Archive for the ‘Press Releases’ Category

Largest Down syndrome fundraiser in the world attracts over 1,400 guests from 16 states and 12 countries, raising funds for life-saving and transformative research and medical care

 

DENVER –November 21, 2023

On Saturday, November 18, Global Down Syndrome Foundation (GLOBAL) raised $2.5 million at their Be Beautiful Be Yourself Fashion Show, held at the Sheraton Denver Downtown Hotel. Now in its 15th year, GLOBAL’s marquee event is the largest fundraiser for Down syndrome in the world, raising a cumulative $28 million since its inception.

The star-studded evening was dedicated to beloved GLOBAL Co-Founder, Anna Sie, who sadly passed away on September 20 after a long and valiant battle with cancer. Anna, a devoted wife, mother, grandmother, sister, aunt, loyal friend, and mentor is remembered as a generous philanthropist who co-founded GLOBAL, the Crnic Institute, the Sie Center for Down Syndrome, the Alzheimer’s & Cognition Center, the GLOBAL Inclusive Program and so much more. Anna made it her life’s mission to ensure her granddaughter, Sophia, and all people with Down syndrome have a brighter future.

“Tonight, as we gather to celebrate the brilliance and beauty of individuals with Down syndrome, we hold my mother, Anna Sie, in our hearts,” said Michelle Sie Whitten, President and CEO. “Her legacy is reflected in every smile on the runway, in every breakthrough in our research, and in the ongoing commitment of GLOBAL to ensure that every individual with Down syndrome is valued and included in society. We are overwhelmed by the continued support that helps us advance our mission, and we vow to continue my mother’s work with the same vigor and love she exemplified.”

To kick off the night, red carpet appearances were made by acclaimed actor and author Rob Lowe; Academy Award-nominated and award-winning actress Laura Linney; award-winning actor John C. McGinley; beloved actress from the longest primetime TV drama on ABC, Grey’s AnatomyCaterina Scorsone, and her costars Kevin McKidd, Anthony Hill, Alexis Floyd and Jake Borelli;  actress and singer Danielle Savre; NFL Hall of Famer Terrell Davis; model, actress, and entrepreneur Beverly Johnson; actors Max Carver, Kevin Iannucci, Matthew Von der Ahe, and James Day Keith; and model and actress Amanda Booth. Award-winning local NBC anchors Kim Christiansen and Mark Koebrich emceed the event.

Later in the evening, 2023 GLOBAL Ambassador Grace Brennan, Denver Broncos cheerleaders Ariana and Emily, and 2023 Miss CO Volunteer Karlynn Trujillo joined the line-up and rocked the runway, which featured 21 brilliant and beautiful models who happen to have Down syndrome.

The Ambassador and celebrities joined GLOBAL in honoring the 2023 Quincy Jones Exceptional Advocacy Awardees Madison Tevlin and Bobby Farrelly. Farrelly, an internationally recognized director known for Dumb & Dumber, There’s Something About Mary, Hall Pass and more, is a longtime advocate for people who are differently-abled. Earlier this year, Farrelly released the hit movie Champions, a heartfelt comedy that centers around a basketball coach who helms a team of players with intellectual disabilities. The movie stars Woody Harrelson, Kaitlin Olsen, and Madison Tevlin, a multi-talented model, actor, and self-advocate who has Down syndrome.

Upon receiving her award following an impassioned introduction by Champions co-star Woody Harrelson, Tevlin said: “Being seen as a role model is not something I ever dreamed of, and that’s because I’m just me being me. I encourage everyone to do the same. Thank you so much to GLOBAL for this honor. I will forever cherish this award.”

“This is without question the greatest honor of my life,” said Farrelly in his acceptance speech. “I am profoundly humbled and extremely grateful to be recognized by the Down syndrome community.” Farrelly continued, “I’ve worked with some incredible leading ladies in my day, but I’ve never worked with any actress who lights up the screen quite like Madison Tevlin. She’s beautiful and strong and proud to be who she is. And, as Woody found out, she has a way of stealing every scene she’s in.”

Powerhouse philanthropists Luisa Law and Amanda Precourt proudly served as this year’s Co-Chairs. Past event chairs include Amanda Booth, Lou III and Jill Rotella, Tom and Michelle Whitten, Kacey Bingham and Brittany BowlenPeter KudlaMaureen Regan CannonAnna and John J. SieSharon Magness Blake and Ernie BlakeRicki Rest, and Nancy Sevo.

Laura Linney rocks the runway with models Lou Rotella and Ari Hochman

Auctioneer Grant Snyder led GLOBAL’s most successful cash call in honor of Anna Sie and sold once-in-a-lifetime packages including a Bobby Farrelly red carpet film premiere invite; a golf foursome with NFL Hall of Famer Terrell Davis; a private dinner with Denver Broncos’ Alex Singleton and two other players; a beautiful painting donated by world-renowned artist William Matthews; a beautiful Hyde Park Jewelers diamond and topaz necklace and earrings modeled by Amanda Booth, and the Selkie dress she was wearing; a luxury Sicily holiday including multiple catered dinners donated by Riccardo Mazzeo and Three Tomatoes Catering; a private plane and Austin FC experience donated by Amanda PrecourtAnthony Precourt/Austin FC; dinner with Denver Nuggets legend Bill Hanzlik at renowned Matsuhisa restaurant donated by Jay Mills; a private sushi and sake dinner at developer and designer Amanda Precourt’s new mixed-use art gallery and home, The Cookie Factory.

Proceeds from GLOBAL’s Be Beautiful Be Yourself Fashion Show help underwrite life-changing and life-saving research and medical care at GLOBAL’s affiliates – the Crnic Institute for Down Syndrome, Alzheimer’s & Cognition Center, and the Sie Center for Down Syndrome at Children’s Hospital Colorado all at the Anschutz Medical Campus. The fashion show would not be possible without the generosity of GLOBAL’s Leadership CirclesponsorsAmbassadorsQ-Awardeesmodels, Down syndrome partner organizations, celebrities, self-advocates and families.

To learn more about the Be Beautiful Be Yourself Fashion Show, view photos, or to donate, visit bebeautifulbeyourself.org.

To learn more about the Global Down Syndrome Foundation, visit www.globaldownsyndrome.org.

