グローバル・ダウン症財団ブログ
Two-time Academy Award Nominee Jeremy Renner to Headline Global Down Syndrome Foundation’s Star-studded Event
GLOBAL’s Award-winning Be Beautiful Be Yourself Fashion Show will honor GLOBAL Ambassador Guion Macsovits and Quincy Jones Exceptional Advocacy Awardee Kevin Iannucci DENVER – July 24, 2025 – Today, Global Down Syndrome Foundation (GLOBAL) announced two-time Academy Award nominee Jeremy Renner and a fantastic celebrity lineup for its annual Be Beautiful Be Yourself Fashion Show, the largest Down syndrome fundraiser in the world. “I’m honored to be invited back to GLOBAL’s amazing event and to hang out with some of the coolest people who happen to have Down syndrome,” says Jeremy. “I’m excited to give back in a meaningful way, to help raise funds for research that will lead to […]
Posted on 7月 24, 2025
Top Down Syndrome Experts Gather in Texas to Share Transformative Research & Care at GLOBAL Roundtable
Global Down Syndrome Foundation and the National Down Syndrome Congress Attract Record NDSC Annual Convention Registrants DENVER, DALLAS, Jul 17, 2025 — Global Down Syndrome Foundation (GLOBAL) and the National Down Syndrome Congress (NDSC) proudly announce internationally renowned Down syndrome experts for the 12th annual GLOBAL Research & Medical Care Roundtable (GLOBAL Roundtable) to be held on Thursday, July 24th at the Hilton Anatole in Dallas. Offered as a free resource with NDSC Annual Convention registration, the event will cover cutting-edge scientific breakthroughs, clinical trials, medical best-practices and more. This year’s GLOBAL Roundtable has already reached a record 600 registrants and is nearing full capacity. A total of over 5,000 self-advocates, parents, and professionals have […]
Posted on 7月 17, 2025
Exclusive Interview with Edmonton Down Syndrome Society Executive Director Janet Tryhuba
Recently, Janet Tryhuba, Executive Director of the Edmonton Down Syndrome Society, met with GLOBAL Vice President – Strategic Alliances, David Tolleson, to discuss her career and to share more about one of Canada’s leading Down syndrome organizations. DAVID: Tell us a bit about yourself and how you got involved with the Edmonton Down Syndrome Society (EDSS). JANET: I’ve always worked for charities throughout my career. I worked for the YMCA for over 25 years in progressive roles and that really solidified my interest in working with people from a variety of backgrounds in topics of health and wellness. I have a degree in recreation administration. The YMC A taught me about […]
Posted on 6月 25, 2025
Global Down Syndrome Foundation & Down Syndrome Diagnosis Network Sign Multi-Year Collaboration Agreement
Denver, Stillwater, Minn. –June 3, 2025 – Today, Global Down Syndrome Foundation (GLOBAL) and Down Syndrome Diagnosis Network (DSDN) are proud to announce a multi-year collaboration agreement to educate moms of children with Down syndrome – particularly those in the early years – about important medical care resources and research opportunities. The agreement builds on GLOBAL and DSDN’s past five year collaboration and ensures hundreds of DSDN Rockin’ Mom® Retreat attendees can continue to participate in the GLOBAL Research & Medical Care Roundtable (GLOBAL Roundtable) as a free benefit. It also provides new collaboration and support for DSDN’s core parent resources, including peer-to-peer support groups and online communities hosted in the […]
Posted on 6月 03, 2025
Building the Future Gala Raises $212,000 to Support Down Syndrome Advocacy and Research
The Down Syndrome Alliance of the Midlands hosted its 7th annual Building the Future Gala on May 3rd, bringing together more than 400 passionate supporters, advocates, and community leaders for an unforgettable evening of celebration and impact. The event raised an incredible $212,000, with $10,000 of that total directly benefiting Global Down Syndrome Foundation in support of its groundbreaking research and advocacy work. Held in Omaha, the gala highlighted the powerful connections and partnerships that drive progress in the Down syndrome community. The Down Syndrome Alliance of the Midlands was proud to recognize GLOBAL as a key partner in this mission, whose support and leadership continue to inspire local and […]
Posted on 5月 29, 2025
Exclusive Interview with Down Syndrome Association of Jacksonville Executive Director Debbie Revels
Prior to her retirement last month, Debbie Revels led the Down Syndrome Association of Jacksonville for 36 years. Under her leadership, DSAJ has grown into one of the nation’s premier local Down syndrome organizations. In March, GLOBAL Vice President – Strategic Alliances, David Tolleson, caught up with Ms. Revels to talk about reflections on her career and why she’s not done contributing even as she transitions into retirement. DAVID: Tell us a bit about yourself and how you got involved with the Down Syndrome Association of Jacksonville? DEBBIE: In 1986, our son, Nick, was born and received a postnatal diagnosis. I was a very young mom, and he was our […]
Posted on 5月 29, 2025
GLOBAL Raises $450,000 at their AcceptAbility Gala as Celebrities & Congress Step Out for People with Down Syndrome
Global Down Syndrome Foundation Honored Reps. Aderholt and DeGette at Event that Featured Multiplatinum Artist & Actor Phillip Phillips and Inclusive Dance Team 2025 AcceptAbility Gala Step & Repeat Photos 2025 AcceptAbility Gala Program Highlights Photos Denver, CO, May 23, 2025 – On Wednesday, the Global Down Syndrome Foundation (GLOBAL) held its seventh annual AcceptAbility Gala, Washington DC’s largest fundraiser for people with Down syndrome, raising $450,000 to support important research and medical care benefiting people with Down syndrome. Representatives Robert Aderholt (R-AL) and Diana DeGette (D-CO) received GLOBAL’s highest honor, the Quincy Jones Exceptional Advocacy Award, and pledged their continued strong advocacy in Congress to improve the lives of people with Down syndrome. “At GLOBAL, we work […]
Posted on 5月 23, 2025
Sens. Hickenlooper and Moran and Reps. DeGette and Hudson Reintroduce The DeOndra Dixon INCLUDE Project Act
Bipartisan Legislation for Transformative NIH Down Syndrome Research – A Legacy for GLOBAL Ambassador DeOndra Dixon DENVER – May 22, 2025 — Sens. John Hickenlooper (D-CO) and Jerry Moran (R-KS) and Reps. Diana DeGette (D-CO) and Richard Hudson (R-NC) have reintroduced the DeOndra Dixon INCLUDE Project Act (S.1838/H.R. 3491). Joining as original cosponsors are Sens. Cory Booker (D-NJ) and Markwayne Mullin (R-OK) and Reps. Tom Cole (R-OK), Rosa DeLauro (D-CT), Pete Stauber (R-MN), and Eleanor Holmes Norton (D-DC). The bill provides statutory authority for the trans-NIH INCLUDE “Investigation of Co-occurring Conditions Across the Lifespan to Understand Down Syndrome” Project. As a result of Global Down Syndrome Foundation’s advocacy, the INCLUDE […]
Posted on 5月 22, 2025
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