GLOBAL Membership Advisory Board

Sarah Curfman

Sarah Curfman
Executive Director, Down Syndrome Association of Minnesota (DSAMN)

Sarah Curfman has more than 20 years of experience as a nonprofit leader in Minnesota and across the country. She is the Executive Director of the Down Syndrome Association of Minnesota (DSAMN), a statewide nonprofit and advocacy organization dedicated to empowering, connecting, and celebrating individuals with Down syndrome and their families.

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Jennifer Ford

Jennifer Ford
Executive Director, Down Syndrome Guild of Dallas (DSG)

Jennifer Ford was named Executive Director of the Down Syndrome Guild of Dallas (DSG) in 2014. She began with the DSG in 2007. After a couple of years on staff, Jennifer utilized her Texas Educator Certificate and taught elementary special education in Castleberry ISD.

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Jim Hudson

Jim Hudson
Executive Director, Down Syndrome Association of Greater Cincinnati

Jim has been the Executive Director of the Down Syndrome Association of Greater Cincinnati (www.dsagc.com) since 2012. The DSAGC is one of the larger Ds affiliates in the country. Jim is a proven nonprofit leader with decades of experience in various roles around the country.

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Leah Janke

Leah Janke, BS, M.ED
Executive Director, Down Syndrome Alliance of the Midlands

Leah Janke is the Executive Director of the Down Syndrome Alliance of the Midlands, an organization that serves nearly 500 families who have a loved one with Down syndrome in the Omaha metro area. Her journey in the disabilities world began after her 3rd child was born with Down syndrome in 2011.

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Nancy LaBelle

Nancy LaBelle
Executive Director, Down Syndrome Connection of the Bay Area (DSCBA)

Nancy joined the DSCBA in 2008 after an executive level career with a fortune 500 corporation spanning more than 26 years. Nancy’s education, business experience, and a lifetime passion for human rights has fueled her success in taking the DSCBA to great heights since 2008. The DSCBA proudly provides empowering support services for Bay Area wide families and impactful opportunities for connection and growth to people with Down syndrome of all ages.

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Terri Lancaster

Terri Lancaster
Executive Director, Down Syndrome Association of Greater Richmond (DSAGR)

Terri Lancaster has been the Executive Director for the Down Syndrome Association of Greater Richmond (DSAGR) since 2014. DSAGR is a small but growing non-profit that serves over 650 families in the Central Virginia Area.

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Mac Macsovits

Mac Macsovits
Board Member of Rocky Mountain Down Syndrome Association (RMDSA)

Mac began volunteering for Special Olympics Colorado which eventually led to a paid position as the Director of Development for that organization. Having been a part of the RMDSA family he was aware that the organization was in the process of searching for a new Executive Director, so Mac formally joined RMDSA as the second Executive Director in February of 2009.

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Debbie Revels

Debbie Revels
Executive Director, Down Syndrome Association of Jacksonville

Debbie is the Executive Director of the Down Syndrome Association of Jacksonville. As a native to Jacksonville, Florida, she is one of the founding members of DSAJ and has been actively involved since its establishment in 1989.

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Julie Torzewski

Julie Torzewski, MSBC
Executive Director, Down Syndrome of Louisville

Julie Torzewski, MSBC, is passionate about making the world a better place. Her passion is reflected at Down Syndrome of Louisville, where she became the organization’s Executive Director in January 2019. Julie brought sixteen years of experience in non-profit fundraising, cultivating donor relationships, strategic planning, building partnerships, creating fundraising groups, developing staff, and managing multiple major events and campaigns to this leadership position.

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Lisa Wells

Lisa Wells
Executive Director, Down Syndrome Indiana

Lisa serves as the Executive Director of Down Syndrome Indiana. She began working for the organization in 2006. She has a Master’s degree in Strategic Leadership and Design from the University of Indianapolis and an undergraduate degree in Civic Leadership from Indiana University Purdue University at Indianapolis (I.U.P.U.I.). She loves delivering meals for Meals on Wheels and has been a volunteer for them for almost 20 years! Lisa resides in Fishers, Indiana with her husband, three children and their Golden Retriever, Sanibel.

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Amy Van Bergen

Amy Van Bergen
Former Executive Director, Down Syndrome Association of Central Florida

Amy Van Bergen has been a nonprofit leader since 1991 and served as executive director of the Down Syndrome Association of Central Florida until her retirement from fulltime work in 2016. Prior to that she was an award-winning newspaper and magazine editor. In 2010, she helped found Down Syndrome Affiliates in Action, the first trade association for parent-support groups and she also served on advisory groups for both the National Down Syndrome Congress and National Down Syndrome Society. Amy is the mother of five adult children, including her son Wils who has Down syndrome, as well as Mamey to six grandchildren.

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