GLOBAL Research & Medical Care Roundtable at NDSC
Global Down Syndrome Foundation Research & Medical Care Roundtable
What Parents, Self-Advocates & Caregivers Should Know
Save the Date: Thursday, July 25, 2024
NDSC 52nd Annual Convention, JW Marriott, Phoenix, Arizona
Co-Organized with the NDSC, the GLOBAL Roundtable is a free benefit and features internationally renowned scientists and medical professionals. Important topics to be covered include updates on:
- Pediatric Care
- Adult Care
- Important Clinical Trials
- Behavioral health
- Obstructive Sleep apnea
Michelle Sie Whitten, MA
Co-Founder, President & CEO, Global Down Syndrome Foundation
GLOBAL Update & Moderator Introductions
Joaquín Espinosa, PhD
Executive Director, Linda Crnic Institute for Down Syndrome; Professor in the Department of Pharmacology at the University of Colorado School of Medicine
Michael Rafii, MD, PhD
Professor of Clinical Neurology at the Keck School of Medicine and Medical Director of the Alzheimer’s Therapeutic Research Institute (ATRI)
Down Syndrome in a New Era of Alzheimer’s Disease
Christine Heubi, MD
Surgical Director, Complex Obstructive Sleep Apnea Center
Assistant Professor, UC Department of Otolaryngology, Head and Neck Surgery; Cincinnati Children’s Hospital
Obstructive Sleep Apnea in People with Down Syndrome and the Role of Hypoglossal Nerve
Lina Patel, PsyD
Associate Professor of Child and Adolescent Psychiatry at the University of Colorado School of Medicine
Differentiating Challenging Behaviors from Mental Health Concerns: Considerations for Getting Support
Nicole Baumer, MD, MEd
Director, Down Syndrome Program; Assistant, Department of Neurology and Developmental Medicine Center; Boston Children’s Hospital
Co-occurring Neurodevelopmental Conditions in Down Syndrome
Sujata Bardhan, PhD, MS
Program Director in the Intellectual and Developmental Disabilities Branch at the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), National Institutes of Health (NIH)
The NIH INCLUDE Project: Accelerating Research Discoveries for People with DS Across the Lifespan
Bryn Gelaro, MA
Research & Medical Care Senior Director, Global Down Syndrome Foundation
Welcome Remarks/Medical Care Guidelines