About Global Down Syndrome Foundation:

The Global Down Syndrome Foundation (GLOBAL) is the largest non-profit in the U.S. working to save lives and dramatically improve health outcomes for people with Down syndrome. GLOBAL has donated more than $32 million to establish the first Down syndrome research institute supporting over 400 scientists and over 2,400 patients with Down syndrome from 33 states and 10 countries. Working closely with Congress and the National Institutes of Health, GLOBAL is the lead advocacy organization in the U.S. for Down syndrome research and care. GLOBAL has a membership of over 110 Down syndrome organizations worldwide, and is part of a network of Affiliates – the Crnic Institute for Down Syndrome, the Sie Center for Down Syndrome, and the University of Colorado Alzheimer’s and Cognition Center – all on the Anschutz Medical Campus.

GLOBAL’s widely circulated medical publications include Global Medical Care Guidelines for Adults with Down SyndromePrenatal & Newborn Down Syndrome Information, and the award-winning magazine Down Syndrome World™. GLOBAL also organizes the Be Beautiful Be Yourself Fashion Show, the largest Down syndrome fundraiser in the world. Visit globaldownsyndrome.org and follow us on social media (Facebook & Twitter: @GDSFoundation, Instagram: @globaldownsyndrome).

PRESS CONTACTS:
Emily Johnston, emily@ej-pr.com, C: (818) 861-5665
Anca Elena Call, acall@globaldownsyndrome.org, C: (720) 320-3832

 

Celebrate the Season by Giving a Gift to Those in Need through the Festive ‘Light the World’ Charity Vending Machines from November 16 through Christmas Eve

 

DENVER –November 16, 2023 – Giving Machines Denver has chosen Global Down Syndrome Foundation (GLOBAL) to highlight through their ‘Light the World’ charity vending machines from November 16 through Christmas Eve. The “Grand Unwrapping” ceremony featured Denver Mayor Mike Johnston, Global Down Syndrome Foundation President & CEO Michelle Sie Whitten, Linda Crnic Institute for Down Syndrome Executive Director Dr.  Joaquín Espinosa, and GLOBAL self-advocates Daniel Walshe and Charlie Moylan, and others. During the “Light the World” Campaign, visitors to Cherry Creek North Winter Wonderland at the entrance to the Holiday Market, 2nd Avenue and Fillmore Street, can give holiday gifts to children and adults with Down syndrome.

Giving is easy. All you do is select an item, swipe a debit or credit card and a card representing your gift drops into a bin so you can watch the donations pile up. Donations are eligible for tax deductions and may also be eligible for employer matching programs.

The following donations can be made to GLOBAL through the ’Light the World’ charity vending machines:

Fitness Equipment $10 – Give the gift of better health by supplying a child with Down syndrome bands, balls, weights, or a yoga mat.

Kitchen Tools $15 – Give the gift of healthy eating to a cook-in-training with Down syndrome with essentials for a culinary class.

Stuffed Animal $25 – Give the gift of a snuggle to patients with Down syndrome participating in clinical trials.  

Recital Costume $40 – Give the gift of a beautiful recital costume to a child with Down syndrome participating in GLOBAL’s ballet classes.

Fashion Show Outfit $150 – Give the gift of high-end runway outfit for our children and adults with Down syndrome participating in the Be Beautiful Be Yourself Fashion Show!

The other important charities chosen by Giving Machines Denver for 2023 are Colorado Hosting Asylum Network, The Delores Project, The Salvation Army Intermountain Division, and Volunteers of America – Camp POSTCARD.

“Over the last three years, Denverites have given more than 1.6 million dollars while they’re out shopping for their friends and family to those who are most in need,” says Mayor Mike Johnston. “So this is a great chance for every Denverite to give back to those who need it the most during the holiday season.”

“We are so grateful to the Mayor, Giving Machines Denver, Cherry Creek North, and the Church of Latter-Day Saints,” says Michelle Sie Whitten, GLOBAL President & CEO. “With their support we are able to help more children and adults with Down syndrome during the holiday season, and to educate more people in Denver regarding these amazing people we serve.”

###

About Global Down Syndrome Foundation

The Global Down Syndrome Foundation (GLOBAL) is the largest non-profit in the U.S. working to save lives and dramatically improve health outcomes for people with Down syndrome. GLOBAL has donated more than $32 million to establish the first Down syndrome research institute supporting over 400 scientists and over 2,400 patients with Down syndrome from 33 states and 10 countries. Working closely with Congress and the National Institutes of Health, GLOBAL is the lead advocacy organization in the U.S. for Down syndrome research and care. GLOBAL has a membership of over 110 Down syndrome organizations worldwide, and is part of a network of Affiliates – the Crnic Institute for Down Syndrome, the Sie Center for Down Syndrome, and the University of Colorado Alzheimer’s and Cognition Center – all on the Anschutz Medical Campus. 

GLOBAL’s widely circulated medical publications include Global Medical Care Guidelines for Adults with Down Syndrome, Prenatal & Newborn Down Syndrome Information and the award-winning magazine Down Syndrome WorldTM. GLOBAL also organizes the Be Beautiful Be Yourself Fashion Show, the largest Down syndrome fundraiser in the world. Visit globaldownsyndrome.org and follow us on social media (Facebook & Twitter: @GDSFoundation, Instagram: @globaldownsyndrome). 

 

 

This Year’s Be Beautiful Be Yourself Fashion Show is Dedicated to the Memory of GLOBAL’s Beloved Co-Founder Anna Sie

 

DENVER –October 26, 2023 Global Down Syndrome Foundation (GLOBAL) is honored to announce a spectacular and star-studded line-up for its annual Be Beautiful Be Yourself Fashion Show, the largest Down syndrome fundraiser in the world. In its 15th year, the award-winning event is Co-Chaired by powerhouse philanthropists Luisa Law and Amanda Precourt, and will be held on Saturday, November 18 at the Sheraton Denver Downtown Hotel. Proceeds will benefit GLOBAL’s life-saving and transformative research and medical care.

Celebrity headliners include Rob Lowe, acclaimed author and film, theater and TV actor; Laura Linney, Academy Award-nominated and award-winning television and film actress;  John C. McGinley, award-winning film and TV actor; Caterina Scorsone, beloved actress from the longest primetime TV drama on ABC, Grey’s Anatomy, and her costar Kevin McKidd, Scottish-American film, television and theatre actor; Danielle Savre, American actress and singer; Terrell Davis, NFL Hall of Famer; Beverly Johnson, model, actress and entrepreneur; and Amanda Booth, model and actress.

Award-winning local NBC anchors Kim Christiansen and Mark Koebrich will emcee the event.

