グローバル・ダウン症財団ブログ
Exclusive Interview with Edmonton Down Syndrome Society Executive Director Janet Tryhuba
Recently, Janet Tryhuba, Executive Director of the Edmonton Down Syndrome Society, met with GLOBAL Vice President – Strategic Alliances, David Tolleson, to discuss her career and to share more about one of Canada’s leading Down syndrome organizations. DAVID: Tell us a bit about yourself and how you got involved with the Edmonton Down Syndrome Society (EDSS). JANET: I’ve always worked for charities throughout my career. I worked for the YMCA for over 25 years in progressive roles and that really solidified my interest in working with people from a variety of backgrounds in topics of health and wellness. I have a degree in recreation administration. The YMC A taught me about […]
Posted on 6月 25, 2025
Global Down Syndrome Foundation & Down Syndrome Diagnosis Network Sign Multi-Year Collaboration Agreement
Denver, Stillwater, Minn. –June 3, 2025 – Today, Global Down Syndrome Foundation (GLOBAL) and Down Syndrome Diagnosis Network (DSDN) are proud to announce a multi-year collaboration agreement to educate moms of children with Down syndrome – particularly those in the early years – about important medical care resources and research opportunities. The agreement builds on GLOBAL and DSDN’s past five year collaboration and ensures hundreds of DSDN Rockin’ Mom® Retreat attendees can continue to participate in the GLOBAL Research & Medical Care Roundtable (GLOBAL Roundtable) as a free benefit. It also provides new collaboration and support for DSDN’s core parent resources, including peer-to-peer support groups and online communities hosted in the […]
Posted on 6月 03, 2025
Building the Future Gala Raises $212,000 to Support Down Syndrome Advocacy and Research
The Down Syndrome Alliance of the Midlands hosted its 7th annual Building the Future Gala on May 3rd, bringing together more than 400 passionate supporters, advocates, and community leaders for an unforgettable evening of celebration and impact. The event raised an incredible $212,000, with $10,000 of that total directly benefiting Global Down Syndrome Foundation in support of its groundbreaking research and advocacy work. Held in Omaha, the gala highlighted the powerful connections and partnerships that drive progress in the Down syndrome community. The Down Syndrome Alliance of the Midlands was proud to recognize GLOBAL as a key partner in this mission, whose support and leadership continue to inspire local and […]
Posted on 5月 29, 2025
Exclusive Interview with Down Syndrome Association of Jacksonville Executive Director Debbie Revels
Prior to her retirement last month, Debbie Revels led the Down Syndrome Association of Jacksonville for 36 years. Under her leadership, DSAJ has grown into one of the nation’s premier local Down syndrome organizations. In March, GLOBAL Vice President – Strategic Alliances, David Tolleson, caught up with Ms. Revels to talk about reflections on her career and why she’s not done contributing even as she transitions into retirement. DAVID: Tell us a bit about yourself and how you got involved with the Down Syndrome Association of Jacksonville? DEBBIE: In 1986, our son, Nick, was born and received a postnatal diagnosis. I was a very young mom, and he was our […]
Posted on 5月 29, 2025
GLOBAL Raises $450,000 at their AcceptAbility Gala as Celebrities & Congress Step Out for People with Down Syndrome
Global Down Syndrome Foundation Honored Reps. Aderholt and DeGette at Event that Featured Multiplatinum Artist & Actor Phillip Phillips and Inclusive Dance Team 2025 AcceptAbility Gala Step & Repeat Photos 2025 AcceptAbility Gala Program Highlights Photos Denver, CO, May 23, 2025 – On Wednesday, the Global Down Syndrome Foundation (GLOBAL) held its seventh annual AcceptAbility Gala, Washington DC’s largest fundraiser for people with Down syndrome, raising $450,000 to support important research and medical care benefiting people with Down syndrome. Representatives Robert Aderholt (R-AL) and Diana DeGette (D-CO) received GLOBAL’s highest honor, the Quincy Jones Exceptional Advocacy Award, and pledged their continued strong advocacy in Congress to improve the lives of people with Down syndrome. “At GLOBAL, we work […]
Posted on 5月 23, 2025
Sens. Hickenlooper and Moran and Reps. DeGette and Hudson Reintroduce The DeOndra Dixon INCLUDE Project Act
Bipartisan Legislation for Transformative NIH Down Syndrome Research – A Legacy for GLOBAL Ambassador DeOndra Dixon DENVER – May 22, 2025 — Sens. John Hickenlooper (D-CO) and Jerry Moran (R-KS) and Reps. Diana DeGette (D-CO) and Richard Hudson (R-NC) have reintroduced the DeOndra Dixon INCLUDE Project Act (S.1838/H.R. 3491). Joining as original cosponsors are Sens. Cory Booker (D-NJ) and Markwayne Mullin (R-OK) and Reps. Tom Cole (R-OK), Rosa DeLauro (D-CT), Pete Stauber (R-MN), and Eleanor Holmes Norton (D-DC). The bill provides statutory authority for the trans-NIH INCLUDE “Investigation of Co-occurring Conditions Across the Lifespan to Understand Down Syndrome” Project. As a result of Global Down Syndrome Foundation’s advocacy, the INCLUDE […]
Posted on 5月 22, 2025
GLOBAL Webinar with DS-Connect 2025
Recap of the DS-Connect and GLOBAL Webinar On May 6th, GLOBAL and DS-Connect hosted two important webinars in English and Spanish with over 150 attendees! In the pivotal webinar (in English and Spanish) co-hosted by the Global Down Syndrome Foundation and DS-Connect, Dr. Joaquín Espinosa, Executive Director of the Linda Crnic Institute for Down Syndrome, dove into the newly enhanced DS-Connect®: The Down Syndrome Registry. This upgraded platform aims to empower individuals with Down syndrome and their families to contribute valuable health information, thereby accelerating research and improving health outcomes. Dr. Espinosa emphasized that participation is voluntary and confidential, providing a secure environment for sharing health data. He also […]
Posted on 5月 21, 2025
United Coalition for Down Syndrome Condemns the Rise in the Use of the R-word
Freedom of Speech & Protecting Vulnerable Communities Are Not Mutually Exclusive CINCINNATI, DENVER, HOFFMAN ESTATES, Ill., WASHINGTON, D.C., WOBURN, Mass. (May 1, 2025) – Today, the United Coalition for Down Syndrome is speaking out against the alarming resurgence of the “R-word” in public discourse. At the same time, we are calling on individuals and organizations to take a stand, by pledging not to use this harmful slur. Numerous media outlets have reported a sharp increase in the word’s usage across television, radio, podcasts, social media, and the internet. A recent study examining social media in January 2025 revealed a staggering 207.5% rise in posts containing the R-word on X […]
Posted on 5月 13, 2025
Japanese 
English 
Albanian 
Bengali 
Chinese 
French 
Hindi 
Italian 
Russian 
Spanish (Chile) 
Spanish (Mexico) 
Swahili 
Ukrainian