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The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy. Formally established in 2009, the Foundation’s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. Since Down syndrome is the least-funded genetic condition in the United States, fundraising and government advocacy to correct the alarming disparity of national funding for people with Down syndrome is a major goal.
The Global Down Syndrome Foundation hosts a variety of programs, conferences and events, in addition to partnering with organizations around the world to educate, advocate and improve the lives of people with Down syndrome. These initiatives often require press releases, which are listed by year below.
2013 Press Releases
2012 Press Releases
2011 Press Releases
2010 Press Releases
2009 Press Releases
2008 Press Releases
- In the News
- News Archive: 2010
- Be Beautiful, Be Yourself Fashion Show
- Conferences, Awards and Events
- Funding For Down Syndrome Research Shrinks
- Grants to spur Down syndrome education
- Hit Man: Quincy Jones in Reign Magazine
- News Archive: 2008
- News Archive: 2009
- News Archive: 2011
- 5 Questions with Beverly Johnson on Her Reality Show & Being a Spokesperson for Down Syndrome
- Be Beautiful Be Yourself Dance Program builds strength, self-confidence
- Beverly Johnson Returns to the Catwalk for a Cause
- DC Gala to Help Fund Down Syndrome Research
- Gladys Knight and Beverly Johnson Raise Awareness about Down Syndrome
- Jamie Foxx Serenades Sister with Heartfelt Song
- Quincy on a life well lived
- The 100-Yard Smile
- Stars Come Out At Be Beautiful Be Yourself Fashion Show
- News Archive: 2012
- News Archive: 2013
- Programs in the News
- Sie Center for Down Sydrome Marks First Anniversary, Becomes Largest Down Syndrome-Focused Center in the Nation
- Supermodel Beverly Johnson’s Mission To Redefine Beauty
- Press Releases
- 2008 Press Releases
- 2009 Press Releases
- 2009 Be Beautiful Be Yourself – Jet Set Fashion Show Kicks-Off At SAKS!
- Foundation Makes History with Inaugural Quincy Jones Exceptional Advocacy Award
- Sponsorships & Tickets On Sale Now Denver’s Premier Event featuring Honoree Music Icon Quincy Jones and Singer-songwriter Josh Kelley Be Beautiful Be Yourself Jet Set Fashion Show
- Universityof Denver Establishes the SIÉ CHÉOU-KANG Center for International Security and Diplomacy
- 2010 Press Releases
- Benefit for Global Down Syndrome Foundation raises over $1 million
- Campaign to Bring Awareness to the Least Funded Genetic Condition Garners Broad Local Support
- Colorado Ballet and the Anna and John J. Sie Center for Down Syndrome at the Children’s Hospital Launch Dare to Dance Class
- Colorado Ballet and the Anna and John J. Sie Center for Down Syndrome at the Children’s Hospital Launch Dare to Dance Class
- DeOndra Dixon Received Birthday Surprise from her Friends
- Trish Morris Named Program Director for the Global Down Syndrome Foundation
- 2011 Press Releases
- Americans overwhelmingly support government programs and research for people with Down syndrome
- Gladys Knight Performs and Sen. Harkin & Rep. Sessions Receive Awards at the Global Down Syndrome Foundation’s Gala & Fashion Show Début in Wash, D.C.
- Global Down Syndrome Foundation launches Dare to Play Soccer Camp with Regis University, Colorado Rapids, Adidas, Kroenke Sports Charities
- Global Down Syndrome Foundation Receives ICON Award
- John C. McGinley: Down the right path
- John Lynch Foundation and the Anna and John J. Sie Foundation Double the Number of Scholarships to Students
- Linda Crnic Institute for Down Syndrome Hires Internationally Recognized Education Specialist Patricia McVay
- Michelle Sie Whitten Receives the Inaugural National Football Foundation Community Outreach Award
- Supermodel Beverly Johnson joins Quincy Jones and John C. McGinley as International Spokesperson for the Global Down Syndrome Foundation
- Volunteers with Down Syndrome Contribute to a Special Experience for Denver Zoo Visitors
- 2012 Press Releases
- Alzheimer’s Association, Linda Crnic Institute, Global Down Syndrome Foundation Launch Research Grants Program
- Be Beautiful Be Yourself Dance Class featured in Colorado Ballet’s Spring Academy Showcase Sunday, May 20, 2012
- Cable TV pioneer Dr. John C. Malone makes impactful donation to the Global Down Syndrome Foundation
- Distribution Announced for Down Syndrome Prenatal Testing Pamphlet
- Down Syndrome Organizations Express Concern Over Reports of Jailed Pakistani Girl
- Global Down Syndrome Foundation 2012 Be Beautiful Be Yourself Raises $1.5 Million, Honors Jamie Foxx and Luke Zimmerman
- Global Down Syndrome Foundation joins forces with
Inspirato’s Inspired Giving - Global Down Syndrome Foundation launches Be Beautiful Be Yourself Hollywood Ball
- Global Down Syndrome Foundation names Abby Perlmutter Government Outreach and Development Manager
- Global Down Syndrome Foundation partners with Groupon Grassroots for “Decked out for Dare to Play”
- Global Down Syndrome Foundation representatives receive award, accolades at national convention in Washington, D.C.