The 2023 Fashion Show is dedicated to the memory of beloved GLOBAL Co-Founder, Anna  , who sadly passed away on September 20th after a long and valiant battle with cancer. Anna, a devoted wife, mother, grandmother, sister, aunt, loyal friend, and mentor is remembered as a generous philanthropist who co-founded GLOBAL, the Crnic Institute, the Sie Center for Down Syndrome, the Alzheimer’s & Cognition Center, the GLOBAL Inclusive Program and so much more. Anna made it her life’s mission to ensure her granddaughter, Sophia, and all people with Down syndrome have a brighter future.

2023 GLOBAL Ambassador Grace Brennan, Quincy Jones Exceptional Advocacy Award Recipients Madison Tevlin & Bobby Farrelly

The event will also honor GLOBAL Ambassador Grace Brennan, a vivacious and active 9-year-old who lives in California with her parents, sisters, and dog. Grace loves swimming, silly-laughing with her two sisters, Audrey and Ava, jumping on the trampoline, and dancing to her favorite songs, including “Peanut Butter Jelly Time.”

Acclaimed film director, screenwriter, and producer Bobby Farrelly and model, actor, and self-advocate Madison Tevlin will receive GLOBAL’s highest honor – the Quincy Jones Exceptional Advocacy Award. Past recipients include Jamie Foxx, Colin Farrell, Eva Longoria, Caterina Scorsone, John C. McGinley, Eric Dane, Kyra Phillips, and Beverly Johnson.

Bobby Farrelly and his brother, Peter, are internationally recognized for their iconic comedies, including Dumb & Dumber, There’s Something About Mary, Kingpin, Hall Pass, and many others. Their films have grossed well over $1 billion at the box office. As a solo artist, Bobby has also produced the award-winning documentary The Lost Son of Havana, and has directed many hit TV shows, including Loudermilk, The Now, and Trailer Park Boys. In March 2023, Bobby released the hit movie Champions, starring Woody Harrelson, Kaitlin Olson, and fellow Quincy Jones Exceptional Advocacy Award recipient Madison Tevlin. Champions is a heartfelt comedy that centers around a basketball coach who helms a team of players with intellectual disabilities.

Madison Tevlin began her career at the age of 12 when her cover of John Legend’s All of Me went viral. Born and raised in Toronto, Ontario, Madison is a model, advocate, and actor. Her credits include Mr. D, Who Do You Think I Am, hosting the red carpet at the Canadian Screen Awards, and her iconic role as Cosentino in the film Champions. Madison is the first person with Down syndrome to be nominated for a Canadian Screen Award – Best Host, Talk Show or Entertainment News. Previously, she walked the runway as part of the Knix Confidence Tour and was the keynote speaker at the Dear Mom conference in Laguna Beach, 2023. She guest co-hosted the national morning show Breakfast Television, and has written for Net-a-Porter and Maclean’s.

The evening will feature exclusive silent and live auction items, a sumptuous reception and sit-down dinner, and the inspiring fashion show featuring celebrities and 21 beautiful and brilliant models with Down syndrome.

The Be Beautiful Be Yourself Fashion Show is the largest Down syndrome fundraiser in the world with over 1,400 attendees. Proceeds go to GLOBAL’s life-saving research and medical care through its affiliates – Linda Crnic Institute for Down Syndrome, Colorado University Alzheimer’s and Cognition Center, and Anna and John J. Sie Center for Down Syndrome, all on the Anschutz Medical Campus.

Various levels of Be Beautiful Be Yourself Fashion Show tickets, table sponsorships (including VIP levels), and model sponsorships are available at www.bebeautifulbeyourself.org.

For celebrity interviews, additional information, imagery, or to cover the Be Beautiful Be Yourself Fashion Show, please contact trishdavis0707@gmail.com, For more information on the Global Down Syndrome Foundation, please visit www.globaldownsyndrome.org.

 

About Global Down Syndrome Foundation 

The Global Down Syndrome Foundation (GLOBAL) is the largest non-profit in the U.S. working to save lives and dramatically improve health outcomes for people with Down syndrome. GLOBAL has donated more than $32 million to establish the first Down syndrome research institute supporting over 400 scientists and over 2,400 patients with Down syndrome from 33 states and 10 countries. Working closely with Congress and the National Institutes of Health, GLOBAL is the lead advocacy organization in the U.S. for Down syndrome research and care. GLOBAL has a membership of over 100 Down syndrome organizations worldwide, and is part of a network of Affiliates – the Crnic Institute for Down Syndrome, the Sie Center for Down Syndrome, and the University of Colorado Alzheimer’s and Cognition Center – all on the Anschutz Medical Campus. 

GLOBAL’s widely circulated medical publications include Global Medical Care Guidelines for Adults with Down SyndromePrenatal & Newborn Down Syndrome Information, and the award-winning magazine Down Syndrome World TM. GLOBAL also organizes the Be Beautiful Be Yourself Fashion Show, the largest Down syndrome fundraiser in the world. Visit globaldownsyndrome.org and follow us on social media (Facebook & Twitter: @GDSFoundation, Instagram: @globaldownsyndrome). 

###

 

 

 

In a new study, scientists at the University of Colorado Anschutz Medical Campus report the largest and deepest characterization of immune dysregulation in Down syndrome to date

AURORA, CO (July 23, 2023) – People with Down syndrome, the condition caused by an extra copy of chromosome 21, or trisomy 21, display chronic dysregulation of their immune system, which can contribute to high rates of autoimmune conditions and severe complications from respiratory infections.

In a new study published in Science Advances, scientists at the Linda Crnic Institute for Down Syndrome at the University of Colorado Anschutz Medical Campus report the largest and deepest characterization of immune dysregulation in Down syndrome to date. The findings also reveal important connections between immune hyperactivity and other aspects of Down syndrome and provide proof-of-principle evidence for a therapeutic strategy to restore immune balance in this population.

The Crnic Institute’s previous research demonstrated that this immune dysregulation is associated with hyperactivity in the interferon response, the main defense against viruses. In addition, they showed interferon hyperactivity contributes to many hallmarks of Down syndrome in a mouse model, including congenital heart defects, developmental delays, cognitive impairments and malformation of the bone structures in the skull.

The most recent study reports the analysis of hundreds of blood samples from research participants enrolled in the Crnic Institute Human Trisome Project, a large cohort study of people with Down syndrome. Using a combination of large-scale data technologies, referred to as multi-omics, they defined associations between the degree of interferon hyperactivity and multiple physiological, metabolic, and immune processes dysregulated by the extra chromosome.

