Blog de la Fondation GLOBAL du Syndrome de Down

GLOBAL Self-Advocates Build Muscle and Meaningful Connections in the Education Center

This July, twelve self-advocates have returned to GLOBAL's Education Center to participate in the fourth annual Fitness Program, a six-week program specifically designed to increase balance, muscle tone, flexibility, and endurance in individuals with Down syndrome.    The GLOBAL Fitness Program aims to: Introduce participants to effective exercise techniques and methods Improve participants’ ability to [...]

---

Posted on juillet 27, 2026

Crnic Institute Landmark Research Paves the Way for Personalized Medicine in Down Syndrome

New study in Nature Communications reveals unique molecular signatures associated with variable health outcomes AURORA, Colo. (July 21, 2026) — In a groundbreaking new study published in Nature Communications, researchers from the University of Colorado Anschutz Linda Crnic Institute for Down Syndrome (Crnic Institute) discovered unique biological processes altered amongindividuals with Down syndrome who have different [...]

---

Posted on juillet 24, 2026

U.S. House Unanimously Passes DeOndra Dixon INCLUDE Project Act – A Historic Victory for Down Syndrome Research

Landmark bipartisan legislation would permanently authorize the first NIH-wide Down syndrome research program and help ensure life-saving research continues for generations WASHINGTON, D.C., July 21, 2026 — Following unanimous passage by the House Energy and Commerce committee in late May, the U.S. House of Representatives unanimously passed the DeOndra Dixon NIH INCLUDE Project Act (H.R. [...]

---

Posted on juillet 21, 2026

Exclusive Interview with Rachel Kroes, Executive Director of Down Syndrome Association of the Northern Territory

  The Down Syndrome Association of the Northern Territory of Australia has a range of information, services and supports for families and people with Down syndrome. Recently, GLOBAL Vice President – Strategic Alliances, David Tolleson, met with Rachel Kroes, Executive Director of Down Syndrome Association of the Northern Territory (DSANT), to learn more about how […]

---

Posted on juillet 14, 2026

GLOBAL Self-Advocates Shine at International Down Syndrome Research Conference in Denver

More than 400 leading Down syndrome researchers, clinicians, self-advocates, and family members from over 20 countries gathered in Denver this month for the 6th Biennial Trisomy 21 Research Society (T21RS) International Conference, a week dedicated to advancing research and improving the lives of people with Down syndrome around the world. The conference welcomed attendees from […]

---

Posted on juin 29, 2026

GLOBAL’s Response to Social Media Influencers Who Spread Inaccurate Information About Down Syndrome

Read Michelle Sie Whitten’s Op-Ed in STAT, the Leading National Health, Medicine, and Scientific Discovery Publication   Read the Full Op-Ed Here   Prenatal & Newborn DS Info     My Adult Daughter Has Down Syndrome. Her Life is Entirely Different From What Experts Expected Parents Facing Prenatal Down Syndrome Diagnoses Deserve Accurate Facts, Not […]

---

Posted on juin 25, 2026

Denver Teen with Down Syndrome Stars in Award-Winning Film Debuting on Netflix During Father’s Day Weekend

Color Book star Jeremiah Daniels will also appear before hundreds of the world’s leading Down syndrome scientists at an international conference co-organized by GLOBAL Check out Color Book In the News: The Denver Gazette | A Father-Son Story for Netflix … and Fathers Day The New York Times | ‘Color Book’ Review: Love and Grieving […]

---

Posted on juin 11, 2026

GLOBAL Down Syndrome Foundation Celebrates Historic Bipartisan Advancement of the DeOndra Dixon INCLUDE Project Act

House Energy & Commerce Committee Unanimously Advances Landmark Legislation as Congressional Leaders Honor DeOndra Dixon, John J. Sie, Michelle Sie Whitten, and GLOBAL’s Decades of Advocacy   Watch the Full Committee Markup     Program Highlights:  – Opening Statements by Rep. DeGette + Chairman Guthrie [24:14-26:32] – Opening Statement by Rep. Tonko [28:12-58] – Full […]

---

Posted on mai 29, 2026