International Down Syndrome Organizations & Clinics

fMany countries have at least one Down syndrome organization to support families and individuals with Down syndrome. However, there is no comprehensive list of such organizations and their services.

The Global Down Syndrome Foundation sourced various lists including those of other Down syndrome organizations. Over time, we expect to limit this list to international Down syndrome organizations that have either a website or a facebook page. In addition, we will organize other pertinent information such as types of services provided.

If you have any questions, comments, or would like to add or edit information regarding an international Down syndrome organization, please contact the Global Down Syndrome Foundation at 303-321-6277 or info@globaldownsyndrome.org.

International

Global Down Syndrome Foundation: http://www.globaldownsyndrome.org

Down Syndrome International: www.ds-int.org

International Down Syndrome Coalition: http://theidsc.org/

International Mosaic Down Syndrome Association: http://www.imdsa.org/

European Down Syndrome Association (EDSA): http://www.edsa.eu/

Albania

Down Syndrome Albania
Emanuela Pepkola Zaimi, Executive Director
“Hajredin Kumbaro” Street, 1001
Tirana, Albania
+355 68 80 42 222
info@dsalbania.org
https://www.dsalbania.org/

Argentina

Asociacion Sindrome de Down de la Republica Argentina (ASDRA)
Pedro Crespi, Executive Director
Uriarte 2011 (CABA)
Tel: (011) 4777-7333 / +54 9 11 2156-0402
asdra@asdra.org.ar
https://www.asdra.org.ar/

(clinic) Hospital Aleman
Ricardo Berthold, Executive Director
Hospital Alemán, Av. Pueyrredón 1640, C1118AAT Cdad.
Autónoma de Buenos Aires, Argentina
Tel: +54 11 4827-7000
https://www.hospitalaleman.org.ar/

Australia

Down Syndrome Australia
Darryl Steff, Executive Director
Level 8, 805/220 Collins Street
Melbourne, VIC 3000
Tel: 1300 344 954
info@downsyndrome.org.au
https://www.downsyndrome.org.au/national/

ACT Down Syndrome & Intellectual Disability Association
Building 2, Level 1, Pearce Community Centre
Collett Place, Pearce ACT 2607
Tel: (02) 6290 0656
admin@actdsa.org.au
https://www.downsyndrome.org.au/act/

Down Syndrome New South Wales
Emily Caska, Executive Director
PO Box 3173
North Parramatta
NSW 1750
Tel: (02) 9841 4444
admin@dsansw.org.au
https://www.downsyndromensw.org.au/

Down Syndrome Association NT (DSANT)
Rachel Kroes, Executive Director
Shop 75 Smith Street
Darwin, NT 0800
Tel: (08) 8985 6222
rachel@downsyndroment.com.au
https://downsyndroment.com.au/

Down Syndrome Queensland
77 Kitchener Road
Ascot QLD 4007
Tel: (07) 3356 6655
office@downsyndromeqld.org.au
https://www.downsyndrome.org.au/qld/

Information Service SA – Down Syndrome Australia
Tel: 1300 881 935
infoSA@downsyndrome.org.au
https://www.downsyndrome.org.au/sa/

Down Syndrome Tasmania
Stacey Jackson, Executive Director
PO Box 4788
HOBART TAS 7000
Tel: 1300 592 050
info@downsyndrometasmania.org.au
https://www.downsyndrome.org.au/tas/

Down Syndrome Victoria
Daniel Payne, Executive Director
552 Victoria Street
Wurundjeri Country, North Melbourne 3051
Tel: 03 9486 9600
info@dsav.asn.au
https://www.downsyndrome.org.au/vic/

Down Syndrome Western Australia
Cassandra Hughes, Executive Director
Down Syndrome WA, Cygnet Hall
17 Hackett Drive Crawley
Tel: 61-8 6182 3690
admin@downsyndromewa.org.au
https://www.downsyndrome.org.au/wa/