“We observed that interferon hyperactivity really shapes the biology of Down syndrome across the lifespan. Those with the highest interferon activity display increased signs of autoinflammation, stronger dysregulation of important growth factors, profound metabolic changes, and a vastly different immune system,” says Dr. Matthew Galbraith, leader of the Data Sciences Program at the Crnic Institute and one of the co-leading authors of the paper.

“These results clearly demonstrate that persons with Down syndrome with the highest levels of interferon activity show drastic changes in the immune system, such as increases in a type of T cells often involved in the development of autoimmune conditions, or depletion of B cells, which are important for response to vaccines” explains Keith Smith, co-leading author of the paper.

Previous studies have indicated that interferon hyperactivity could be ameliorated with a class of drugs known as “JAK inhibitors” which are approved for the treatment of a wide range of autoinflammatory conditions in the general population. However, the effects of JAK inhibitors on the biological processes modulated by trisomy 21 have not been extensively studied.

To advance this area of research, the Crnic Institute team monitored the effects of JAK inhibition on a research participant with Down syndrome taking the JAK inhibitor known as tofacitinib, or Xeljanz™, for the treatment of alopecia areata. Alopecia areata is an autoimmune form of hair loss more common in people with Down syndrome. Over the course of several years and under the care of their dermatologist, the participant provided blood samples while on the medicine and during voluntary interruptions of the treatment.

“We observed a remarkable normalization of interferon hyperactivity when the participant was taking the JAK inhibitor. Consistently, her interferon metrics and other biomarkers of inflammation dropped from the abnormally high levels seen in Down syndrome down to the range observed in the general population, but not any lower. This indicates that the JAK inhibitor provided therapeutic benefit in terms of hair regrowth without suppressing the immune system below the normal range,” explains Dr. Angela Rachubinski, leader of the Clinical and Translational Sciences Program at the Crnic Institute and co-lead author of the study.

According to Dr. Joaquin Espinosa, executive director of the Crnic Institute and senior author of the paper, this study provided the rationale for two additional clinical trials for JAK inhibition in Down syndrome led by the Crnic Institute. “One study is focused on autoimmune skin conditions and another one is focused on Down Syndrome Regression Disorder, a rare but devastating condition characterized by sudden loss of  daily living skills and cognitive abilities.”

“This study is an example of the transformative scientific research taking place today that is enabled by increased funding from the National Institutes of Health through the INCLUDE Project, which in turn is the fruit of many years of advocacy and strong support from members of Congress. Naturally, none of these discoveries would be possible without the enthusiastic participation of our self-advocates and their families in research projects like the Human Trisome Project,” says Michelle Sie Whitten, president and CEO of the Global Down Syndrome Foundation, which supported the project with funding and outreach.

 

# # # 

About the University of Colorado Anschutz Medical Campus

The University of Colorado Anschutz Medical Campus is a world-class medical destination at the forefront of transformative science, medicine, education and patient care. The campus encompasses the University of Colorado health professional schools, more than 60 centers and institutes and two nationally ranked independent hospitals – UCHealth University of Colorado Hospital and Children’s Hospital Colorado – that treat more than two million adult and pediatric patients each year. Innovative, interconnected and highly collaborative, the University of Colorado Anschutz Medical Campus delivers life-changing treatments, patient care and professional training and conducts world-renowned research fueled by over $690 million in research grants. For more information, visit www.cuanschutz.edu.

About the Linda Crnic Institute for Down Syndrome

The Linda Crnic Institute for Down Syndrome is one of the only academic research centers fully devoted to improving the lives of people with Down syndrome through advanced biomedical research, spanning from basic science to translational and clinical investigations. Founded through the generous support and partnership of the Global Down Syndrome Foundation, the Anna and John J. Sie Foundation, and the University of Colorado, the Crnic Institute supports a thriving Down syndrome research program involving over 50 research teams across four campuses on the Colorado Front Range. To learn more, visit www.crnicinstitute.org or follow us on Facebook and Twitter @CrnicInstitute.

About Global Down Syndrome Foundation

The Global Down Syndrome Foundation (GLOBAL) is the largest non-profit in the U.S. working to save lives and dramatically improve health outcomes for people with Down syndrome. GLOBAL has donated more than $32 million to establish the first Down syndrome research institute supporting over 400 scientists and over 2,200 patients with Down syndrome from 33 states and 10 countries. Working closely with Congress and the National Institutes of Health, GLOBAL is the lead advocacy organization in the U.S. for Down syndrome research and care. GLOBAL has a membership of over 120 Down syndrome organizations worldwide, and is part of a network of Affiliates – the Crnic Institute for Down Syndrome, the Sie Center for Down Syndrome, and the University of Colorado Alzheimer’s and Cognition Center – all on the Anschutz Medical Campus.

GLOBAL’s widely circulated medical publications include Global Medical Care Guidelines for Adults with Down SyndromePrenatal Testing and Information about Down Syndrome, and the award-winning magazine Down Syndrome World TM . GLOBAL also organizes the Be Beautiful Be Yourself Fashion Show, the largest Down syndrome fundraiser in the world.

Visit globaldownsyndrome.org and follow us on social media (Facebook & Twitter: @GDSFoundation, Instagram: @globaldownsyndrome).

GLOBAL Awards Improve Health for Down Syndrome

August 30th, 2023 by Cole Wilkes

This year, the Global Down Syndrome Foundation Awards Program hit $1.1 million in supporting people with Down syndrome and their families.

DENVER (August 31, 2023) This year, the Global Down Syndrome Foundation (GLOBAL) Awards Program hit the $1.1 million mark providing over 300 awards to local Down syndrome member organizations in 46 states and 6 countries since the program started in 2011.

The 2023 GLOBAL Education Awards will go to 13 organizations in Arizona, Colorado, Florida, Maryland, Michigan, Minnesota, Nebraska, Nevada, New Jersey, Texas, Virginia and Wisconsin. A total of $76,000 will be invested in research and/or medical outreach programs that can quantitatively improve health outcomes. The awards will support over 8,000 individuals with Down syndrome, family members, and professionals. Over the years, a total of 20,000 individuals have been supported by the GLOBAL Awards Program.

