Global Down Syndrome Foundation Research & Medical Care Roundtable 2015

Alzheimer’s Disease and Down Syndrome – What parents and caregivers should know

A free benefit included in NDSC Annual Convention registration

On Thursday, June 25, 2015, from 12pm to 4pm, the Global Down Syndrome Foundation hosted the Research & Medical Care Roundtable with a focus on Down syndrome and Alzheimer’s disease.

Co-organized with the National Down Syndrome Congress at the JW Marriott Desert Ridge in Phoenix as part of the NDSC Annual Convention, this Roundtable featured renowned scientists and medical professionals. Topics included a review of promising research including clinical trials, when a child or adult with Down syndrome should get tested, standards of medical care, and advocacy & support.

Speakers
Ira Lott, MD Pediatric Neurologist, UC Irvine and CHOC Children’s Director, Telemedicine Program UC Irvine Health Sciences Emeritus Professor of Pediatrics and Neurology, UC Irvine School of Medicine
Huntington Potter, PhD Director of Alzheimer’s Research, Linda Crnic Institute for Down Syndrome Director of Alzheimer’s Research, Department of Neurology, University of Colorado Denver Fellow, National Academy of Inventors
Michael Rafii, MD Director, Memory Disorders Clinic Clinical Director, Down Syndrome Research and Treatment Center Medical Director, Alzheimer’s Disease Cooperative Study Director, Neurology Residency Training Program Assistant Professor of Neurosciences, UC San Diego Health System
Tom Blumenthal, PhD Executive Director, Linda Crnic Institute for Down Syndrome Anna and John J. Sie Professor in Genomics, University of Colorado School of Medicine Professor, Molecular, Cellular and Developmental Biology, University of Colorado Boulder
Joaquin Espinosa, PhD Associate Professor, Molecular, Cellular, and Developmental Biology, University of Colorado Boulder Howard Hughes Medical Institute Early Career Scientist Co-Leader, Molecular Oncology Program, University of Colorado Cancer Center (UCCC) Director, The Functional Genomics Facility at CU-Boulder
Elliott Mufson, PhD Institutional Professor in the Division of Neurobiology Barrow Neurological Institute, Phoenix
Dennis McGuire, PhD Senior Consultant, Global Down Syndrome Foundation Behavioral Specialist, Denver Adult Down Syndrome Clinic Co-Chair, Global Down Syndrome Foundation Adults with Down Syndrome Task Force
Michelle Sie Whitten, MA President & CEO, Global Down Syndrome Foundation Executive Director, Anna and John J. Sie Foundation Linda Crnic Institute for Down Syndrome Board of Directors

2013 Roundtable Information

The inaugural Global Down Syndrome Foundation Research & Medical Care Roundtable was held July 18, 2013, attracting top scientists and researchers focused on Down syndrome. The experts presented their work and answered questions for over 400 attendees, approximately 80 percent being self-advocates and family members, and 20 percent professionals. The Global Roundtable, held in connection with the National Down Syndrome Congress Convention in Denver, was a full day of cutting-edge research and best-practices medical care organized into five parts: an NIH Keynote and four panels focused on Medical Care, Prenatal Testing, Basic Research, and Down Syndrome & Alzheimer’s Disease.

Learn more about the 2013 Roundtable, and view photos from the event.

• 2016 Global Down Syndrome Foundation Research & Medical Care Roundtable
• 2018 Global Down Syndrome Foundation Research & Medical Care Roundtable at DSAIA
• 2018 Global Down Syndrome Foundation Research & Medical Care Roundtable at NDSC
• 2018 Global Down Syndrome Foundation Research & Medical Care Roundtable at NDSC
• 2019 Global Down Syndrome Foundation Research & Medical Care Roundtable at NDSC
• Alzheimer’s and Down Syndrome Scientific Workshop
• Down Syndrome: National Conference on Patient Registries, Research Databases and Biobanks
• Global Down Syndrome Educational Series – May 2015
• Global Down Syndrome Educational Series – May 2015
• Global Down Syndrome Educational Series, November 2012
• Global Down Syndrome Foundation Research & Medical Care Roundtable 2015
• Global Down Syndrome Foundation
  Research & Medical Care Roundtable 2013
• Linda Crnic Institute Lectures
• Global Down Syndrome Educational Series