GLOBAL Medical Care Guidelines for Adults with Down Syndrome | Global Down Syndrome Foundation

GLOBAL Medical Care Guidelines for Adults with Down Syndrome

Adults with Down syndrome

The GLOBAL Medical Care Guidelines for Adults with Down Syndrome provide first of-kind, evidence-based medical recommendations to support clinicians in their care of adults with Down syndrome. This life-changing resource as published in JAMA covers 9 topic areas deemed critically important for the health and well-being of adults with Down syndrome and outlines critical future research needs. Adults with Down syndrome and their caregivers should review the GLOBAL Guidelines with their clinicians to ensure they are receiving care meeting best-practice standards for adults with Down syndrome!

The first-in-kind Global Guideline was peer reviewed, edited, and published in the Special Communication section of the print and online October 2020 issue of JAMA, the Journal of the American Medical Association.
 
“We are so pleased that the quality of our guideline rose to the occasion of being published in JAMA, and we are deeply grateful to our families and self-advocates for pushing us to work on this difficult project,” says Michelle Sie Whitten, President & CEO of the Global Down Syndrome Foundation (GLOBAL).

GLOBAL Medical Care Guidelines for Adults with Down Syndrome
(1.1 MB) 8.5” x 11” PDF

Copying, posting, or altering this document is prohibited. However, providing a link to the full guidelines on GLOBAL’s the website is permissible. Free individual downloads and printing is also permissible.

GLOBAL Medical Care Guidelines for Adults with Down Syndrome Checklist
(543k) 11” x 8.5” PDF

Copying, posting, or altering this document is prohibited. However, providing a link to the full guidelines on GLOBAL’s the website is permissible. Free individual downloads and printing is also permissible.


Peter Bulova (MD)

Associate Professor of Medicine, University of Pittsburgh Medical Center


George Capone (MD)

Director, Down Syndrome Clinic & Research Center, Kennedy Krieger Institute, Associate Professor of Pediatrics, Johns Hopkins School of Medicine


Brian Chicoine (MD)

Medical Director, Advocate Medical Group Adult Down Syndrome Center


Terry Harville, (MD, PhD, D(ABMLI), D(ABHI))

Professor of Pathology and Laboratory Services, and Internal Medicine, Department of Pathology and Laboratory Services, and Department of Internal Medicine, Division of Hematology, University of Arkansas for Medical Sciences


Barry Martin (MD)

Associate Professor of Clinical Practice, Division of General Internal Medicine, University of Colorado School of Medicine, Anschutz Medical Center


Dennis McGuire (PhD, LCSW)

Behavioral health expert in Down syndrome; former Director of Psychological Services, Advocate Medical Group Adult Down Syndrome Center


Kent McKelvey (MD)

Associate Professor, Rockefeller Chair in Clinical Genetics, University of Arkansas for Medical Sciences


Moya Peterson, (PhD, APRN)

Clinical Professor, University of Kansas Medical Center, Schools of Nursing and Medicine


Carl Tyler (MD, MSc.)

Professor, Family Medicine and Community Health, Cleveland Clinic Lerner College of Medicine, Case Western Reserve University School of Medicine; Director of Developmental Disabilities – Practice-Based Research Network


Amy Tsou (MD, MSc)

Evidence-based Practice Center, ECRI Center for Clinical Excellence and Guidelines; Staff Neurologist, Division of Neurology, Michael J Crescenz Veterans Affairs Medical Center, Philadelphia, Pennsylvania


Michelle Sie Whitten (MA)

President & CEO, Global Down Syndrome Foundation


Bryn Gelaro (LSW)

Director of Adult Initiatives and Special Projects, Global Down Syndrome Foundation


Michael Wells (BS)

Former Research Coordinator for Developmental Disabilities – Practice-Based Research Network

 

Down Syndrome Medical Care Centers in the U.S.

GLOBAL Webinar Series: Medical Care Guidelines

Linda Crnic Institute for Down Syndrome
Improving the lives of people with DS through advanced biomedical research with an ultimate goal to enable precision medicine approaches to improve health outcomes in Down syndrome, including the development of new diagnostic and therapeutic tools.

Down Syndrome Medical Interest Group-USA

Immune Skin Conditions Clinical Trial
The purpose of this research is to better understand and treat immune skin conditions in people with Down syndrome.

The new GLOBAL Medical Care Guidelines for Adults with Down Syndrome was supported by generous donations from the Down syndrome community. To ensure this life-changing resource is kept up-to-date in the future and to support access to other resources like this, please consider making a donation today!