Global Adult Medical Care Guidelines | Global Down Syndrome Foundation

Global Adult Medical Care Guidelines

The new Global Medical Care Guidelines for Adults with Down Syndrome will provide medical professionals, families and self-advocates with updated information about adults with Down syndrome and a checklist of recommended screenings and tests that cater to the unique medical profile of this population.

  • In the U.S. the life expectancy of an individual with Down syndrome has more than doubled in the last three decades, from 25 years in 1983 to 60 years today.
  • The last medical care guidelines for adults with Down syndrome were published in 2001 – over 17 years ago.
  • The new guidelines will cover medical care across multiple disciplines, including cardiology, immunology, behavioral and mental health, and obesity/metabolism.




Your support matters, The Adult Medical Care Guidelines can only be published with YOUR help!



Down Syndrome World™ magazine recently published a article on the The Guidelines


Lead Authors

Peter Bulova (MD)

Director of University of Pittsburgh Adult Down Syndrome Center, Pittsburg, Pennsylvania

George Capone (MD)

Director of Down Syndrome Clinic and Research Center, Kennedy Krieger Institute, Associate Professor, John Hopkins School of Medicine, Baltimore, Maryland

Brian Chicoine (MD)

Medical Director, Advocate Medical Group Adult Down Syndrome Center, Park Ridge, Illinois

Terry Harville, MD, PhD, D(ABMLI), D(ABHI)

Professor of Pathology and Internal Medicine at the University of Arkansas for Medical Sciences (UAMS), and Medical Director for the Histocompatibility Laboratory and Medical Director of the Immunogenetics and Transplantation Laboratory at UAMS

Barry Martin (MD)

Assistant Professor, Division of General Internal Medicine, University of Colorado School of Medicine, Former Medical Director of the Denver Adult Down Syndrome Clinic, Denver, Colorado

Dennis McGuire (PhD, LCSW)

Behavioral Expert for Adults with Down syndrome, Global Senior Consultant, former Director of Psychosocial Services, Adult Down Syndrome Clinic, Advocate Lutheran General Hospital, Park Ridge, Illinois

Kent McKelvey (MD)

Director of Adult and Cancer Genetics Services, University of Arkansas for Medical Sciences, Director of Winthrop P. Rockefeller Multidisciplinary Clinic for Adults with Down syndrome, Little Rock, Arkansas

Moya Peterson, (PhD, APRN)

Director of Adults with Down Syndrome Specialty Clinic, University of Kansas Medical Center, Kansas City, Kansas

Carl Tyler (MD, MSc.)

Associate Professor, Department of Family Medicine, Cleveland Clinic Lerner College of Medicine of Case Western Reserve University School of Medicine. Director, Developmental Disabilities- Practice-Based Research Network



Bryn Gelaro (LSW)

Director of Adult Initiatives and Special Projects, Global Down Syndrome Foundation, Denver, Colorado

Michael Wells (BS)

Research Coordinator for the Developmental Disabilities – Practice-Based Research Network (DD-PBRN), Cleveland, Ohio


Volunteer Committee Members

Jarrett Barnhill (MD, DFAPA, FAACAP)
Donald Bodenner (MD, PhD)
Paul Camarata (MD)
Kamala Gullapalli Cotts (MD)
Robert H. Eckel (MD)
Anna Esbensen (PhD)
James E. Hunt (MD)
Seth Keller (MD)

Judy Lu Kim (MD)
Ira Lott (MD)
Joan Medlen (MEd, RD, LD)
Michael McDermott (MD)
Micol Rothman (MD)
Stephanie Santoro (MD)
Mary Stephens (MD, MPH)
Elizabeth Yeung (MD)

Thank You To Our Generous Community Supporters

The Ritter Family

Down Syndrome Association of Greater Richmond
Down Syndrome Association of Minnesota
Down Syndrome Guild of Dallas

Rocky Mountain Down Syndrome Association

Anna & John J. Sie Center for Down Syndrome at Children’s Hospital Colorado
Down Syndrome Association of Central Ohio
Down Syndrome Association of Jacksonville
Down Syndrome Association of Middle Tennessee
Down Syndrome Association of Orange County
Down Syndrome Connection of the Bay Area
Down Syndrome of Louisville
Linda Crnic Institute for Down Syndrome
National Down Syndrome Congress

Broward Gold Coast Down Syndrome Organization
ChapTer 21
Down Syndrome Affiliates in Action
Down Syndrome Alabama
Down Syndrome Alliance of the Midlands
Down Syndrome Association of Acadiana
Down Syndrome Association of Central Florida
Down Syndrome Association of Connecticut
Down Syndrome Association for Families of Nebraska
Down Syndrome Association of Greater Cincinnati
Down Syndrome Association of Greater St. Louis
Down Syndrome Association of Northern Virginia
Fun Coast Down Syndrome Association
The Family of Rya Gracyn Pierce