“GLOBAL’s commitment and generous investment in community programs has made a significant difference in health outcomes for people with Down syndrome,” said Anne Dichele, Executive Director of the Gold Coast Down Syndrome Organization. “With GLOBAL’s medical expertise and resources, we have learned so much about the importance of mental health. Now we have their impactful funding that empowers us to host our mental health conference.”

“We are so grateful to have the support of a national organization like GLOBAL as we launch our Bilingual Medical Outreach Program,” said Leah Boldt, Executive Director of the Down Syndrome Alliance of the Midlands. “This program will provide access to critical resources for children who might otherwise be left behind.”

“Our member organizations provide life-changing programs and services in communities around the country and abroad every day,” said Michelle Sie Whitten, President & CEO of GLOBAL. “As the world’s leading Down syndrome research and medical care organization, we are proud to do our part to support their work and to fulfill our mission of elongating life and significantly improving health outcomes.”

David Tolleson, GLOBAL Vice President, Strategic Alliances agrees, “Local Down syndrome organizations are on the front line of service, positively impacting the health, education, and meaningful inclusion of the children and adults in their community. It’s our honor to support their work.”

The 13 organizations receiving the prestigious 2023 GLOBAL Education Award each have a unique program to offer:

Adam’s Camp (Englewood, CO): Expanding its therapy camp to reach even more individuals with Down syndrome, providing them with essential therapeutic experiences.

Down Syndrome Alliance of the Midlands (Omaha, NE): Running a bilingual medical outreach program, ensuring that language barriers do not hinder access to vital medical resources.

Down Syndrome Association of Central New Jersey (Ewing, NJ) Focuses on play-based learning groups for children with Down syndrome, nurturing their development through fun and interactive methods.

Down Syndrome Association of Jacksonville (Jacksonville, FL): Expanding its workshop “Parenting & Instructional Behavioral Solutions” to help families access Applied Behavior Analysis (ABA) services.

Down Syndrome Association of West Michigan (Grand Rapids, MI): Launching a medical outreach program, helping to bridge the gap between the medical community and individuals with Down syndrome.

Down Syndrome Association of Wisconsin (West Allis, WI): Hosting the “Think Healthcare Webinar Series”, equipping professionals and caregivers with valuable medical insights.

Down Syndrome Connections Las Vegas (Las Vegas, NV): Holding the Second Annual Las Vegas Down Syndrome Conference in conjunction with the Kirk Kerkorian School of Medicine at UNLV, fostering community engagement and knowledge sharing.

Down Syndrome Network of Arizona (Tempe, AZ): Expanding its adult transitions program, Holistic Approach to Adult Transitions and Aging, to provide quarterly webinars, person-centered planning, and healthcare professionals training.

Down Syndrome Network of Montgomery County (Rockville, MD): Tackling an essential yet often overlooked topic with its “Let’s Talk About Sexuality: Puberty, Boundaries, Healthy Relationships, Intimacy, and Hygiene” program.

Down Syndrome Partnership of North Texas (Fort Worth, TX): Initiating a medical outreach program to healthcare providers to address specific healthcare needs in the region.

Gold Coast Down Syndrome Organization (Boca Raton, FL): Hosting a conference with Dr. Dennis McGuire entitled “Mental Wellness and Strategies to Survive and Thrive for Children and Adults with Down Syndrome.”

Jack’s Basket (Arden Hills, MN): Expanding its diagnosis advocacy program to educate medical professionals and connect parents with medical resources.

Virginia Down Syndrome Association (Henrico, VA): Presenting a virtual speaker series, making valuable information accessible to a broader audience.

To learn more about the GLOBAL Membership Awards Program, please visit https://www.globaldownsyndrome.org/global-awards/.

To learn more about GLOBAL Individual and Organization Memberships, please visit https://www.globaldownsyndrome.org/global-membership/.

Visit globaldownsyndrome.org and follow us on social media (Facebook & Twitter: @GDSFoundation, Instagram: @globaldownsyndrome).

Global Down Syndrome Foundation President & CEO Michelle Sie Whitten Brings Large Team on Stage, Describes Their Work as a ‘Team Sport’

DENVER – July 25, 2023—Global Down Syndrome Foundation (GLOBAL) co-founder, president & CEO, Michelle Sie Whitten, received the Exceptional Meritorious Service Award from the National Down Syndrome Congress (NDSC) at their annual convention in Orlando, Florida this past weekend.  Michelle received the award, the highest NDSC honor, for establishing the first Down syndrome research and medical care institute in the U.S. fifteen years ago and for the transformative results her organization has created for children and adults with Down syndrome.

GLOBAL is the leading government advocacy organization for research and medical care specifically for children and adults with Down syndrome. Their work with the Congress, the National Institutes of Health (NIH), scientists and medical professionals and the Down syndrome community has led to the creation of a trans-NIH Down syndrome funding program (INCLUDE) that has provided over $250 million in Down syndrome research funding from 17 different institutes over the last five years alone. Most importantly, the funding has led to game-changing discoveries including four NIH-funded clinical trials (two in Alzheimer’s, one in autoimmune disorders and one in regression) at GLOBAL’s Crnic Institute for Down Syndrome.

NDSC executive director, Jordan Kough, and NDSC chair of the board, Kate Dougherty presented the award to Michelle who received a standing ovation. Michelle brought her team at the convention up on stage and explained that their work is a ‘team sport.’ She thanked the advocates that came before them, the amazing people with Down syndrome GLOBAL serves, Congressional and NIH champions, GLOBAL members and supporters, and the incredible staff at GLOBAL and GLOBAL’s affiliates – Dr. Joaquín Espinosa and the Crnic Institute, the Sie Center for Down Syndrome at Children’s Hospital Colorado, the Adult Medical Center at Denver Health, and the Alzheimer’s and Cognition Center all on the Anschutz Medical Campus.

“We are so thrilled to honor Michelle Sie Whitten as our 2023 Exceptional Meritorious Service Award recipient. We are fortunate that her daughter, Sophia, inspired Michelle to create GLOBAL and to dedicate her life to elongating lifespan and improving health outcomes for children and adults with Down syndrome,” said Jordan Kough. “Michelle and GLOBAL fill a much-needed void in medical research and care. We have supported her tireless fight in Washington DC to increase the NIH Down syndrome annual research funding from $16 million in 2004 to $130 million in 2023. The results of that advocacy can be positively felt in our medical community throughout the U.S. and even across the world.”

