Global Down Syndrome Educational Series, November 2012

Nationally renowned expert
Dr. Fran Hickey and the Multi-disciplinary Team from the Anna and John J. Sie Center for Down Syndrome

Friday, Nov. 2, and Saturday, Nov. 3, 2012

Click here to view photos from the Global Down Syndrome Educational Series.

Presenters discussed best practices in medical care, therapeutic and educational intervention, and provided resources. Many of the slide shows from the general session and workshop presentations are available on our website. Click on the links below to view them.

General session:

• Keynote by Dr. Hickey and Dee Daniels, RN, PNP regarding Medical Advances in Down Syndrome
• Presentation in English
• Presentation in Spanish

• Talk from medical subspecialists: Norm Friedman, MD, ENT; Edwin Liu, MD, Gastroenterology; Michael Schaffer, MD, Cardiology; and Peggy Kelley, MD, ENT
• Dr. Norm Friedman, Down Syndrome and Sleep Apnea, in English
• Dr. Norm Friedman, Down Syndrome and Sleep Apnea, in Spanish
• Dr. Michael Schaffer, Down Syndrome and Congenital Heart Disease, in English
• Dr. Peggy Kelley, Ear, Nose and Throat Issues in Children With Down Syndrome, in English

Workshops:

1. Patti McVay, M.Ed.

• Keys to success in the school setting, including best practices for curriculum, behavior, and teaming

2. Pat Winders, PT

• Gross motor intervention strategies for the infant with Down syndrome
• Gross motor intervention strategies for the toddler and preschool age child with Down syndrome
• Presentation in English
• Presentation in Spanish
• How to Treat Flat Feet article
• Down Syndrome Quarterly article

3. Arwen Jackson, MA, CCC-SLP and Jackie Kammerer, MS, OTR

• Feeding and swallowing in the medically complex infant with Down syndrome
• Professional presentation in English
• Professional presentation in Spanish
• Transitioning the child with Down syndrome to advanced eating and drinking
• Parent presentation in English
• Parent presentation in Spanish

4. Syd Martin, MS, OTR

• Occupational therapy intervention strategies in children with Down syndrome, including the areas of sensory processing, fine motor development, and activities of daily living
• Professional presentation
• Parent presentation

5. Lisa Martin, MA, CCC-SLP

• Augmentative and alternative communication: What is it and how can it help my child?
• Presentation in English
• Presentation in Spanish

6. Emily Nightengale, Au.D., CCC-A and Megan Hedman, BS, Au.D. extern

• Understanding hearing and hearing loss in children with Down syndrome
• Presentation in English
• Presentation in Spanish

7. Lina Patel, PsyD

• Understanding behaviors: Finding the root of the problem
• Presentation in English
• Presentation in Spanish

Special Thanks to our Symposium Partners:

Thanks to our Advisory Members

For more information about the Anna and John J. Sie Center for Down Syndrome at Children’s Hospital Colorado, click here.

To download the brochure for this event in English, click here! For Spanish, click here!

To print off a Save the Date card for this event in English, click here! For Spanish, click here!