Austria

Down-Syndrom Österreich
Sylvia Andrich, Executive Director
Fadingerstraße 15, 5020 Salzburg
ZVR-Zahl: 017705381
Tel: 0664/213 3490 vormittags
office@down-syndrom.at
https://www.down-syndrom.at/

Belgium

Downsyndroom Vlaanderen
Downsyndroom Vlaanderen
Sint Martinusstraat 14
2550 Kontich
Tel: 0474 321 321
info@downsyndroom.eu
https://www.downsyndroom.eu/

Brazil

Fundação Síndrome de Down
Marcos Rogério Tofoli, Executive Director
Rua José Antonio Marinho, 430
Barão Geraldo – Campinas/SP
CEP: 13084-783
Tel: (19) 3790 2818, (19) 99266 4914
fsdown@fsdown.org.br
https://www.fsdown.org.br/

Canada

Ups and Downs Calgary Down Syndrome Association
St. Andrew’s Center
1-10601 Southport Road SW
Calgary AB T2W 3M5
Tel: 403-289-4394
https://upsdowns.org/

Canadian Down Syndrome Society
Laura LaChance, Executive Director
Suite 223, 1001 1st St SE
Calgary, Alberta T2G 5G3
Tel: Toll-free in Canada: 1-800-883-5608
Local & International: +01-403-270-8500
info@cdss.ca
https://cdss.ca/

Edmonton Down Syndrome Society
Janet Tryhuba, Executive Director
Edmonton Down Syndrome Society
9139 39 Ave NW
Edmonton, AB, T6E 5Y2
Tel: 780-944-4224
contact@edss.ca
https://www.edss.ca/

Down Syndrome Association of Hamilton
Heather Gain, Executive Director
26 1/2 Hatt Street
Dundas, ON L9H 2E8
Tel: 905-628-4141
contactus@dsah.ca
https://dsah.ca/

Down Syndrome Association of Toronto
PO Box 40039
Liberty Village PO
Toronto ON M5V 0K7
Tel: 416-966-0990
info@dsat.com
https://dsat.ca/

Down Syndrome Research Foundation
Jason Campbell, Executive Director
1409 Sperling Ave.
Burnaby, BC V5B 4J8
Tel: (604) 444- 3773
info@dsrf.org
https://www.dsrf.org/

Association du Syndrome de Down
Louise Meunier, Executive Director
92 rue Ozias-Leduc
Sherbrooke, QC
Canada, Quebec
Tel: 1 819-569-8112
info@asdet21.org
https://www.asdet21.org/

Clinics:
Developmental Services Alberta Children’s Hospital
28 Oki Drive NW
Calgary, AB T3B 6A8
Tel: (403) 955-5900
http://fcrc.albertahealthservices.ca/professional/cds/

Edmonton Down Syndrome Clinic
Stollery Children’s Hospital
8440 112 St NW
Edmonton, AB
T6G 2B7
Tel: 780.407.3209
https://www.albertahealthservices.ca/stollery/Page14334.aspx

Montreal Children’s Hospital
1001 Decarie Blvd
Montreal, Quebec
Tel: (514) 412-4400
https://www.thechildren.com/

China

Hong Kong Down Syndrome Association
Weixing Zuo, Executive Director
Rooftop, On Hing House, Hing Wah (II) Estate
Chai Wan, Hong Kong
Tel: (852) 2697 5391
hkdsa@hk-dsa.hk
https://www.hk-dsa.org.hk

Colombia

Fundación FEL
Chia – Cundinamarca
Bojaca Village
(200 meters from La Bagatelle restaurant)
FEL Foundation
Tel: 304 3742457, 313 2831635, 312 3515857
1fundacionfel@gmail.com
www.fundacionfel.com

Denmark

Landsforeningen Downs Syndrom
Line Natascha Larsen, Executive Director
National Down’s Syndrome Association
v/ chairman Line Natascha Larsen
Boserupvej 423, 3050 Humlebæk
Tel: 27340477 (secretary)
Telephone hours Thursday ml. at 13 and 15
info@down.dk
https://down.dk/

