ホーム
グローバル・ダウン症財団ブログ

グローバル・ダウン症財団ブログ

Exclusive Interview with Elly Kitaly, Executive Director of Chadron’s Hope Foundation

Nearly eight years ago, Elly Kitaly founded Chadron’s Hope Foundation after the birth of her son, Chadron. What began as a mother searching for information in a system with few resources has grown into a community-based organization providing early intervention services, psychosocial and economic support for mothers, and national awareness around Down syndrome in Tanzania. In this conversation, Elly shares her journey, the realities families face, and her vision for lasting change. GLOBAL: Elly, tell us a little bit about yourself and how you got involved with Chadron’s Hope Foundation. What led you to where it is today? ELLY: My name is Elly. I’m a mother of two boys, Chadron […]

Posted on 3月 30, 2026

Dr. Nicole Baumer To Receive Prestigious Pueschel/Tjossem Research Award

Earlier this month, the National Down Syndrome Congress announced that Dr. Nicole Baumer will receive its prestigious Pueschel/Tjossem Research Award at its convention in July in Orlando. Dr. Baumer is the Director of GLOBAL’s Affiliate, the Anna & John J. Sie Center for Down Syndrome. The award recognizes, “research that has contributed to more excellent knowledge and understanding of Down syndrome and has improved the lives of people with Down syndrome and their families.” The award can be given to an individual researcher, a program, or a research institute. Dr. Baumer has led research efforts on a variety of fronts, including a National Institutes of Health (NIH) INCLUDE Project grant […]

Posted on 3月 30, 2026

Sie Center Pilot Research Grant to Fund Pediatric Swallowing Screening

Arwen Jackson, a speech language pathologist at the Sie Center at Children’s Hospital Colorado (CHCO), along with her colleagues Jennifer Maybee (speech language pathologist) and Jenna Mathews (occupational therapist), were awarded the inaugural Sie Center Pilot Research Grant. The research team will utilize the grant to validate a screening tool that aims to better identify children at risk of developing pediatric feeding disorders during the transitional feeding stage. This period typically occurs in toddlerhood when complementary foods are introduced. It is also one of the developmental stages where children with Down syndrome often face significant feeding challenges and require targeted interventions. Children with Down syndrome are at a higher risk […]

Posted on 3月 23, 2026

GLOBAL Marks World Down Syndrome Day with Publication of Milestone Review of New Medical Guideline

For Immediate Release: Alex Lee, alee@globaldownsyndrome.org, D: (720) 548-5631 The Agency for Healthcare Research and Quality Systemic Review Publication Paves the Way for the GLOBAL Medical Care Guidelines for Adults with Down Syndrome 2nd Edition DENVER, CO – March 20, 2026 – The Global Down Syndrome Foundation (GLOBAL) is proud to announce that the Agency for Healthcare Research and Quality (AHRQ) systemic review of the new edition of the GLOBAL Medical Care Guidelines for Adults with Down Syndrome (GLOBAL Adult Guideline) has been published today in the prestigious Effective Health Care (EHC) Database. This is an important milestone in the 5-to-7-year rigorous development process required to publish professional, evidence-based medical guidelines. The […]

Posted on 3月 20, 2026

Emmy Award-Winning, Multi-Platinum Singer-Songwriter Rachel Platten & Ambassador Crystal Muro to Headline AcceptAbility Gala in Washington DC!

Sen. Shelley Moore Capito & Rep. Paul D. Tonko to Receive GLOBAL’s Highest Honor; Award-Winning Journalists Kyra Phillips & John Roberts to Emcee DENVER – March 10, 2026 – The Global Down Syndrome Foundation (GLOBAL) announced today that Emmy Award-winning, multi-platinum singer-songwriter Rachel Platten, and GLOBAL Ambassador Crystal Muro, will headline the 2026 AcceptAbility Gala on Wednesday, [...]

Posted on 3月 02, 2026

Global Down Syndrome Foundation DC Fly-In Is a Resounding Success

Rallies Bipartisan Support for the DeOndra Dixon INCLUDE Project Act We Need Your Help! Contact Your Members of Congress Today Get Inspired: View all photos The Global Down Syndrome Foundation (GLOBAL) concluded a highly successful three-day fly-in to Washington, D.C. earlier this month, bringing together 120 dedicated supporters from 22 states and Washington, DC to advocate for congressional passage of the DeOndra Dixon INCLUDE Project Act (H.R. 3491; S.1838). Throughout the fly-in, GLOBAL advocates met with 87 Members of Congress and their congressional staff. Meetings included key members of the House Appropriations and Energy & Commerce Committees and Senate Appropriations and HELP Committees to directly address the impact of the […]

Posted on 2月 24, 2026

Exclusive Interview with Lisa Holmquist, President of Down Syndrome Connections Nevada

Founded in 2022, Down Syndrome Connections Nevada has quickly established itself as a leading resource for people with Down syndrome and their families living in, and moving to, the Silver State. Recently, GLOBAL Vice President – Strategic Alliances, David Tolleson, met with Lisa Holmquist, President of Down Syndrome Connections Nevada (DSCNV), to learn more about this growing organization and its positive impact locally and throughout the western U.S. DAVID: Thank you for joining us today, Lisa! Will you please start by sharing a bit about yourself and what led you to found Down Syndrome Connections Nevada? LISA: My family moved to Nevada in 2013 after a couple of years […]

Posted on 2月 23, 2026

New Study Reveals Widespread Liver Dysfunction in Down Syndrome, Suggests Link to Diet

Crnic Institute findings published in Cell Reports highlight understudied abnormal liver function in people with Down syndrome and possible dietary interventions Researchers at the University of Colorado Anschutz Linda Crnic Institute for Down Syndrome (Crnic Institute) have uncovered compelling evidence that individuals with Down syndrome experience significant alterations in liver metabolism, including elevated levels of bile acids in the bloodstream and other biomarkers of liver dysfunction. The study, published in Cell Reports, suggests that these changes may be modifiable through diet, providing hope for improved health outcomes. Results Identify Unique Liver Dysfunction in Down Syndrome The liver is a dynamic and vital organ that removes toxins from blood, produces bile for fat digestion, metabolizes nutrients, […]

Posted on 1月 22, 2026

過去のエントリー