About the Global Down Syndrome Foundation
The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy. Formally established in 2009, the Foundation’s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. Since Down syndrome is the least-funded genetic condition in the United States, fundraising and government advocacy to correct the alarming disparity of national funding for people with Down syndrome is a major goal.
The Global Down Syndrome Foundation created and organizes the Be Beautiful Be Yourself Fashion Show – the single largest annual fundraiser benefitting people with Down syndrome. The Foundation organizes and funds many programs, conferences and grants, including the Dare to Play Football and Cheer Camps and the Global Down Syndrome Education Grant (awarded in conjunction with the National Down Syndrome Congress).
The Foundation is an inclusive organization without political or religious affiliation or intention.
Our Mission, Vision and Values
Our goal is to significantly improve the lives of people with Down syndrome through research, medical care, education and advocacy. We work to educate governments, educational organizations and society in order to affect legislative and social changes so that every person with Down syndrome has an equitable chance at a satisfying life.
A Personal Glimpse Into the Foundation’s Establishment
Formally established by Anna and John J. Sie in 2009 in Denver, Colorado, the Global Down Syndrome Foundation is a non-profit organization dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education and advocacy.
When the Sies’ first granddaughter was born with Down syndrome, the family personally experienced many disturbing situations around the diagnosis, healthcare and education of their granddaughter. Prenatally, they were given incorrect information about the lifespan their granddaughter would have, and the genetic counseling was focused on termination and not educated choices.
The Global Down Syndrome Foundation logo is a synthesis of design and science. The three bird-like elements in the design are actually stylized chromosomes. This is particularly appropriate given that Down syndrome occurs when an individual is born with three copies of the 21st chromosome instead of two. The darker shaded element represents the extra chromosome.
The Global Down Syndrome Foundation periodically posts exciting and rewarding opportunities to use your skills to further the mission of an exciting organization.