Global Down Syndrome Foundation Hosts First Research & Medical Care Roundtable, Grammy-Winner Colbie Caillat Performs at Private Concert

Thursday, July 18, in Denver as part of National Down Syndrome Congress Annual Convention

DENVER (June 26, 2013) – On Thursday, July 18, the Global Down Syndrome Foundation will host its first Global Research & Medical Care Roundtable at Children’s Hospital Colorado. The Global Roundtable is co-organized with the National Down Syndrome Congress and supported by the Down Syndrome Medical Interest Group. It brings together nationally and internationally renowned Down syndrome experts presenting in the areas of Medical Care, Basic Research, Down Syndrome & Alzheimer’s Disease, Prenatal Testing Information, and National Institutes of Health Funding for Down Syndrome.

The full-day Global Roundtable will be followed by a private, invitation-only concert at the Paramount Theatre featuring Grammy-winner Colbie Caillat. Attendees to the Global Roundtable are automatically provided tickets to the private concert, and the foundation’s Global Ambassadors and other key supporters will be on hand to celebrate.

The Global Roundtable and the private concert are part of the 2013 National Down Syndrome Congress Annual Convention being held in Denver with record-breaking attendance. Attendees to the convention are estimated to reach over 3,000, and attendees to the Roundtable are over 400 to date. The majority of attendees are people with Down syndrome and their family members.

“We are so pleased to be able to work with NDSC and provide attendees this wonderful opportunity to hear from experts on topics such as sleep apnea, immune deficiency, leukemia, cognition and Alzheimer’s disease,” said Michelle Sie Whitten, executive director of the Global Down Syndrome Foundation.

David Tolleson, executive director of the National Down Syndrome Congress, agreed: “The number of families signed up for the Roundtable is a testament to the real interest there is in medical care and research for children and adults with Down syndrome.  It is also a testament to the Crnic Institute and Sie Center in Colorado who are strong and collaborative leaders in this area.”

The Global Roundtable features speakers including Thomas Blumenthal, Ph.D.; Huntington Potter, Ph.D.; Katheleen Gardiner, Ph.D.; Roger Reeves, Ph.D.; Dr. William Mobley, Ph.D.; Dr. Francis Hickey; John Crispino, Ph.D.; Yvonne Maddox, Ph.D.; Dr. George Capone; Dr. Peter D. Bulova; Dr. Peggy Kelley; Dennis McGuire, Ph.D.; Dean Hartley, Ph.D.; Dr. Ira Lott; and Jorge Busciglio, Ph.D. Global Ambassador DeOndra Dixon will also be presenting.

The Global Down Syndrome Foundation Research & Medical Care Roundtable will take place at Children’s Hospital Colorado, 13123 E. 16th Ave., Aurora, CO 80045, from 9 a.m. to 4 p.m. on Thursday, July 18.

The private Colbie Caillat concert offered to attendees of the Global Roundtable will start at 7:30 p.m. at the Paramount Theatre, 1621 Glenarm Place, Denver, CO 80202.

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About the Global Down Syndrome Foundation

The Global Down Syndrome Foundation is a public nonprofit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education and advocacy. Formally established in 2009, the Foundation has the primary focus of supporting the Linda Crnic Institute for Down Syndrome, the first academic home in the U.S. committed to research and medical care for people with the condition. Fundraising and government advocacy that corrects the alarming disparity of national funding for people with Down syndrome is a major short-term goal. The Foundation organizes the Be Beautiful Be Yourself Fashion Show — the single-largest annual fundraiser benefiting people with Down syndrome.  Programmatically the Foundation organizes and funds many programs and conferences, including the Dare to Play Football Camp with Ed McCaffrey, the Denver Broncos Cheerleaders Dare to Cheer program, the Global Down Syndrome Educational Series and the Dare to Play Soccer Camps. The Foundation is an inclusive organization without political or religious affiliation or intention.

About the Linda Crnic Institute for Down Syndrome

The Linda Crnic Institute for Down Syndrome is the first medical and research institute with the mission to provide the best clinical care to people with Down syndrome, and to eradicate the medical and cognitive ill effects associated with the condition. Established in 2008, the Crnic Institute is a partnership between the University of Colorado School of Medicine, the University of Colorado at Boulder, and Children’s Hospital Colorado. Headquartered on the Anschutz Medical Campus in Aurora, the Crnic Institute includes the Anna and John J. Sie Center for Down Syndrome at Children’s Hospital Colorado. It partners both locally and globally to provide life-changing research and medical care for individuals with Down syndrome. The Crnic Institute is made possible by the generous support of the Anna and John J. Sie Foundation and relies on the Global Down Syndrome Foundation for fundraising, education, awareness and government advocacy. It is a research and medical-based organization without political or religious affiliation or intention.

About the Anna and John J. Sie Center for Down Syndrome

The mission of the Anna and John J. Sie Center for Down Syndrome is to provide the best medical care to children with Down syndrome regardless of race, gender, medical condition and socioeconomic status, and as a supplement to primary care. The Sie Center is headquartered on the Anschutz Medical Campus in Colorado, and it is the clinical care center under the Linda Crnic Institute for Down Syndrome.


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