• GLOBAL Down Syndrome Foundation Educational Grants
• Our Programs
  • Dare to Play Soccer Camp
    • 2011 Dare to Play Soccer
    • 2012 Dare to Play Soccer Camp
    • 2013 Dare to Play Soccer Camp
  • I ♥ YOU Dance Parties for Adults with Down syndrome
  • Junior Denver Broncos Cheerleaders Dare to Cheer Program
  • Salute the Stars
  • Dare to Cheer Camp with the Denver Broncos Cheerleaders
    • 2013 Dare to Cheer Parent Info
    • 2013 Dare to Cheer Registration Form
    • 2013 Denver Broncos Cheerleaders Dare to Cheer Program
    • Global’s Denver Broncos Cheerleaders Dare to Cheer Camp & Junior Denver Broncos Cheerleaders Dare to Cheer Program
  • Be Beautiful Be Yourself Dance Program
    • Be Beautiful Be Yourself Dance Class Instructors
  • Dare to Play Football Camp
    • 2013 Dare to Play Football Camp
    • 2014 Dare to Play Football Camp with Ed McCaffrey
    • 2014 Dare to Play Football with Ed McCaffrey
    • Dare to Play Football and Dare to Cheer Camps – Annapolis, MD
    • Dare to Play Football Camp Team
  • Be Beautiful Be Yourself Fitness Class with Pure Barre
    • Dare to Move Class Instructors
  • Zoo Internships
    • 2013 Denver Zoo PAWS volunteer program
    • Zoo Intern Program Interns, Instructors and Key Volunteers
• Conferences
  • 2016 Global Down Syndrome Foundation Research & Medical Care Roundtable
    • 2016 Global Research & Medical Care Roundtable Q&A
  • 2018 Global Down Syndrome Foundation Research & Medical Care Roundtable at DSAIA
  • 2018 Global Down Syndrome Foundation Research & Medical Care Roundtable at NDSC
  • 2018 Global Down Syndrome Foundation Research & Medical Care Roundtable at NDSC
  • 2019 Global Down Syndrome Foundation Research & Medical Care Roundtable at NDSC
  • Alzheimer’s and Down Syndrome Scientific Workshop
  • Down Syndrome: National Conference on Patient Registries, Research Databases and Biobanks
    • Down Syndrome: Issues to consider in a national registry, research database and biobank
  • Global Down Syndrome Educational Series – May 2015
  • Global Down Syndrome Educational Series – May 2015
  • Global Down Syndrome Educational Series, November 2012
    • Global Down Syndrome Educational Series, Activities of Daily Living, Fine Motor Skills and Sensory Strategies
    • Global Down Syndrome Educational Series, Activities of Daily Living, Fine Motor Skills and Sensory Strategies, Professional Presentation
    • Global Down Syndrome Educational Series, Augmentative and Alternative Communication, in English
    • Global Down Syndrome Educational Series, Augmentative and Alternative Communication, in Spanish
    • Global Down Syndrome Educational Series, Congenital Heart Disease
    • Global Down Syndrome Educational Series, Down Syndrome Quarterly Handout
    • Global Down Syndrome Educational Series, Ear, Nose and Throat Issues
    • Global Down Syndrome Educational Series, Feeding and Swallowing in the Medically Complex Infant, in English
    • Global Down Syndrome Educational Series, Feeding and Swallowing in the Medically Complex Infant, in Spanish
    • Global Down Syndrome Educational Series, How to Treat Flat Feet
    • Global Down Syndrome Educational Series, Importance of Hearing Loss, in English
    • Global Down Syndrome Educational Series, Importance of Hearing Loss, in Spanish
    • Global Down Syndrome Educational Series, Keynote Presentation in English
    • Global Down Syndrome Educational Series, Keynote Presentation in Spanish
    • Global Down Syndrome Educational Series, Perspective on Feeding, in English
    • Global Down Syndrome Educational Series, Perspective on Feeding, in Spanish
    • Global Down Syndrome Educational Series, Physical Therapy, in English
    • Global Down Syndrome Educational Series, Physical Therapy, in Spanish
    • Global Down Syndrome Educational Series, Sleep Apnea, in English
    • Global Down Syndrome Educational Series, Sleep Apnea, in Spanish
    • Global Down Syndrome Educational Series, Understanding Problem Behaviors, in English
    • Global Down Syndrome Educational Series, Understanding Problem Behaviors, in Spanish
    • November 2-3, 2012, Educational Series — Brochure
    • November 2-3, 2012, Educational Series — Brochure in Spanish
  • Global Down Syndrome Foundation Research & Medical Care Roundtable 2015
    • 2015 Global Research & Medical Care Roundtable Presentations
  • Global Down Syndrome Foundation
    Research & Medical Care Roundtable 2013
    • Dean Hartley – Global Roundtable Presentation
    • Dennis McGuire – Global Roundtable Presentation
    • Fran Hickey – Global Roundtable Presentation
    • George Capone – Global Roundtable Presentation
    • Huntington Potter – Global Roundtable Presentation
    • Ira Lott – Global Roundtable Presentation
    • John Crispino – Global Roundtable Presentation
    • Jorge Busciglio – Global Roundtable Presentation
    • Katheleen Gardiner – Global Roundtable Presentation
    • Michael Greher – Global Roundtable Presentation
    • Peggy Kelley – Global Roundtable Presentation
    • Peter Bulova – Global Roundtable Presentation
    • Prenatal Testing for Down Syndrome – Global Roundtable Presentation
    • Roger Reeves – Global Roundtable Presentation
    • Tom Blumenthal – Global Roundtable Presentation
    • William Mobley – Global Roundtable Presentation
    • Yvonne Maddox – Global Roundtable Presentation
  • Linda Crnic Institute Lectures
    • Linda Crnic Institute Lectures: “Aberrant Hematopoiesis in Children with Down syndrome”
    • Linda Crnic Institute Lectures: “Consequences of Aneuploidy”
    • Linda Crnic Institute Lectures: “DNA Methylation in Down Syndrome: A Possible Therapeutic Target”
    • Linda Crnic Institute Lectures: “Studying Mechanism and Medicine in Down syndrome and Alzheimer’s Disease using C. elegans“
    • Linda Crnic Institute Lectures: “The Neurobiology of Down Syndrome: A Case of Double Trouble”
    • Linda Crnic Institute Lectures: “The Unique Clinical and Biological Features of Leukemias in Children with Down syndrome”
    • Linda Crnic Institute Lectures: “Theory to Therapeutics in Mice and Men with Down Syndrome”
    • Linda Crnic Institute Lectures: “Trisomy 21: Causes and Consequences”
  • Global Down Syndrome Educational Series
    • 2015 Fall Educational Series – November
    • Global Down Syndrome Educational Series Featured Speakers:
      Brian Chicoine and Dennis McGuire
    • Global Down Syndrome Educational Series Featured Speakers:
      Dr. Libby Kumin
    • Global Down Syndrome Educational Series Featured Speakers:
      H. Len Leshin
    • Global Down Syndrome Educational Series Featured Speakers:
      Jennifer Meyers Bekins
    • Global Down Syndrome Educational Series Featured Speakers:
      Patricia C. Winders
    • Global Down Syndrome Educational Series Featured Speakers:
      Patti McVay
    • Global Down Syndrome Educational Series Featured Speakers:
      Sue Buckley
    • Global Down Syndrome Educational Series Featured Speakers:
      William I. Cohen