GLOBAL Medical Care Guidelines for Adults with Down Syndrome


The GLOBAL Medical Care Guidelines for Adults with Down Syndrome provide first of-kind, evidence-based medical recommendations to support clinicians in their care of adults with Down syndrome. This life-changing resource as published in JAMA covers 9 topic areas deemed critically important for the health and well-being of adults with Down syndrome and outlines critical future research needs. Adults with Down syndrome and their caregivers should review the GLOBAL Guidelines with their clinicians to ensure they are receiving care meeting best-practice standards for adults with Down syndrome!
AUTHORS & WORKGROUP | COMMITTEE MEMBERS | OTHER USEFUL RESOURCES

KEY COLLABORATOR
The Ritter Family
BENEFACTOR
DSA of Greater Richmond
DSA of Minnesota
DS Guild of Dallas
Rocky Mountain DSA
KEY SUPPORTER
Anna & John J. Sie Center for DS
DSA of Central Ohio
DSA of Jacksonville
DSA of Middle Tennessee
DSA of Orange County
DS Connection of the Bay Area
DS of Louisville
Linda Crnic Institute for DS
National DS Congress
SUPPORTER
Broward Gold Coast DS Organization
ChapTer 21
DS Affiliates in Action
DS Alabama
DS Alliance of the Midlands
DSA of Acadiana
DSA of Central Florida
DSA of Connecticut
DSA for Families of Nebraska
DSA of Greater Cincinnati
DSA of Greater St. Louis
DSA of Northern Virginia
Fun Coast DS Association
The Family of Rya Gracyn Pierce
FRIEND
Alan P. & Veronica C. Neuman Family Charitable Fund
Alaska DS Network
Chattanooga DS Society
Club 21 Learning & Resource Center
David Egan & Family
Designer Genes of North Dakota
DSA of Central California
DSA of Central Kentucky
DSA of Central Oklahoma
DSA of Central Texas
DSA of Delaware
DSA of the Brazos Valley
DSA of Wisconsin, Inc.
DS Family Connection
DS Foundation of Southeastern New Mexico
Eastern Idaho DS Family Connect
East Texas DS Group
Families Exploring DS of Brevard
International Mosaic DSA
Kern DS Network
Red River Valley DS Society
Rio Grande Valley DSA
Sampson Collaborative Law
S.M.I.L.E. on DS
Southern Arizona Network for DS
The Up Side of Downs of Northeast Ohio
Wisconsin Upside Down


The first-in-kind Global Guideline was peer reviewed, edited, and published in the Special Communication section of the print and online October 2020 issue of JAMA, the Journal of the American Medical Association.
“We are so pleased that the quality of our guideline rose to the occasion of being published in JAMA, and we are deeply grateful to our families and self-advocates for pushing us to work on this difficult project,” says Michelle Sie Whitten, President & CEO of the Global Down Syndrome Foundation (GLOBAL).


GLOBAL Medical Care Guidelines for Adults with Down Syndrome
(1.1 MB) 8.5” x 11” PDF
Copying, posting, or altering this document is prohibited. However, providing a link to the full guidelines on GLOBAL’s the website is permissible. Free individual downloads and printing is also permissible.


GLOBAL Medical Care Guidelines for Adults with Down Syndrome Checklist
(543k) 11” x 8.5” PDF
Copying, posting, or altering this document is prohibited. However, providing a link to the full guidelines on GLOBAL’s the website is permissible. Free individual downloads and printing is also permissible.





Down Syndrome Medical Care Centers in the U.S.
GLOBAL Webinar Series: Medical Care Guidelines
Linda Crnic Institute for Down Syndrome
Improving the lives of people with DS through advanced biomedical research with an ultimate goal to enable precision medicine approaches to improve health outcomes in Down syndrome, including the development of new diagnostic and therapeutic tools.
Down Syndrome Medical Interest Group-USA
Immune Skin Conditions Clinical Trial
The purpose of this research is to better understand and treat immune skin conditions in people with Down syndrome.
The new GLOBAL Medical Care Guidelines for Adults with Down Syndrome was supported by generous donations from the Down syndrome community. To ensure this life-changing resource is kept up-to-date in the future and to support access to other resources like this, please consider making a donation today!