Global Down Syndrome Foundation Research & Medical Care Roundtable 2015

Alzheimer’s Disease and Down Syndrome – What parents and caregivers should know

Global RoundtableA free benefit included in NDSC Annual Convention registration

On Thursday, June 25, 2015, from 12pm to 4pm, the Global Down Syndrome Foundation hosted the Research & Medical Care Roundtable with a focus on Down syndrome and Alzheimer’s disease.

Co-organized with the National Down Syndrome Congress at the JW Marriott Desert Ridge in Phoenix as part of the NDSC Annual Convention, this Roundtable featured renowned scientists and medical professionals. Topics included a review of promising research including clinical trials, when a child or adult with Down syndrome should get tested, standards of medical care, and advocacy & support.


Ira Lott, MD
Pediatric Neurologist, UC Irvine and CHOC Children’s
Director, Telemedicine Program UC Irvine Health Sciences
Emeritus Professor of Pediatrics and Neurology, UC Irvine School of Medicine
Huntington Potter, PhD
Director of Alzheimer’s Research, Linda Crnic Institute for Down Syndrome
Director of Alzheimer’s Research, Department of Neurology, University of Colorado Denver
Fellow, National Academy of Inventors
Michael Rafii, MD
Director, Memory Disorders Clinic
Clinical Director, Down Syndrome Research and Treatment Center
Medical Director, Alzheimer’s Disease Cooperative Study
Director, Neurology Residency Training Program
Assistant Professor of Neurosciences, UC San Diego Health System
Tom Blumenthal, PhD
Executive Director, Linda Crnic Institute for Down Syndrome
Anna and John J. Sie Professor in Genomics, University of Colorado School of Medicine
Professor, Molecular, Cellular and Developmental Biology, University of Colorado Boulder
Tom Blumenthal
Joaquin Espinosa, PhD
Associate Professor, Molecular, Cellular, and Developmental Biology, University of Colorado Boulder
Howard Hughes Medical Institute Early Career Scientist
Co-Leader, Molecular Oncology Program, University of Colorado Cancer Center (UCCC)
Director, The Functional Genomics Facility at CU-Boulder
Joaquin Espinosa
Elliott Mufson, PhD
Institutional Professor in the Division of Neurobiology
Barrow Neurological Institute, Phoenix
Dennis McGuire, PhD
Senior Consultant, Global Down Syndrome Foundation
Behavioral Specialist, Denver Adult Down Syndrome Clinic
Co-Chair, Global Down Syndrome Foundation Adults with Down Syndrome Task Force
Michelle Sie Whitten, MA
President & CEO, Global Down Syndrome Foundation
Executive Director, Anna and John J. Sie Foundation
Linda Crnic Institute for Down Syndrome Board of Directors
Michelle Sie Whitten


2013 Roundtable Information

The inaugural Global Down Syndrome Foundation Research & Medical Care Roundtable was held July 18, 2013, attracting top scientists and researchers focused on Down syndrome. The experts presented their work and answered questions for over 400 attendees, approximately 80 percent being self-advocates and family members, and 20 percent professionals. The Global Roundtable, held in connection with the National Down Syndrome Congress Convention in Denver, was a full day of cutting-edge research and best-practices medical care organized into five parts: an NIH Keynote and four panels focused on Medical Care, Prenatal Testing, Basic Research, and Down Syndrome & Alzheimer’s Disease.

Learn more about the 2013 Roundtable, and view photos from the event.