Medical Care Guidelines | Global Down Syndrome Foundation

Medical Care Guidelines

The new Medical Care Guidelines for Adults with Down Syndrome will provide medical professionals, families and self-advocates with updated information about adults with Down syndrome and a checklist of recommended screenings and tests that cater to the unique medical profile of this population.

  • In the U.S. the life expectancy of an individual with Down syndrome has more than doubled in the last three decades, from 25 years in 1983 to 60 years today.
  • The last medical care guidelines for adults with Down syndrome were published in 2001 – over 17 years ago.
  • The new guidelines will cover medical care across multiple disciplines, including cardiology, immunology, behavioral and mental health, and obesity/metabolism.

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Down Syndrome World™ magazine recently published a article on the The Guidelines

 

Lead Authors


George Capone (MD)

Director of Down Syndrome Clinic and Research Center, Kennedy Krieger Institute, Associate Professor, John Hopkins School of Medicine, Baltimore, Maryland


Brian Chicoine (MD)

Medical Director, Advocate Medical Group Adult Down Syndrome Center, Park Ridge, Illinois


Terry Harville, MD, PhD, D(ABMLI), D(ABHI)

Professor of Pathology and Internal Medicine at the University of Arkansas for Medical Sciences (UAMS), and Medical Director for the Histocompatibility Laboratory and Medical Director of the Immunogenetics and Transplantation Laboratory at UAMS


Barry Martin (MD)

Assistant Professor, Division of General Internal Medicine, University of Colorado School of Medicine, Former Medical Director of the Denver Adult Down Syndrome Clinic, Denver, Colorado


Dennis McGuire (PhD, LCSW)

Behavioral Expert for Adults with Down syndrome, Global Senior Consultant, former Director of Psychosocial Services, Adult Down Syndrome Clinic, Advocate Lutheran General Hospital, Park Ridge, Illinois


Kent McKelvey (MD)

Director of Adult and Cancer Genetics Services, University of Arkansas for Medical Sciences, Director of Winthrop P. Rockefeller Multidisciplinary Clinic for Adults with Down syndrome, Little Rock, Arkansas


Moya Peterson, (PhD, APRN)

Director of Adults with Down Syndrome Specialty Clinic, University of Kansas Medical Center, Kansas City, Kansas


Carl Tyler (MD, MSc.)

Associate Professor, Department of Family Medicine, Cleveland Clinic Lerner College of Medicine of Case Western Reserve University School of Medicine. Director, Developmental Disabilities- Practice-Based Research Network

 
 

Co-Authors


Peter Bulova (MD)

Director of University of Pittsburgh Adult Down Syndrome Center, Pittsburg, Pennsylvania


Bryn Gelaro (LSW)

Director of Adult Initiatives and Special Projects, Global Down Syndrome Foundation, Denver, Colorado


Michael Wells (BS)

Research Coordinator for the Developmental Disabilities – Practice-Based Research Network (DD-PBRN), Cleveland, Ohio

 

Volunteer Committee Members

Jarrett Barnhill (MD, DFAPA, FAACAP)
Donald Bodenner (MD, PhD)
Paul Camarata (MD)
Kamala Gullapalli Cotts (MD)
Robert H. Eckel (MD)
Anna Esbensen (PhD)
James E. Hunt (MD)
Seth Keller (MD)

Judy Lu Kim (MD)
Ira Lott (MD)
Joan Medlen (MEd, RD, LD)
Michael McDermott (MD)
Micol Rothman (MD)
Stephanie Santoro (MD)
Mary Stephens (MD, MPH)
Elizabeth Yeung (MD)


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