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The Latest Research & Medical Care from Our Down Syndrome Experts

Listen and Learn: Unlocking Potential through Healthy Hearing
Across the Lifespan in People with Down Syndrome

Tuesday, April 7, 2026
12pm – 1:15pm MT


GLOBAL Webinars are an important benefit for our Members. Held quarterly, these 1+ hour-long webinars cover topics across the lifespan. Webinars are FREE for GLOBAL Members and $10/webinar for non-Members. If you have a family member or dear friend with Down syndrome, this webinar is for you!

In this session, Dr. Porter will discuss:

  • The perceptual consequences of hearing loss, how it is often overlooked in people with Down syndrome, and how it can impact developmental, educational, and vocational outcomes
  • Current knowledge about hearing loss in individuals with Down syndrome of all ages, including recommendations for monitoring and diagnosis
  • New findings from federally funded research projects dedicated to improving hearing and balance healthcare and outcomes for individuals with Down syndrome across the lifespan
  • Information about research opportunities

Heather Porter, AuD, PhD, CCC-A

Dr. Porter is a research scientist and clinical audiologist at Boys Town National Research Hospital in Omaha, Nebraska. She earned clinical and research doctorates from Vanderbilt University, where she first began researching hearing in individuals with Down syndrome.

In addition to ongoing federally funded translational research to improve hearing healthcare and outcomes in individuals with Down syndrome across the lifespan, she has maintained practical immersion in clinical settings providing hearing healthcare to individuals with complex medical histories and diverse developmental abilities.

Save The Date – Upcoming Webinars 

Tuesday, April 7, 2026 
Listen and Learn: Unlocking Potential through Healthy Hearing Across the Lifespan in People with Down Syndrome
Heather Porter, AuD, PhD, CCC-A

Wednesday, August 5, 2026 
Early Medical & Developmental Intervention – Important Co-Occurring Conditions in Children with Down Syndrome
Noemi Spinazzi, MD

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Q&A WITH OUR EXPERTS – A VALUABLE MEMBERSHIP BENEFIT

SLEEP APNEA ACROSS THE LIFESPAN
IN PEOPLE WITH DOWN SYNDROME

Q: How does one define moderate vs severe sleep apnea? What percent in oxygen saturation during OSA episodes is the average range?

A: They are defined based on the obstructive apnea hypopnea index, which is the number of obstructive episodes during sleep divided by the hours of sleep. Many patients experience drops in oxygen saturation during obstructive episodes. These drops are variable and range from very mild to severe down to 60-70%.

DOWN SYNDROME REGRESSION DISORDER: THE LATEST RESEARCH AND PROMISING TREATMENTS

Q: What age are you seeing regression symptoms starting?

A: I think that when we’ve looked at our population level data, the mean age at onset is about 18. We see a heavy clustering in the late teen years, early twenties, and the reason why we’ve come up with this particular age range is because younger than 10, the chances that this may be autism or some other biochemical or genetic phenomenon is much higher. And similarly, over 30 is where we start to kind of bridge that gap into early onset Alzheimer’s, although that is still very young. 

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Information received from GLOBAL’s employees or volunteers, or from this website, should NOT be considered a substitute for the advice of a medical professional or lawyer. GLOBAL DOES NOT provide any medical or legal advice. You should consult with your own doctor or lawyer for medical or legal advice. This website is a general service that provides information over the internet. The information contained on this website is general information and should not be construed as medical advice to be applied to any specific factual situations.

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