2020 Global Down Syndrome Foundation Research & Medical Care Roundtable at NDSC

Global Down Syndrome Foundation
Research & Medical Care Roundtable 2020

What Parents, Self-Advocates & Caregivers Should Know

Tuesday, June 25, 2020
1:00pm-4:00pm EDT

Access included with NDSC Convention From Your Couch registration.

On Thursday, June 25th, the Global Down Syndrome Foundation hosted the Research & Medical Care Roundtable. Co-organized with the National Down Syndrome Congress Convention From Your Couch, the Roundtable featured self-advocates, renowned scientists and medical professionals.
Key Takeaways include:

  • Everything you need to know about COVID-19 & Down syndrome
  • NIH Triples the Down syndrome research budget for groundbreaking science
  • Global Medical Care Guidelines for Adults with Down Syndrome
  • Improving health outcomes for people with Down syndrome

Speakers

DeOndra Dixon

Global Down Syndrome Foundation Ambassador;
Quincy Jones Exceptional Advocacy Award Recipient

Frank Stephens

Global Down Syndrome Foundation Ambassador;
Quincy Jones Exceptional Advocacy Award Recipient

Joaquín Espinosa, PhD

Executive Director, Linda Crnic Institute for Down Syndrome, Professor in the Department of Pharmacology at the University of Colorado School of Medicine, Co-Leader of the Molecular Oncology program at the University of Colorado Cancer Center, and founding Director of the Functional Genomics Facility at the University of Colorado

Ed Janoff, MD

Clinical Professor, Medicine-Infectious Disease, University of Colorado School of Medicine


Mike Ybarra, MD, FAAEM, FACEP

Deputy VP of Advocacy & Strategic Alliances, PhRMA

Michelle Sie Whitten, MA

President & CEO, Global Down Syndrome Foundation
Executive Director, Anna and John J. Sie Foundation
Crnic Institute for Down Syndrome Board of Directors

Karen Gaffney

Quincy Jones Exceptional Advocacy Award Recipient

Kelly SullivanKelly Sullivan

Boettcher Investigator, Assistant Professor, Linda Crnic Institute for Down Syndrome, Department of Pediatrics, Section of Developmental Biology, University of Colorado Anschutz Medical Campus

Kent McKelvey, MD

Associate Professor in Medical Genetics and Family Medicine, University of Arkansas for Medical Sciences

Mike Rafii, MD, PhD

Associate Professor of Clinical Neurology, Keck School of Medicine, University of Southern California; Medical Director of the Alzheimer’s Therapeutic Research Institute and the NIH-funded Alzheimer’s Clinical Trial Consortium; Principal Investigator for the Down Syndrome Biomarker Initiative; Steering Committee Member of the NIH-funded Alzheimer’s Biomarker Consortium

Melissa Parisi, MD, PhD

Chief of the Intellectual & Developmental Disabilities Branch, Eunice Kennedy Shriver NICHD National Institutes of Health, DS-Connect Registry Manager