Global Webinar – Medical Care Guidelines

Global Medical Care Guidelines for Adults with Down Syndrome: A Legacy Supporter Update!

What You Need to Know

Overview & Speakers:

We look forward to sharing our progress and to providing a sneak peek with you at our exclusive webinar for our generous Global Members and guideline supporters. This webinar is in addition to our quarterly Global Membership webinar series and is an exclusive, free benefit to YOU our Legacy Supporters. In this webinar Global President and CEO, Michelle Sie Whitten, and Director of Adult Initiatives & Special Projects, Bryn Gelaro, to present on the following topics:

• Results from our focus groups

• Success stories (already)

• PICOTS & Grade System framework

• Managing Expectations – what the guidelines do and do not include

• Overachieving! Possible Toolkits…

• Distribution, Education & Outreach

• How you can help

Michelle Sie Whitten, MA

Michelle Sie Whitten, MA is the Co-Founder, President and CEO of the Global Down Syndrome Foundation (Global). Global is dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education, and Advocacy. Prior to her career in the non-profit sector, Michelle was a cable TV pioneer in East Asia working for Liberty Media Corporation and Starz Encore. Her academic career was focused on international security and diplomacy and she holds a Masters degree and business certificate from Harvard University. She graduated Magna Cum Laude with a Bachelors degree from Tufts University and studied Mandarin Chinese and Women Studies at Peking University. Michelle is married to Tom, a British curator of Chinese contemporary art and they have two adorable kids, one of whom has Down syndrome.

Bryn Gelaro, LSW

Bryn Gelaro, LSW is a Licensed Social Worker with background in behavioral health with adults with Down syndrome. Bryn was a consultant for the Global Down Syndrome Foundation from 2015 to 2017 prior to her current position as the Director of Adult Initiatives and Special Projects. Her work includes supporting Global’s efforts to open a World Class Medical Clinic for adults with Down syndrome and overseeing international projects, including in Uganda and Albania. Bryn is the co-Author and project manager for the Global Medical Care Guidelines for Adults with Down Syndrome overseeing the communication between work group members, maintaining guideline deliverables and timeline, and managing the edits of the guideline manuscript. Bryn earned her Bachelor of Science in Psychology from the Pennsylvania State University and a Masters degree in social work from the University of Chicago. She completed her Master’s graduate field training at the Adult Down Syndrome Clinic in Chicago where she was fortunate to have mentorship from Dr. Dennis McGuire and Dr. Brian Chicoine.

Powerpoint Presentation: Click to Download

Important Notice

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Information received from Global’s employees or volunteers, or from this website, should NOT be considered a substitute for the advice of a medical professional or lawyer. Globaldownsyndrome.org DOES NOT provide any medical or legal advice. You should consult with your own doctor or lawyer for medical or legal advice. This website is a general service that provides information over the internet. The information contained on this website is general information and should not be construed as medical advice to be applied to any specific factual situations.

Global Webinars:

Winter 2019: CPAP, Hearing Aids, & Glasses, Oh My! How to Help my Child & Adult Wear their Medical Equipment

Fall 2019: What Families Need to Know: Utilizing the Pediatric Medical Care Guidelines for Down Syndrome

Summer 2019: Self-Advocates Win Landmark Federal Funding for Research: Join Global – Join the Movement

Spring 2019: Take A Deep Breath: Lung Infection & Cognition in Down Syndrome

Winter 2018: Physical Therapy for Children with Down syndrome & How to Set your Child Up for Successful Learning Experiences

Fall 2018: Supporting Aging Adults with Down syndrome and Alzheimer’s Disease

Summer 2018: Developing an Individualized Feeding Plan for Your Child with Down Syndrome

Spring 2018: An Unprecedented and Exciting Down Syndrome Research Discovery Engine – The Crnic Institute Human Trisome Project

Winter 2017: Get Moving, Be Awesome! – Physical Therapy & Fitness for Adolescents & Adults with Down Syndrome

Fall 2017: Promoting Skills to Survive & Thrive in the Teen & Adult Years

Summer 2017: Multimodal Approach to Teaching Children with Down syndrome Speech & Language Skills