obstructive apnea hypopnea index, which is the number of obstructive episodes during sleep divided by the hours of sleep. Many patients experience drops in oxygen saturation during obstructive episodes. These drops are variable and range from very mild to severe down to 60-70%.

DOWN SYNDROME REGRESSION DISORDER: THE LATEST RESEARCH AND PROMISING TREATMENTS

Q: What age are you seeing regression symptoms starting?

A: I think that when we’ve looked at our population level data, the mean age at onset is about 18. We see a heavy clustering in the late teen years, early twenties, and the reason why we’ve come up with this particular age range is because younger than 10, the chances that this may be autism or some other biochemical or genetic phenomenon is much higher. And similarly, over 30 is where we start to kind of bridge that gap into early onset Alzheimer’s, although that is still very young. 

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