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グローバル・ダウン症財団ブログ

Exclusive Interview with Rachel Kroes, Executive Director of Down Syndrome Association of the Northern Territory

The Down Syndrome Association of the Northern Territory of Australia has a range of information, services and supports for families and people with Down syndrome. Recently, GLOBAL Vice President – Strategic Alliances, David Tolleson, met with Rachel Kroes, Executive Director of Down Syndrome Association of the Northern Territory (DSANT), to learn more about how they connect families and promote community inclusion. DAVID: G’day and thank you for joining us from Australia! To begin with, please tell us a bit about yourself. RACHEL: I have a daughter with Down syndrome, Molly. We live with my husband, John, here in Darwin. I have another daughter who lives in our national capital, […]

Posted on 7月 14, 2026

GLOBAL Self-Advocates Shine at International Down Syndrome Research Conference in Denver

More than 400 leading Down syndrome researchers, clinicians, self-advocates, and family members from over 20 countries gathered in Denver this month for the 6th Biennial Trisomy 21 Research Society (T21RS) International Conference, a week dedicated to advancing research and improving the lives of people with Down syndrome around the world. The conference welcomed attendees from across the globe, including five representatives from the National Institutes of Health (NIH), and showcased groundbreaking discoveries, innovative collaborations, and emerging research focused on helping individuals with Down syndrome live longer, healthier lives. As a proud founding member of T21RS, the Global Down Syndrome Foundation (GLOBAL) played a prominent role throughout the conference, with experts […]

Posted on 6月 29, 2026

GLOBAL’s Response to Social Media Influencers Who Spread Inaccurate Information About Down Syndrome

Read Michelle Sie Whitten’s Op-Ed in STAT, the Leading National Health, Medicine, and Scientific Discovery Publication Read the Full Op-Ed Here Prenatal & Newborn DS Info My Adult Daughter Has Down Syndrome. Her Life is Entirely Different From What Experts Expected Parents Facing Prenatal Down Syndrome Diagnoses Deserve Accurate Facts, Not Fearmongering EXCERPTS From the Op-Ed Written By Michelle Sie Whitten, GLOBAL Co-Founder, President & CEO and Proud Mom to Sophia Kay Whitten The genetic counselor handed me a tissue. “Don’t worry, Mrs. Whitten,” she said. “Eighty to ninety percent of people terminate these pregnancies. You can, too.” Twenty-three years ago, my husband, Tom, and I […]

Posted on 6月 25, 2026

Denver Teen with Down Syndrome Stars in Award-Winning Film Debuting on Netflix During Father’s Day Weekend

Color Book star Jeremiah Daniels will also appear before hundreds of the world’s leading Down syndrome scientists at an international conference co-organized by GLOBAL Check out Color Book In the News: The Denver Gazette | A Father-Son Story for Netflix … and Fathers Day The New York Times | ‘Color Book’ Review: Love and Grieving 9NEWS | Local Actor with Down Syndrome Stars in Netflix Movie CBS Colorado | Jeremiah Daniels Brings Energy & Attention to Down Syndrome Colorado Public Radio | As ‘Color Book’ Premieres on Netflix, We Catch Up with the Aurora Boy Who Stars in the Movie and His Parents as They Look to the Future KOSI […]

Posted on 6月 11, 2026

GLOBAL Down Syndrome Foundation Celebrates Historic Bipartisan Advancement of the DeOndra Dixon INCLUDE Project Act

House Energy & Commerce Committee Unanimously Advances Landmark Legislation as Congressional Leaders Honor DeOndra Dixon, John J. Sie, Michelle Sie Whitten, and GLOBAL’s Decades of Advocacy Watch the Full Committee Markup Program Highlights: – Opening Statements by Rep. DeGette + Chairman Guthrie [24:14-26:32] – Opening Statement by Rep. Tonko [28:12-58] – Full Floor Speeches [4:03:05-4:11:50] – Floor Speech Rep. Hudson [4:03:05-4:05:29 – 4:06:37-54] – Floor Speech Chairman Guthrie [4:05:29-4:06:37 – 4:06:54-4:07:07 – 4:09:46-56] – Floor Speech Rep. DeGette [4:07:07-4:09:46] – Floor Speech Rep. Tonko [4:09:56-4:11:50] – Voting Process [4:11:50-4:15:49] WASHINGTON, D.C. May 29, 2026 — Following a powerful and deeply moving bipartisan markup, the U.S. House Energy […]

Posted on 5月 29, 2026

Linda Crnic Institute’s Dr. Lina Patel Keynote Speaker at Midlands Gala

For the fifth consecutive year, the Down Syndrome Alliance of the Midlands–GLOBAL joint “Building the Future” gala in Omaha, Nebraska, was a HUGE success – raising needed funds for amazing local programs and life changing research. Guests were thrilled to hear from world-renowned behavior expert, Dr. Lina Patel, of GLOBAL’s affiliate, Linda Crnic Institute, who shared that funds raised at the event change lives locally – through programs like the Alliance’s Down Syndrome Education Series, adaptive swim, and cooking programs, and more – as well as nationally and internationally. Dr. Patel shared how every dollar given at the gala has a tangible benefit when it comes to elongating life and […]

Posted on 5月 26, 2026

GLOBAL’s AcceptAbility Gala Raises $430,000 for Down Syndrome Research and Medical Care as Celebrities and Congressional Leaders Rally Behind the Cause

Global Down Syndrome Foundation Honored Sen. Shelley Moore Capito and Rep. Paul Tonko at Event that Featured Award-Winning Multiplatinum Artist Rachel Platten and Inclusive Dance Team Washington, DC, May 21, 2026 – Last night, the Global Down Syndrome Foundation (GLOBAL) held its eighth annual AcceptAbility Gala, Washington DC’s largest fundraiser for people with Down syndrome, raising $430,000 to support important research and medical care benefiting people with Down syndrome. Senator Shelley Moore Capito (R-WV) and Representative Paul Tonko (D-NY) received GLOBAL’s highest honor, the Quincy Jones Exceptional Advocacy Award, and pledged their continued strong advocacy in Congress to improve the lives of people with Down syndrome. “Last night’s AcceptAbility Gala shows the world the incredible power of bipartisan […]

Posted on 5月 22, 2026

New Research Published in Hotel Business: Inclusive Hiring May be Hospitality’s Retention Cure

First-In-Kind National Survey Commissioned by Global Down Syndrome Foundation Reveals Barriers & Benefits to Tapping into the Disability Workforce Hotel Business Publication Research White Paper DENVER – April 30, 2026 – A groundbreaking new research report published in Hotel Business reveals that hiring people with Intellectual and Developmental Disabilities (IDD) could considerably mitigate the hospitality industry’s staggering 70-80% turnover. Commissioned by the Global Down Syndrome Foundation (GLOBAL) with support from the Daniels Fund, the multi-modal research includes a first-in-kind national survey of over 600 hospitality professionals featuring extensive interviews with senior executives, and a 20-week hospitality pilot training program for participants with Down syndrome at three Denver-area hotels: The […]

Posted on 4月 30, 2026

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