Ecuador

FINESEC
Fundación FINESEC Machala, y 67152
Quito 170301
Tel: 022295565 / 0991253496
https://www.finesec.org/es/

France

Association Francaise pour la recherche sur la Trisomie 21 (AFRT)
Jacques Costils, Executive Director
www.afrt.fr

Germany

Down-Syndrom Netzwerk Deutschland e.V.
Heinz Joachim Schmitz, Executive Director
Tel: Down syndrome information hotline: 0800 00 21002
https://down-syndrom-netzwerk.de/

German Down Syndrome InfoCenter
Elzbieta Szczebak, Executive Director
Hammerhöhe 3
91207 Lauf
Tel: 49 9123 982121
info@ds-infocenter.de
https://www.ds-infocenter.de/

Clinic:
St. Vincenz-Krankenhaus GmbH
Kinderklinik St. Vincenz-Krankenhaus
Husener Str. 81
4790 Paderborn
Tel: 05251/864270
spz-sekretariat(at)vincenz.de
https://www.st-louise.de/kliniken-zentren/kliniken/kinder-und-jugendmedizin/sprechstunden-und-kontakt/down-syndrom-ambulanz.html

Greece

Down Syndrome Association of Greece
Rodopoleos 5, Kalamaria, 55133, Thessaloniki
Tel: 30 2310 435 363
info@down.gr
logistirio@down.gr
https://www.down.gr/

Guatemala

Asociacion Guatemalteca para el Sindrome de Down
Guatemala, Quetzaltenango,
Mazatenango, Cjimaltenango
Tel: (502) 2309-6396
info@downguatemala.org
https://downguatemala.org/

Hungary

Hungarian Down Foundation
Dr. Katalin Gruiz, Executive Director
1145 Budapest,
Amerikai ut 14
Tel: 788-2513
down@downalapitvany.hu
downalapitvany.hu

Hidden Treasures Down Association
Karoly Kisari, Executive Director
4400 Nyireghaza,
Kozep u 17
Tel: 36 70 630 4125
info@rejttkincsek.hu
downegyesulet.hu

India

Down Syndrome Federation of India
Dr. Surekha Ramachandran, Executive Director
Downs Syndrome Association of Tamil Nadu
20, Justice Sundaram Rd, Kapali Thottam,
Mylapore, Chennai, Tamil Nadu 600004, India
Tel: 98400 60817
info@downsyndrome.in
https://downsyndrome.in/

Divya’s Downs Development Trust
First Floor Janet Building 3rd main
4th cross road Near Bus stand
Viveknagar Bengaluru 560047
Tel: 080-25700199
estherthom@gmail.com
robinthom123@yahoo.com
https://www.divyadowns.org/

Clinic:
Genetic Clinic, Dept. of Pediatrics
B.J. Medical College,New Civil Hospital
Asarwa,Ahmedabad-380016,Gujarat,India
Tel: 079-22681024
http://www.bjmcabd.edu.in/

Down’s Syndrome Care Association (DSCA), India
7, Mahatmanagar, Near ABB Signal, Nashik 422007
https://www.facebook.com/p/Downs-Syndrome-Care-Association-100064867800951/

(The Down Syndrome Trust (DoST)) NOW: Sethu Child Development and Family Guidance
Dr Nandita de Souza, Executive Director
Sethu Centre For Child Development and Family Guidance.
House No. 5/84, Dhonvaddo, Saligao, North Goa 403511, India
Tel: 91-77200 13749
https://sethu.in/dost/

Clinic:
DoST Clinic for Children with Down Syndrome
Baby Memorial Hospital Limited
Indira Gandhi Road, Kozhikode – 673004 Kerala, India
Tel: 91-495-2723272, 91-495-3535353
info@babymhospital.org
https://babymhospital.org/