Each year since 1977, NDSC has presented this award at their annual convention to community leaders who significantly improve the lives of people with Down syndrome and their families. Their convention, the largest Down syndrome conference in the world, attracts well over 3,000 registrants and is in a different city each year. Past Exceptional Meritorious Service Award recipients include Siegfried Pueschel, Jerome LeJeune, Emily Perl Kingsley, Eunice Scriver, Allen Crocker, Sally R. Shott, Anna & John J. Sie, Joan Guthrie Medlen, Maria Dellapina, Dr. Jesus Florez, Dr. Libby Kumin, Dr. Dennis McGuire, Terri Couwenhoven, and Nancy Gianni.

At the award ceremony, with GLOBAL executives and representatives Frank Stephens, Bryn Gelaro, Dr. Espinosa, David Tolleson, Brad Hennefer, Taylor Murphy and others by her side, Michelle thanked the NDSC, “NDSC welcomed me and my new ideas from the very beginning and through this powerful magnet of a convention they allowed GLOBAL, and so many other Down syndrome organizations, to connect, learn and grow with our community. They see us, value us, and know that we are future collaborators not competitors and that openness and leadership truly allow 1,000 flowers to bloom.”

Every year GLOBAL hosts the GLOBAL Research & Medical Care Roundtable at the NDSC Annual Convention as a free benefit to convention attendees. This year over 400 people attended to learn about the latest developments and treatments associated with eye and vision care, feeding and swallowing issues, adult care, important research at the NIH and Crnic Institutes and more. In addition to the roundtable, GLOBAL and NDSC publish a free prenatal and newborn pamphlet that has recently been joined by NDSS as a supporter. GLOBAL and NDSC also support each other’s key initiatives such as the GLOBAL Adult Medical Guideline and the NDSC Sibling and Educational toolkits and conferences.

###

About Global Down Syndrome Foundation

The Global Down Syndrome Foundation (GLOBAL) is the largest non-profit in the U.S. working to save lives and dramatically improve health outcomes for people with Down syndrome. GLOBAL has donated more than $32 million to establish the first Down syndrome research institute supporting over 400 scientists and over 2,200 patients with Down syndrome from 33 states and 10 countries. Working closely with Congress and the National Institutes of Health, GLOBAL is the lead advocacy organization in the U.S. for Down syndrome research and care. GLOBAL has a membership of over 100 Down syndrome organizations worldwide, and is part of a network of Affiliates – the Crnic Institute for Down Syndrome, the Sie Center for Down Syndrome, and the University of Colorado Alzheimer’s and Cognition Center – all on the Anschutz Medical Campus. 

GLOBAL’s widely circulated medical publications include Global Medical Care Guidelines for Adults with Down Syndrome, Prenatal & Newborn Down Syndrome Information and the award-winning magazine Down Syndrome WorldTM . GLOBAL also organizes the Be Beautiful Be Yourself Fashion Show, the largest Down syndrome fundraiser in the world. Visit globaldownsyndrome.org and follow us on social media (Facebook & Twitter: @GDSFoundation, Instagram: @globaldownsyndrome). 

 

Over 300 Inspired Attendees Raise Over $400,000, Celebrate GLOBAL Honorees, and Experience an Intimate Heartfelt Performance by GRAMMY Award-Nominated Multiplatinum Singer-Songwriter Gavin DeGraw

Washington, D.C., Jun 08, 2023 (GLOBE NEWSWIRE) — Last night the Global Down Syndrome Foundation (GLOBAL) held its annual AcceptAbility Gala, DC’s largest fundraiser for people with Down syndrome, at the Hyatt Regency Washington on Capitol Hill. Celebrities passionate about the cause included GRAMMY Award-Nominated Multiplatinum Singer-Songwriter Gavin DeGraw, three-time Super Bowl champion and FOX NFL Analyst Mark Schlereth, actor, author and public speaker Frank Stephens, author and public speaker David Egan, and power-couple Kyra Phillips, an award-winning correspondent for ABC News and anchor for ABC News LIVE, and John Roberts, co-anchor of ‘America Reports with John Roberts and Sandra Smith’ on Fox News.

Representatives Katherine Clark (D-MA) and Pete Stauber (R-MN) received GLOBAL’s highest honor, the Quincy Jones Exceptional Advocacy Award, for their strong advocacy in Congress on behalf of people with Down syndrome. GLOBAL awardee alumni, Representative Cathy McMorris Rodgers (R-WA), and Representative Robert Aderholt (R-AL) provided keynotes and introduced the night’s honorees.

Congressman Pete Stauber (R-MN) and Congresswoman Katherine Clark (D-MA) Accepting their Quincy Jones Exceptional Advocacy Awards

Left to Right: Michelle Sie Whitten, Sophia Whitten, David Egan, Rep. Pete Stauber, Rep. Cathy McMorris Rodgers, Mark Schlereth, Rep. Katherine Clark & Frank Stephens 

To recognize the transformative leadership of Representatives Rosa DeLauro (D-CT) and Tom Cole (R-OK), GLOBAL created a post-secondary scholarship in their names that was unveiled at the gala. Melissa Silverman received the inaugural Tom Cole GLOBAL Advancement Award and Eric Latcheran received the inaugural Rosa DeLauro GLOBAL Advancement Award.

With the help of GLOBAL Ambassador Abby Ashbrook and her family, and co-chairs Erin Mullen and Matt Perin, the inspirational gala attracted over 300 attendees and raised over  $400,000 for GLOBAL’s life-saving research and medical care. GLOBAL supports over 200 researchers on the Anschutz Medical Campus at the Crnic Institute for Down Syndrome and the Alzheimer’s and Cognition Center, as well as over 2,200 patients from 33 states and 10 countries at the Sie Center for Down Syndrome. For nearly two decades Down syndrome was one of the least federally funded genetic conditions in the United States.

 

“I’m deeply moved to receive this honor from my friends at GLOBAL,” said Democratic Whip Katherine Clark. “From lifting up the voices of people with Down syndrome to fighting for new research investments, we share a straightforward mission: upholding the health and dignity of every person. I’m proud to be in this fight with them, and I look forward to building on the hard-won progress we’ve forged together.”

“My son Isaac is a blessing and I want everyone to know how people with Down syndrome make the world a better place,” says Representative Stauber. “Global Down Syndrome Foundation is leading the way for our children and adults so that they can live healthier and longer lives and I am honored to support their work and to receive this award. I will continue to fight for the rights of people who are differently-abled and I hope tonight inspired others to join us.”

