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Advocacy Center – Annual GLOBAL DC Fly-In
About the GLOBAL DC Fly-In
GLOBAL was established, in part, to change the fact that Down syndrome was the least funded genetic condition at our National Institutes of Health (NIH) for nearly two decades. To this end, since 2009, GLOBAL has been organizing Congressional Briefings and DC Fly-Ins, and supporting Congressional Hearings.
The results have been astounding with GLOBAL leading the passing of the first Down syndrome-specific legislation that has appropriated over $440 million for NIH Down syndrome research and medical care since 2018. In that year, we successfully advocated for the establishment of the first trans-NIH Down syndrome research program called the INCLUDE Project.
Erin Suelmann
Executive Director of the Gateway Down Syndrome Association
GLOBAL Advocacy By the Numbers:
$443M
Funding from NIH
Twenty-five
Briefings & Hearings
4,800
Advocate Participation
180
Member Meetings
GLOBAL DC Advocacy Fly-In
Join Us in February 2027!
Attend a Congressional Briefing
Meet Members of Congress
Support Life-Saving Research
Meet Other AWESOME Advocates
Tuesday, February 9 – Thursday, February 11, 2027
* Please note Registration is Free and DC Ubers & DC Food are Provided By GLOBAL; Advocates are Responsible for Transportation to and from DC, Hotel & Other Expenses
