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Global Down Syndrome Foundation is Dedicated to Significantly Improving the Lives of People with Down Syndrome
Through RESEARCH, MEDICAL CARE, EDUCATION, and ADVOCACY
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Resources

National Down Syndrome Organizations in the United States

Down Syndrome Organizations by State

International Down Syndrome Organizations

Other Organizations Helping People with Down Syndrome and Their Families

Down Syndrome Medical Care Centers in the U.S.


Medical care and guidelines for treating people with Down syndrome:

2020 GLOBAL Medical Care Guidelines for Adults with Down Syndrome (PDF)

2020 GLOBAL Medical Care Guidelines for Adults with Down Syndrome Checklist (PDF)

2022 American Academy of Pediatrics Health Supervision for Children and Adolescents with Down Syndrome (PDF)

2011 American Academy of Pediatrics Health Supervision for Children With Down Syndrome (PDF)

Healthcare Guidelines Record Sheet in English, courtesy of Anna and John J. Sie Center for Down Syndrome (PDF)

2011 American Academy of Pediatrics Health Supervision for Children With Down Syndrome in Spanish (Supervisión de la salud de niños con síndrome de Down) (PDF)

Healthcare Guidelines Record Sheet in Spanish, courtesy of Anna and John J. Sie Center for Down Syndrome (PDF)

 

  • Facts and FAQ About Down Syndrome
  • History of Down Syndrome
  • The Story of Two Syndromes
  • Words Can Hurt
  • Down Syndrome Misconceptions vs. Reality
  • Prenatal Testing Pamphlet
  • Resources

PHOTOS AND VIDEOS

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ADVOCACY

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Global Down Syndrome Foundation

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