“At GLOBAL we are working hard every day to elongate life and improve health outcomes for our loved ones with Down syndrome,” says GLOBAL Co-Founder, President, and CEO, Michelle Sie Whitten. “To have such overwhelming bi-partisan support – and a room full of people from NIH scientists to self-advocates with Down syndrome to corporate leaders – celebrating the impact of our work is extremely rewarding and appreciated. It is so clear that we are better together!”

At the end of the evening, Gavin DeGraw, delighted the audience with an intimate, heartfelt performance of some of his biggest hits including One Tree Hill theme song “I Don’t Want to Be,” while the inclusive dance troupe RhythmXpress and solo dancer Robert Wallop wowed attendees.

Additional notables in attendance included Congressman Pete Sessions (R-TX) and his son, GLOBAL Ambassador Alex Sessions; Senator John Hickenlooper (D-CO); Congresswoman Brittany Pettersen (D-CO), Down Syndrome Association of Jacksonville Executive Director, Debbie Revels; Down Syndrome Association of Delaware Executive Director, Lauren Gates; and Down Country Founder and President, Kate Dougherty.

To learn more about GLOBAL, visit www.globaldownsyndrome.org.

###

About Global Down Syndrome Foundation

The Global Down Syndrome Foundation (GLOBAL) is the largest non-profit in the U.S. working to save lives and dramatically improve health outcomes for people with Down syndrome. GLOBAL has donated more than $32 million to establish the first Down syndrome research institute supporting over 400 scientists and over 2,200 patients with Down syndrome from 33 states and 10 countries. Working closely with Congress and the National Institutes of Health, GLOBAL is the lead advocacy organization in the U.S. for Down syndrome research and care. GLOBAL has a membership of over 110 Down syndrome organizations worldwide, and is part of a network of Affiliates – the Crnic Institute for Down Syndromethe Sie Center for Down Syndrome, and the University of Colorado Alzheimer’s and Cognition Center – all on the Anschutz Medical Campus.

GLOBAL’s widely circulated medical publications include Global Medical Care Guidelines for Adults with Down SyndromePrenatal Testing and Information about Down Syndrome, and the award-winning magazine Down Syndrome WorldTM. GLOBAL also organizes the Be Beautiful Be Yourself Fashion Show, the largest Down syndrome fundraiser in the world. Visit globaldownsyndrome.org and follow us on social media (Facebook & Twitter: @GDSFoundation, Instagram: @globaldownsyndrome).

Contact:

Anca Elena Call

Global Down Syndrome Foundation

acall@globaldownsyndrome.org

720-320-3832

The GLOBAL Down Syndrome Foundation (GLOBAL) is proud to endorse the Words Matter Act that is being reintroduced by U.S. Representatives Mark Pocan (WI-02), Pete Sessions (TX-17), Eleanor Holmes Norton (DC) and Cathy McMorris Rogers (WA-05). The bipartisan legislation will remove more than two dozen instances of “mentally retarded” from federal law, replacing the outdated language with terminology that is appropriate for people with Down syndrome and other intellectual and developmental disabilities. Removing these harmful words from the U.S. Code will modernize our laws and encourage more respectful conversations surrounding individuals with Down syndrome.

This important legislation builds upon the 2011 “Rosa’s Law” (P.L. 111-256) which struck “mental retardation” from federal law. GLOBAL was proud to be among the first to endorse that bill and is honored to be a lead supporter of the Words Matter Act.

We applaud and are grateful to Reps. Mark Pocan (WI-02), Pete Sessions (TX-17), Eleanor Holmes Norton (DC), and Cathy McMorris Rogers (WA-05). As GLOBAL Congressional champions they are supporting GLOBAL’s work to increase NIH funding that is resulting in elongated life and improved health outcomes for people with Down syndrome.

Other resources:

Words Can Hurt

John C. McGinley’s Essay on the R-Word

GLOBAL CALLS OUT NETFLIX for anti-disability, anti-Down syndrome rhetoric

GLOBAL’s Response to Kanye West Using the ‘R’ Word

New Research Capability Will Accelerate Breakthrough Immune System Dysregulation Research in People with Down Syndrome

DENVER – Thursday, April 27 – Today, the Global Down Syndrome Foundation (GLOBAL) announced its affiliate, the Linda Crnic Institute for Down Syndrome at the University of Colorado Anschutz Medical Campus (Crnic Institute), has acquired a $950,000 state-of-the-art Immune Monitoring Station thanks to Community Project Funding that Congressman Jason Crow (CO 6th District) secured as part of the Fiscal Year 2022 appropriations legislation.

The Immune Monitoring Station will significantly accelerate the pace of research discoveries at the Crnic Institute as well as treatments that lead to improved health outcomes for people with Down syndrome.

“This equipment will be used to better understand how the chronic inflammatory state in people with Down syndrome predisposes them to multiple co-occurring diseases,” said Dr. Joaquín Espinosa, executive director at the Crnic Institute. “Thanks to Rep. Crow’s work, and the government advocacy of Michelle Sie Whitten and the GLOBAL team, Down syndrome research at the Crnic Institute can be completed a lot faster.”

Specific co-occurring diseases to be analyzed with the Immune Monitoring Station include transient myeloproliferative disorder, lymphocytic and myeloid leukemias, autoimmune thyroid disease, autoimmune skin diseases, celiac disease, seizure disorders, developmental regression, autism spectrum disorder, pulmonary hypertension, dysphagia/aspiration and Alzheimer’s disease.

Dr. Huntington Potter, professor of neurology and director of Alzheimer’s disease research at the Crnic Institute with GLOBAL self-advocates

“We are deeply grateful for Congressman Crow’s commitment and support for GLOBAL’s work to advance research that is transforming the lives of the amazing people with Down syndrome we serve,” said GLOBAL President & CEO, Michelle Sie Whitten. “We are proud to have the Crnic Institute, the epicenter of national and international Down syndrome research and medical care, right here in Colorado.”

The Crnic Institute Community Project Funding request made by Rep. Crow was also championed through letters of support from the University of Colorado School of Medicine, Rocky Mountain Down Syndrome Association, Colorado Springs Down Syndrome Association, Make-A-Wish Foundation, Rise School, Easter Seals Colorado, Colorado Cross Disability Center and ArcThrift.

“The Crnic Institute and GLOBAL are advancing life-changing science that is elongating life and improving health outcomes for those with Down syndrome,” said Rep. Crow. “I’m thrilled we are able to help them make important investments in their research infrastructure that will boost their efforts to better understand diseases like Alzheimer’s and solid tumor cancers and find new and better treatments.”