Ireland

Down Syndrome Ireland
Gerard O’Carrol, Executive Director
Down Syndrome Ireland Unit 3, Park Way House,
Western Parkway Business Park, Ballymount Drive,
Dublin 12, D12HP70
Tel: (01) 4266500
info@downsyndrome.ie
https://downsyndrome.ie/

Israel

Medical Center for Down Syndrome
Hadassah Mt. Scopus
New Clinics’ Building, ground floor.
Tel: 02-5845326
ds@hadassah.org.il
https://www.hadassah.org.il/en/the_down_syndrome_treatment_center/

Italy

Associazione Italiana Persone Down
Gianfranco Salbini, Executive Director
Viale delle Milizie, 106 – 00192 Roma
Tel: (+39) 351 73 08 112
aipd@aipd.it
https://www.aipd.it/site/

Japan

Japan Down Syndrome Society (JDS)
Kunio Tamai, Executive Director
3-43-11 Minami-Otsuka, Toshima-ku,
Tokyo, JAPAN 170-0005
Tel: 81 3 6907 1824
info@jdss.or.jp
https://www.jdss.or.jp/

DSIJ
Eiichi Momotani, Executive Director
http://dsij.jp/

Clinic:
University of Tokyo
Department of Midwifery and Women’s Health,
Division of Health Sciences & Nursing,
Graduate School of Medicine,
The University of Tokyo
7-3-1 Hongo, Bunkyo-ku, Tokyo, 113-0033, JAPAN
Tel: 81-3-5841-3396
boseikango@m.u-tokyo.ac.jp
https://midwifery.m.u-tokyo.ac.jp/en/

Lebanon

Lebanese Down Syndrome Association
Chantal El Khoury, Executive Director
Hazmieh, Beirut – Lebanon
Tel: 961 78 970406
info@lebanesedownsyndrome.org
https://www.lebanesedownsyndrome.org/

Libya

Libyan Down Syndrome Association
V44J+974, Tripoli, Libya
Tel: 218 91-9662579
libyandsa@gmail.com
http://www.lydsa.org/

Mexico

Familias Extraordinarias
https://www.familiasextraordinarias.com/

Fundacion John Langon Down A.C.
Sylvia García-Escamilla, Executive Director
Selva 4
Col. Insurgentes Cuicuilco
Delegación Coyoacán
CP 04530
México DF
Tel: (52) (55) 5666-8580
contacto@fjldown.org.mx
https://www.fjldown.org/

Nepal

Down Syndrome Society Nepal
Shila Thapa, Executive Director
Down syndrome Society Nepal Kapurdhara Marg,
ward no 26 Kathmandu, Nepal
Tel: 01-5904761
dssnepal2010@gmail.com
https://dssn.org.np/

Netherlands

Clinic:
Free University Medical Center
Locatie AMC
Meibergdreef 9
1105 AZ Amsterdam
Tel: (020) 566 9111
outputregistratie@amsterdamumc.nl
https://www.amsterdamumc.org/en.htm

Stichting Downsyndroom (SDS)
Regina Lamberts, Executive Director
Industrieweg 5
7944 HT Meppel
Tel: 0522 – 281337
info@downSYNDROME.nl
https://downsyndroom.nl/

New Zealand

New Zealand Down Syndrome Association
Zandra Vaccarino, Executive Director
P O Box 4142
Auckland 1140
New Zealand
Tel: 0800 693 724
https://nzdsa.org.nz/

Nigeria

Down Syndrome Association of Nigeria
1, Alafara Oje Crescent, Alamutu Estate, Off Station Bustop,
Iju, Fagba Lagos, Nigeria
Tel: 234 808 688 9015
info@dsanigeria.org
https://downsyndrome.org.ng/

Norway

Norsk Nettverk for Down Syndrom (NNDS)
Øvre Slottsgate 3
0157 Oslo
Tel: 984 076 959
hei@downssyndrom.no
https://www.downssyndrom.no/