- Global Down Syndrome Foundation Supports Alzheimer’s Awareness Month, Encourages Renewed Focus on Research and Care
- Global Down Syndrome Foundation, National Down Syndrome Congress Publish Hallmark Prenatal Testing Pamphlet for Pregnant Women
- Linda Crnic Institute for Down Syndrome Announces $1 Million in Major Challenge Grants
- Local Down syndrome organizations celebrate World Down Syndrome Day on March 21, 2012
- National Down Syndrome Congress, National Down Syndrome Society, and Global Down Syndrome Foundation express disappointment in federal funding decrease for people with Down syndrome
- National Down Syndrome Organizations Collaborate on Prenatal Testing Issues
- National Institutes of Health Establishes First National Patient Registry for Individuals with Down Syndrome
- New grants to spur educational programs for people with Down syndrome
- Redskins Coach Mike Shanahan and Super Bowl Champion
Ed McCaffrey reunite to coach individuals with Down syndrome - Redskins coach Mike Shanahan and Super Bowl Champion Ed McCaffrey reunite to coach individuals with Down syndrome
- Renowned scientist to galvanize Alzheimer’s research and clinical care
- Renowned Scientist, Tom Blumenthal, takes the helm of Linda Crnic Institute for Down Syndrome
- Sie Center for Down Syndrome marks first anniversary, becomes largest Down syndrome-focused Center in the U.S.
- United Nations passes historic resolution on
World Down Syndrome Day - World-renowned speech and language expert Dr. Libby Kumin to receive Global Down Syndrome Foundation Award of Excellence
- 2013 Press Releases
- Global Down Syndrome Foundation’s Hallmark Fundraiser “Be Beautiful Be Yourself Fashion Show” Wins Big at ICON Awards
- Huntington Potter, Director of Alzheimer’s Research at Crnic Institute for Down Syndrome, Inducted into National Academy of Inventors
- Joint Statement from Down Syndrome Organizations on Robert Ethan Saylor Case
- Linda Crnic Institute Co-Hosts Workshop on Cognition in Down Syndrome in Washington, D.C., on April 13-15
- Linda Crnic Institute for Down Syndrome Awards $1.3 Million in Grand Challenge Grants to 14 Researchers
- Reps. Cathy McMorris Rodgers, Chris Van Hollen to Be Honored at Be Beautiful Be Yourself DC Gala
- Sheryl Crow Headlines Be Beautiful Be Yourself Gala & Fashion Show
- World Down Syndrome Day Celebration at Children’s Hospital Colorado to Honor Sandy Wolf
- Research for People with Down Syndrome: National Institutes of Health Funding
- Our Heroes
- Global Down Syndrome Foundation Ambassadors
- Quincy Jones Exceptional Advocacy Award Recipients
- Cathy McMorris Rodgers: Global Down Syndrome Foundation
2013 Quincy Jones Exceptional Advocacy Award Recipient - Chris Van Hollen: Global Down Syndrome Foundation
2013 Quincy Jones Exceptional Advocacy Award Recipient - DeOndra Dixon: Global Down Syndrome Foundation
2009 Quincy Jones Exceptional Advocacy Award Recipient - Jamie Foxx: Global Down Syndrome Foundation
2012 Quincy Jones Exceptional Advocacy Award Recipient - John C. McGinley: Global Down Syndrome Foundation
2011 Quincy Jones Exceptional Advocacy Award Recipient - Karen Gaffney: Global Down Syndrome Foundation
2010 Quincy Jones Exceptional Advocacy Award Recipient - Luke Zimmerman: Global Down Syndrome Foundation
2012 Quincy Jones Exceptional Advocacy Award Recipient - Patrick Kennedy: Global Down Syndrome Foundation
2010 Quincy Jones Exceptional Advocacy Award Recipient - Rep. Pete Sessions: Global Down Syndrome Foundation
2011 Quincy Jones Exceptional Advocacy Award Recipient - Sen. Tom Harkin: Global Down Syndrome Foundation
2011 Quincy Jones Exceptional Advocacy Award recipient - Sujeet Desai: Global Down Syndrome Foundation
2011 Quincy Jones Exceptional Advocacy Award Recipient - Timothy Shriver: Global Down Syndrome Foundation
2010 Quincy Jones Exceptional Advocacy Award Recipient
- Cathy McMorris Rodgers: Global Down Syndrome Foundation
- Our Blog
LINDA CRNIC INSTITUTE FOR DOWN SYNDROME
Established in 2008, the Linda Crnic Institute for Down Syndrome is the first academic home for Down syndrome research in the United States. The mission of the Crnic Institute is to significantly improve the lives of people with Down syndrome by eradicating the medical and cognitive ill effects associated with the condition.
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