The Crnic Institute is the largest center for Down syndrome research in the world, with more than 50 research teams and 200+ scientists involved. In 2016, with support from GLOBAL, Dr. Joaquín Espinosa and his scientific team made the groundbreaking discovery that people with Down syndrome experience chronic immune system dysregulation. Due to this discovery, the Crnic Institute was granted an unprecedented NIH-funded clinical trial using FDA drugs that normalize the immune system in people with Down syndrome

People with Down syndrome have three copies of chromosome 21 instead of two. Because of one extra chromosome, people with Down syndrome have a very different disease spectrum than others. People with Down syndrome are highly predisposed to certain diseases (such as Alzheimer’s and autoimmune disorders) and highly protected from others (such as solid tumors and certain types of heart attack or stroke).

###

About Global Down Syndrome Foundation

The Global Down Syndrome Foundation (GLOBAL) is the largest non-profit in the U.S. working to save lives and dramatically improve health outcomes for people with Down syndrome. GLOBAL has donated more than $32 million to establish the first Down syndrome research institute supporting over 400 scientists and over 2,200 patients with Down syndrome from 33 states and 10 countries. Working closely with Congress and the National Institutes of Health, GLOBAL is the lead advocacy organization in the U.S. for Down syndrome research and care. GLOBAL has a membership of over 100 Down syndrome organizations worldwide, and is part of a network of Affiliates – the Crnic Institute for Down Syndrome, the Sie Center for Down Syndrome, and the University of Colorado Alzheimer’s and Cognition Center – all on the Anschutz Medical Campus. 

GLOBAL’s widely circulated medical publications include Global Medical Care Guidelines for Adults with Down Syndrome, Prenatal & Newborn Down Syndrome Information and the award-winning magazine Down Syndrome WorldTM . GLOBAL also organizes the Be Beautiful Be Yourself Fashion Show, the largest Down syndrome fundraiser in the world. Visit globaldownsyndrome.org and follow us on social media (Facebook & Twitter: @GDSFoundation, Instagram: @globaldownsyndrome). 

GRAMMY-Nominated Multiplatinum Singer-Songwriter Gavin DeGraw to Perform & Award-Winning ABC & Fox News Anchors to Emcee

DENVER– Thursday, March 30 –   The Global Down Syndrome Foundation (GLOBAL) announced its annual AcceptAbility Gala (“Gala”) will take place on Wednesday, June 7, 2023 at the Hyatt Regency Hotel Washington on Capitol Hill in Washington D.C. beginning at 6:00 PM ET. GLOBAL will present its prestigious Quincy Jones Exceptional Advocacy Award to Congresswoman Katherine Clark (D-MA) and Congressman Pete Stauber (R-MN) for their unwavering support for GLOBAL and the people with Down syndrome we serve. Self-advocate Abby Ashbrook will be recognized as GLOBAL’s 2023 Ambassador.

The event will raise critical funds and awareness for GLOBAL’s life-changing research, medical care and government advocacy for people with Down syndrome. Proceeds will help underwrite over 2,400 patients with Down syndrome from 33 states and 10 countries, over 200 scientists working on co-occurring conditions such as Alzheimer’s and immune system disorders, and will help fulfill GLOBAL’s mission to elongate life and improve healthcare outcomes for children and adults with Down syndrome.

The AcceptAbility Gala will also feature dancing and a live performance by GRAMMY® Award-nominated multiplatinum singer-songwriter Gavin DeGraw, whose set will include some of his top hits throughout his expansive career.  Inclusive dance troupe RhythmXpress and Robert Wallop, a professional dancer with Down syndrome, are part of the night’s inspirational entertainment.

GRAMMY-Nominated Multiplatinum Singer-Songwriter & 2023 AcceptAbility Gala Performer Gavin DeGraw

Kyra Phillips, award-winning ABC journalist and a GLOBAL Quincy Jones Award recipient, and John Roberts, co-anchor of “America Reports” on Fox News, will emcee the event.

Key speakers will include Congresswoman Cathy McMorris Rodgers and GLOBAL President and CEO Michelle Sie Whitten. See the full list of this year’s Congressional Hosts and Gala Congressional Committee on the AcceptAbility Gala website.

The AcceptAbility Gala brings together congressional champions from both sides of the aisle, key directors and scientists from the National Institutes of Health (NIH), and the Down syndrome community for a night of celebration and inspiration. Support for this event allows GLOBAL to deliver on significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy. With support from its champions, GLOBAL’s advocacy efforts on Capitol Hill have resulted in $200 million increase in NIH funding in five years, as well as outreach to over 14,000 families.

Down syndrome is the leading cause of developmental delay in the U.S., yet it is often overlooked by the federal government. The Global Down Syndrome Foundation is the lead advocacy non-profit working with self-advocates, congressional champions, and the NIH to advance Down syndrome research and medical care that will lead to the elongation and improved quality of countless lives.

For more information, please visit the AcceptAbility website.

###

About Global Down Syndrome Foundation

The Global Down Syndrome Foundation (GLOBAL) is the largest non-profit in the U.S. working to save lives and dramatically improve health outcomes for people with Down syndrome. GLOBAL has donated more than $32 million to establish the first Down syndrome research institute supporting over 400 scientists and over 2,200 patients with Down syndrome from 33 states and 10 countries. Working closely with Congress and the National Institutes of Health, GLOBAL is the lead advocacy organization in the U.S. for Down syndrome research and care. GLOBAL has a membership of over 100 Down syndrome organizations worldwide, and is part of a network of Affiliates – the Crnic Institute for Down Syndrome, the Sie Center for Down Syndrome, and the University of Colorado Alzheimer’s and Cognition Center – all on the Anschutz Medical Campus. 

GLOBAL’s widely circulated medical publications include Global Medical Care Guidelines for Adults with Down Syndrome, Prenatal & Newborn Down Syndrome Information and the award-winning magazine Down Syndrome WorldTM . GLOBAL also organizes the Be Beautiful Be Yourself Fashion Show, the largest Down syndrome fundraiser in the world. Visit globaldownsyndrome.org and follow us on social media (Facebook & Twitter: @GDSFoundation, Instagram: @globaldownsyndrome). 

 

Press Contacts: 

Ali Rubin, alirubin@gmail.com, C: (917) 242-6955

Anca Elena Call, acall@globaldownsyndrome.org, C: (720) 320-3832