Pakistan

Clinic: Ma Ayesha Memorial Centre
Hill park Karachi, Sindh, Pakistan
Tel: 92 21 34541281
mamc786@gmail.com
https://maayesha.org/

Philippines

Deanna Sipaco (DS) Foundation for the Differently-Abled Inc
NHA Village, Buhangin, Davao City, Davao City, Philippines
https://www.facebook.com/DeannaSipacoFoundation

Poland

Stowarzyszenie Rodzin i Opiekunów Osób
Street Conrada 13
01-922 Warszawa
Tel: (22) 663 40 43
info@zdrowiezdrowie.pl
https://bardziejkochani.pl/

Romania

Asociatia Langown Down Oltenia Centrul Educational Teodora (ALDO-CET)
Maria Vîslan, Executive Director
Str. Dretăţii no. 35 Băileşti, Dolj
Tel: 252 312 018 / 0745 540 720
info@sindrom-down.ro
https://www.sindrom-down.ro/

Russia

Downside Up
Anna Yurievna Portugalova, Executive Director
Moscow, st. 3rd Parkovaya, 14A
Tel: 9-800-550-54-97
info@downsideup.org
downsideup.org

Saudi Arabia

Gulf Kids
http://www.gulfkids.com

Singapore

Down Syndrome Association (Singapore)
Evelyn Lai, Executive Director
9 Bishan Place, #09-01 Junction 8 (Office Tower)
Singapore 579837
Tel: 6565009321
admin@downsyndrome-singapore.org
https://downsyndrome-singapore.org/

Slovakia

Down Syndrome Center
Institute of Preventitive and Medical Medicine
Limbova 14
833 01 Bratislava

Spoločnosť Downovho syndrómu na Slovensku
Spoločnosť Downovho syndrómu na Slovensku
811 02 Bratislava – Stare mesto
Tel: 421 903 634 396
ds@downovsyndrom.sk
downovsyndrom.sk/v16/

South Africa

Down Syndrome South Africa
PO Box 1563
Bedfordview, Gauteng 2008
http://www.downsyndrome.org.za

Spain

Asociacion Sindrome de Down de Baleares (ASNIMO)
Camí Son Ametller 4 – CP: 07141
Marratxí (Balearic Islands) SPAIN
Tel: 971604914
asnimo@asnimo.com
https://fundacionasnimo.org/fundacion-sindrome-de-down-de-las-islas-baleares/

Down España
Mateo San Segundo, Executive Director
Headquarters: C/ Machaquito 58
L-10. Madrid
Tel: (34) 917 160 710
downespana@sindromedown.org
https://www.sindromedown.org/

Fundacio Catalana Sindrome de Down
Katy Trias, Executive Director
Central Headquarters Carrer Comte Borrell
201-203, mezzanine 08029 Barcelona
Tel: 93 215 74 23
https://fcsd.org/ca/

Fundación Iberoamericana Down 21
Jesús Flórez, Executive Director
Ibero-American Foundation Down21
Paseo Pérez Galdós 4 – 3º A
39005 Santander, Spain
Tel: 609 792 693
down21@down21.org
https://www.down21.org/

Clinics:
Fundacion Sindrome de Down de Cantabria
Paseo de General Dávila, 24A – 1C,
39005 Santander, Cantabria
Tel: 942 278 028
administracion@downcantabria.com
https://downcantabria.com/

Sweden

Clinic:
Dept. of Clinical Genetics Children’s Hospital
Dag Hammarskjölds väg 20
751 85 Uppsala
https://www.uu.se/en/contact-and-organisation/organisation?query=X39%3A44

Svenska Downföreningen
Linnégatan 75 in Stockholm
Tel: 08-730 48 25
info@svenskadownforeningen.se
https://www.svenskadownforeningen.se/

