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Bill and Will Harmonグローバル・ダウン症財団について

The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy. Formally established in 2009, the Foundation’s primary focus is to support the リンダ・クルニック・ダウン症研究所, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. Since Down syndrome is the least-funded genetic condition in the United States, fundraising and government advocacy to correct the alarming disparity of national funding for people with Down syndrome is a major goal.

Read more about us.

Our History

In 2006, John J. and Anna Sie organized a summit gathering some of the world’s best scientists, including Nobel Laureate Tom Cech, to explore the possibility of break-through research for people with Down syndrome. That same year, the idea of the first academic home for Down syndrome research was born.

Read more about the history of the Global Down Syndrome Foundation.

リーダーシップ

Meet the people behind the Global Down Syndrome Foundation, including our 取締役会. Also get to know the leaders at the Linda Crnic Institute for Down Syndrome そして アンナ・アンド・ジョン・J・シエ・ダウン症候群センター.

Read more about the Leadership of the Global Down Syndrome Foundation.

Global staffスタッフ

A group of highly talented and motivated people manage the day-to-day business of the Global Down Syndrome Foundation.

Read more about them here.

リンダ・クルニック・ダウン症研究所The Linda Crnic Institute for Down Syndrome

The Institute provides the world’s first fully integrated institute for Down syndrome with the highest quality basic, translational and clinical research, clinical trials, therapeutic development, medical care, education and advocacy in the pursuit of the mission.

リンダ・クルニック・インスティテュートについてもっと読む.

Anna and John J. Sie

John J. and Anna Sie

アンナ・アンド・ジョン・J・シエ・ダウン症候群センター

The Sie Center at Children’s Hospital opened its doors to patients with Down syndrome from all over the world and the US in November of 2010. The Sie Center is comprised of a multi-disciplinary “Dream Team” of experts with more than 80 years of combined experience in caring for children with Down syndrome and developmental disabilities.

Read more about the Anna and John J. Sie Center for Down Syndrome.