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Global Down Syndrome Foundation Leadership

GLOBAL’s leadership is made up of several boards including our: (1) Board of Directors, (2) Scientific & Medical Advisory Board, and (3) Membership Advisory Board. Our leadership also includes international spokespeople who go above and beyond to garner support for GLOBAL’s work.​

We are extremely fortunate to have some of the brightest, most dedicated leaders in their fields on our boards. Our members include Chancellors, Presidents, CEOs, Executive Directors, Scientists, Clinicians, Community Leaders, Family Members, and Self-advocates. ​

We rely on our board members to help us plan strategically into the future, to meet our annual deliverables, to assist us with challenges and opportunities, and to provide important guidance to achieve our mission, vision, values, and goals. Some of our board members also represent us in other countries. As with our staff, what GLOBAL’s leadership shares in common is a determination to measurably contribute to social justice and equity for children and adults with Down syndrome.

“Of all the forms of inequality, injustice in health is the most shocking and inhumane.”​
~ Martin Luther King Jr

National & International Leadership

Board of Directors

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Board Member
Fundación Mundial del Síndrome de Down
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Chancellor,
CU Anschutz Medical Campus
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President and CEO,
Children’s Hospital Colorado
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Chief Executive Officer,
Beacon Hill Investments/ Metropolitan Residential Advisors
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Distinguished Professor & CSO,
BioFrontiers Institute, CU Boulder
Howard Hughes Medical Institute
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Award-winning Actor, Writer, Producer, and Connective Tissue Podcaster
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Founder, Owner and CEO,
Jay’s Valet Parking LLC
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Owner, Vice Chairman, General Partner,
Colorado Rockies
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Managing Director,
AJS Ventures, LLC
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Principal,
Bravada Partners, LLC
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Vice Chancellor for Health Affairs and Dean, School of Medicine,
CU Anschutz Medical Campus
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Chancellor,
University of Colorado Boulder
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GLOBAL Board Chair,
Co-Trustee,
Anna & John J. Sie Foundation
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Author, Actor & Advocate,
Quincy Jones Exceptional Advocacy Awardee
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GLOBAL Board Treasurer,
Managing Director,
AJS Ventures LLC
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GLOBAL Board Secretary,
Legal Consultant,
Fundación Mundial del Síndrome de Down
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President, CEO & Co-Founder,
Fundación Mundial del Síndrome de Down

National & International Leadership

Scientific & Medical Care Advisory Board

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Director,
Anna and John J. Sie Center at Children’s Hospital Colorado
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Director Emeritus, Linda Crnic Institute for Down Syndrome
Professor, Molecular, Cellular and Developmental Biology, University of Colorado
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Professor of Medicine,
University of Pittsburgh Medical Center
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Director, Down Syndrome Clinic & Research Center,
Kennedy Krieger Institute, Associate Professor of Pediatrics, Johns Hopkins School of Medicine
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Distinguished Professor, Director Biofrontiers Institute, University of Colorado at Boulder
Former President of the Howard Hughes Medical Institute
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Medical Director,
Advocate Medical Group Adult Down Syndrome Center
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Executive Director, Linda Crnic Institute for Down Syndrome Professor,
Department of Pharmacology, University of Colorado
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Chairman, Founder, and CEO of SomaLogic;
Founder of NeXstar and Synergen
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Professor of Pathology and Laboratory Services, and Internal Medicine, Department of Pathology and Laboratory Services, and Department of Internal Medicine, Division of Hematology,
University of Arkansas for Medical Sciences
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Surgical Director, Complex Obstructive Sleep Apnea Center; Assistant Professor, UC Department of Otolaryngology, Head and Neck Surgery
University of Cincinnati
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Professor of Ophthalmology
University of Pittsburgh School of Medicine
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Professor and Interim Chair of the Department of Cell and Developmental Biology
University of Massachusetts Medical School
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Professor, Chief Scientific Officer, Biofrontiers Institute, University of Colorado at Boulder
Ex-officio Board Member, Global Down Syndrome Foundation
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Associate Professor of Clinical Practice, Division of General Internal Medicine,
University of Colorado School of Medicine, Anschutz Medical Center
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Chief of Pediatric Ophthalmology; Vice Chair of Pediatric Ophthalmology; The Ponzio Family Chair for Pediatric Ophthalmology
University of Colorado Anschutz Medical Campus
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Behavioral health expert in Down syndrome; former Director of Psychological Services,
Advocate Medical Group Adult Down Syndrome Center
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Associate Professor, Department of Psychiatry; Director of the Down Syndrome Behavioral Health Collaborative
University of Colorado Anschutz Medical Campus
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Clinical Professor, University of Kansas Medical Center,
Schools of Nursing and Medicine
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Director of Alzheimer’s Disease Programs at the Linda Crnic Institute for Down Syndrome; Director of Rocky Mountain Alzheimer’s Disease Center;
Professor and Vice Chair of Basic Research
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Assistant Professor, University of Colorado, Anschutz Medical Campus, School of Medicine, Ophthalmology; Director of Medical Student Education, School of Medicine, Ophthalmology
University of Colorado Anschutz Medical Campus
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Assistant Professor, University of Colorado, Anschutz Medical Campus, School of Medicine, Ophthalmology; Director of Medical Student Education, School of Medicine, Ophthalmology
University of Colorado Anschutz Medical Campus
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Professor, Family Medicine and Community Health, Cleveland Clinic Lerner College of Medicine, Case Western Reserve University School of Medicine;
Director of Developmental Disabilities – Practice-Based Research Network
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Clinical Assistant Professor of Medicine and Pediatrics;
Medical Provider, University of Pittsburgh Adult Down Syndrome Center

National & International Leadership

Membership Advisory Board

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Executive Director,
Asociación del Síndrome de Down de Minnesota
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Executive Director,
Down Syndrome Connection of the Bay Area (DSCBA)
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Executive Director,
Down Syndrome Guild of Dallas (DSG)
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Executive Director,
Asociación del Síndrome de Down de las Montañas Rocosas
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Executive Director,
Síndrome de Down Alabama
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Executive Director,
Asociación del Síndrome de Down del Noreste de Ohio
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Executive Director,
Alianza para el Síndrome de Down de Carolina del Norte
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Executive Director,
Asociación del Síndrome de Down de Jacksonville
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Executive Director,
Asociación del Síndrome de Down de Oklahoma Central
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Executive Director,
Asociación del Síndrome de Down del Gran San Luis
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Former Executive Director,
Asociación del Síndrome de Down de Florida Central

National & International Leadership

International Champions

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Music Icon and 28 Grammy Awardee
International Spokesperson,
Fundación Mundial del Síndrome de Down
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Award-winning Actor, Singer, and Comedian, International Spokesperson,
Fundación Mundial del Síndrome de Down
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Actor, 2018 Quincy Jones Exceptional Advocacy Awardee, International Spokesperson,
Fundación Mundial del Síndrome de Down
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World-renowned Supermodel, International Spokesperson,
Fundación Mundial del Síndrome de Down
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Award-Winning Actor, International Spokesperson and Board Member,
Fundación Mundial del Síndrome de Down
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Actress, International Spokesperson,
Quincy Jones Exceptional Advocacy Awardee
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Author, Actor & Advocate,
2016 Quincy Jones Exceptional Advocacy Awardee
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2019 Women’s Sports Foundation President 5x Olympic Medalist USA Bobsled