Switzerland

Insieme 21
Hanspeter Hanschick, Executive Director
insieme21
CH 8000 Zurich
Tel: 41 55 243 18 55
info@insieme21.ch
https://www.insieme21.ch/

Türkiye

Türkiye Down Syndrome Association
İçerenköy Mah. Eski Evler Sok. Çetin Ceylan Sitesi N:7 B Blok D:3
Ataşehir İstanbul
Tel: 0850 303 21 03
ds@downturkiye.org
www.downturkiye.org

Uganda

Down Syndrome Foundation Uganda
Rosina Dowlen, Executive Director
HEADQUATERS: Upper Mbuya, Mutungo,
Nakawa, Kampala.
Tel: 256 779 761 090
info@downsyndromeuganda.org
https://downsyndromeuganda.org/

Ukraine

UBE “Down Syndrome”
вул. Попудренко 52 оф. 903А Kyiv, Ukraine 02094
Tel: 380 98 138 4402
info@downsyndrome.org.ua
https://downsyndrome.org.ua/

United Arab Emirates

Emirates Down Syndrome Association
Dr. Manal Jarour, Executive Director
Al Qusais 1 , Baghdad Street
Dubai – United Arab Emirates
Tel: 97143444471
edsa@edsa.ae
https://edsa.ae/en/

United Kingdom

Down Syndrome Education International
6 Underley Business Centre
Kirkby Lonsdale, Cumbria, LA6 2DY, UK
hello@dseinternational.org
https://www.down-syndrome.org/en-us/

Down Syndrome International Swimming Organisation (DSISO)
Lizzie Vogel, Executive Director

info@dsiso.org
https://www.dsiso.org/

Down’s Heart Group
Roberta Nathan, Executive Director
Down’s Heart Group
Unit 28620, PO Box 6945
London, W1A 6US
info@dhg.org.uk
https://dhg.org.uk/

Down’s Syndrome Association
Carol Boys, Executive Director
Head Office
Langdon Down Centre
2a Langdon Park
Teddington
Middlesex
TW11 9PS
Tel: 44 (0)333 1212 300
info@downs-syndrome.org.uk
https://www.downs-syndrome.org.uk/

United States of America

Anna and John J. Sie Center for Down Syndrome
13123 E 16th Ave B155
Aurora, CO 80045-7106
Tel: (720) 777 6750
Fax: (720) 777 7936

Down Syndrome Affiliates in Action
Sarah Mulligan, Executive Director
P.O. Box 7192
Missoula, Montana 59807
Tel: 701-354-7255
info@dsaia.org

Global Down Syndrome Foundation
Michelle Sie Whitten, President and CEO
3239 E 2nd Avenue
Denver, CO 80206
Tel: (303) 321 6277
Fax: (303) 468 6061
info@globaldownsyndrome.org

International Mosaic Down Syndrome Association
Brandy Hellard, Executive Director
PO Box 321
Grand Haven, MI 49417
Tel: 1-855-IMDSA-21

Linda Crnic Institute for Down Syndrome
Dr. Joaquin Espinosa, Executive Director
CU Anschutz
Research Complex II
12700 East 19th Avenue
Room 4014
Aurora, CO 80045
Tel: 303.724.6599
crnicinstitute@ucdenver.edu

National Down Syndrome Congress
Jim Hudson, Executive Director
30 Mansell Court, Suite 108
Roswell, GA 30076
Tel: 800.232.NDSC (6372)
info@ndsccenter.org

National Down Syndrome Society
Kandi Pickard, Executive Director
National Down Syndrome Society
1155 15th Street NW
Suite 540
Washington, DC 20005
Tel: 800-221-4602
info@ndss.org
WEBSITE

Venezuela

La Asociacion Venezolana para el Sindrome de Down (AVESID)
A Sucre, Centro Parque Boyaca, Piso 16, Torre Centro,
Caracas 1071, Miranda, Venezuela
Tel: 58 412 261 2881
canaldowntv@gmail.com
https://www.avesid.net/