
(L-R) Megan Bomgaars, Dr. Diana Bianchi, Michelle Sie Whitten
PROGRAM FOR FAMILIES: ADVOCACY, AWARENESS, & FUNDRAISING
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Through a series of short presentations and Q&A, this session will address important issues for self-advocates, family members, and Down syndrome organizations regarding three areas that are intricately related – advocacy, awareness & fundraising for Down syndrome research. This year Global will be hosting a full morning program featuring 5 expert speakers (including Megan Bomgaars from the Emmy Award-winning series Born This Way), and cover the following topics: The Importance of Down syndrome Research & How Down Syndrome Organizations and Families Can Advocate for Government Funding, Self-Advocates with Down Syndrome Make it Happen!, Scientists with Family Members with Down Syndrome – Things to Consider Before Participating in Research and Engaging the Press, Self-Advocates & Celebrities to Raise Awareness & Funds.
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Speakers & Presentations
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Michelle Sie Whitten, MA
President & CEO, Global Down Syndrome Foundation
Executive Director, Anna and John J. Sie Foundation
Crnic Institute for Down Syndrome Board of Directors
T21RS Chair of Morning Session
The Importance of DS Research & How DS Organizations and Families Can Advocate for Government Funding
La importancia de investigacion medica para SD y como organizaciones se SD pueden abogar para mas financiacion gubernamental
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Megan Bomgaars
Emmy-award winning Actor, Global Spokesperson, Entrepreneur, Motivational Speaker, Self-Advocate
Self-Advocates with Down Syndrome Make it Happen! |
Keith Smith
Crnic Institute Human Trisome Project Program Manager
Katherine Waugh
Crnic Institute Postdoctoral Fellow
Down Syndrome World magazine science contributor
Scientists with Family Members with Down Syndrome – Things to Consider Before Participating in Research
Consideración en la participación en la investigación clínica
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Manuel Velázquez
Vice president of the 2019 T21RS Direction Committee (Board of Directors)
2nd Vice President of DOWN ESPAÑA
Engaging the Press, Self-Advocates & Celebrities to Raise Awareness & Funds
Interactuar con los medios, la prensa, auto-defensores, y estrellas para hacer crecer la conciencia social y recaudar fondos
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T21 Research Society Founding Members:

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