GLOBAL Membership Advisory Board

Sarah Curfman

Sarah Curfman
Executive Director, Down Syndrome Association of Minnesota (DSAMN)

Sarah Curfman has more than 20 years of experience as a nonprofit leader in Minnesota and across the country. She is the Executive Director of the Down Syndrome Association of Minnesota (DSAMN), a statewide nonprofit and advocacy organization dedicated to empowering, connecting, and celebrating individuals with Down syndrome and their families.

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Jennifer Ford

Jennifer Ford
Executive Director, Down Syndrome Guild of Dallas (DSG)

Jennifer Ford was named Executive Director of the Down Syndrome Guild of Dallas (DSG) in 2014. She began with the DSG in 2007. After a couple of years on staff, Jennifer utilized her Texas Educator Certificate and taught elementary special education in Castleberry ISD.

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Jim Hudson

Jim Hudson
Executive Director, Down Syndrome Association of Greater Cincinnati

Jim has been the Executive Director of the Down Syndrome Association of Greater Cincinnati (www.dsagc.com) since 2012. The DSAGC is one of the larger Ds affiliates in the country. Jim is a proven nonprofit leader with decades of experience in various roles around the country.

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Leah Janke

Leah Janke, BS, M.ED
Executive Director, Down Syndrome Alliance of the Midlands

Leah Janke is the Executive Director of the Down Syndrome Alliance of the Midlands, an organization that serves nearly 500 families who have a loved one with Down syndrome in the Omaha metro area. Her journey in the disabilities world began after her 3rd child was born with Down syndrome in 2011.

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Nancy LaBelle

Nancy LaBelle
Executive Director, Down Syndrome Connection of the Bay Area (DSCBA)

Nancy joined the DSCBA in 2008 after an executive level career with a fortune 500 corporation spanning more than 26 years. Nancy’s education, business experience, and a lifetime passion for human rights has fueled her success in taking the DSCBA to great heights since 2008. The DSCBA proudly provides empowering support services for Bay Area wide families and impactful opportunities for connection and growth to people with Down syndrome of all ages.

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Debbie Revels

Debbie Revels
Executive Director, Down Syndrome Association of Jacksonville

Debbie is the Executive Director of the Down Syndrome Association of Jacksonville. As a native to Jacksonville, Florida, she is one of the founding members of DSAJ and has been actively involved since its establishment in 1989.

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Erin Suelmann

 

Erin Suelmann
Executive Director, Down Syndrome Association of Greater St. Louis

Since 2016, Erin has served as Executive Director of DSAGSL, where she previously served as Director of Programs. Among other volunteer positions, Erin has served as both Secretary and Vice President of Down Syndrome Affiliates in Action. Her passion for the disability field comes from life with her brother, Andrew, who happens to have Down syndrome and who now lives just a few houses away!


Julie Torzewski

Julie Torzewski, MSBC
Executive Director, Down Syndrome of Louisville

Julie Torzewski, MSBC, is passionate about making the world a better place. Her passion is reflected at Down Syndrome of Louisville, where she became the organization’s Executive Director in January 2019. Julie brought sixteen years of experience in non-profit fundraising, cultivating donor relationships, strategic planning, building partnerships, creating fundraising groups, developing staff, and managing multiple major events and campaigns to this leadership position.

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Amy Van Bergen

Amy Van Bergen
Former Executive Director, Down Syndrome Association of Central Florida

Amy Van Bergen has been a nonprofit leader since 1991 and served as executive director of the Down Syndrome Association of Central Florida until her retirement from fulltime work in 2016. Prior to that she was an award-winning newspaper and magazine editor. In 2010, she helped found Down Syndrome Affiliates in Action, the first trade association for parent-support groups and she also served on advisory groups for both the National Down Syndrome Congress and National Down Syndrome Society. Amy is the mother of five adult children, including her son Wils who has Down syndrome, as well as Mamey to six grandchildren.

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