Archive for 2018

Destiny: A foster child with Down syndrome Finds His Forever Mom

September 29th, 2018 by Global Down Syndrome Foundation

From Down Syndrome World 2018 Issue 2 of 4

When people first meet 15-year-old Brett Logan, they see a charismatic young man full of joy, laughter, and love. What they don’t see at first glance are the many struggles he has overcome to get to where he is.
From the time Brett was just an infant, he faced severe, life-threatening medical challenges. Doctors questioned if he would live into his adolescent years. Defying the odds, Brett prevailed. But in addition to being a medically fragile child with Down syndrome, Brett developed complex behavioral and social difficulties as a result of the neglect and abuse he endured during his upbringing. One evening when Brett was 8 years old, the local Department of Human Services found him wandering the streets of Greeley, Colorado, by himself in filthy clothes and no shoes. He was sent from foster home to foster home, never truly getting a chance to reach his potential.

A ROUGH START
Born with two heart defects, Brett was diagnosed with failure to thrive. At 20 months old, he had both croup and the flu, which caused his heart to stop and required weeks in the intensive care unit at Children’s Hospital Colorado. During that time, he became addicted to sedation medication and had to be treated with methadone.
When Brett began school, he w as delayed in all areas of development, ranging from nutrition to verbal language. At age 8, Brett was transferred from a different school district into then 22-year-old Jennifer Nelson’s class.
“He was very tiny — about the size of a 3 y ear old at age 8,” Jennifer recalled of the young Brett. “But through all that, I knew there was something really special about him. He had me wrapped around his finger from day one, and we developed a really close student-teacher bond.”
As the school year went on, Jennifer fell in love with Brett’s infectious personality. “He is really loving, empathetic, and funny,” Jennifer said. “He can always make me laugh, and he truly loves others like nobody I’ve ever met.”
After a year of being Brett’s teacher and getting to know him, the 23-year-old, barely out of college, took a life -changing gamble and adopted Brett. At the start of their journey, “they told us he was too old and if he hadn’t learned yet, he wasn’t going to,” Jennifer recalled.
“They were so wrong!”
Brett is now a sophomore in high school, more active and happier than ever before.

BECOMING A FAMILY
After a court hearing where it was clear that Brett would not be returning to his last home, Jennifer stepped up.
“I had decided pretty early on that I wanted to adopt him,” she said. “So many people had given up on him in his life, and I knew he deserved more. Somehow destiny brought us together.”
In 2015, Jennifer and Brett officially became a family. For the first time in his life, Brett had a real home.
“I was happy!” Brett said of learning Jennifer would be his adoptive mother. “My favorite thing about being adopted is that I get to sleep in my bed every night.”
“I will admit, it was very challenging at the beginning,” Jennifer said. “I became a parent of a 9-year-old overnight, when I was just barely out of college myself. I knew he was capable of learning. He just needed someone to teach him.”

THE POWER OF POSITIVITY
With the proper nutrition and medical care, Brett has grown in everyway imaginable, Jennifer said. He is physically larger, very verbal and talkative, and learns new things everyday.
Now a student at Legend High School in Parker, Colorado, Brett has a full calendar with show choir and varsity cheerleading. Off campus, Brett is involved in a number of extracurricular activities as a multi-sport Special Olympics athlete, Junior Denver Broncos Cheerleader, and active participant in Global Down Syndrome Foundation’s Dare to Cheer Camps. In fact, this will be his fourth year attending Dare to Cheer.
His newest interest, modeling, got him on the runway with Sam Cronin, a midfielder for the Minnesota United Major League Soccer team, at Global’s 2017 Be Beautiful Be Yourself Fashion Show.
“I loved everything about the fashion show,” Brett said. “I hope I get to be in it again someday. I loved dancing on the runway with all the cameras on me and the whole crowd cheering! My buddy Sam was awesome. He even gave me a piggyback ride after the show and waited with me until my mom got back.”
Brett still deals with medical challenges, including epilepsy, sleep apnea, and hypothyroidism, all of which have a higher prevalence in people with Down syndrome. But he takes them in stride and continues to prevail. In 2015, he was named an ambassador for Children’s Hospital Colorado for his perseverance through all his treatments.
“I love my doctors at Children’s Hospital, so it was great to be involved,” Brett said. “I got to meet other kids who also battle health issues, and it was great to just be me!”
Brett and his mother don’t know what the future holds, but are excited for all the possibilities that lie ahead.
“Don’t let anyone tell you that something is impossible,” Brett said. “I am proof that challenges can be over come and that you can do anything you put your mind to.”

BRETT LOGAN, IN HIS OWN WORDS
Favorite subject at school: “Guitar, because my teacher lets me have the stage and put on performances for my class.”

Favorite way to make people laugh: “By showing off my muscles or my dance moves!”

Best part of Dare to Cheer Camp: “I love hanging out with my friends and cheering for the audience.”

On being a Junior Denver Broncos Cheerleader: “I love my coaches Jozie and McKenna! They are my favorite part of cheer. I also love performing at the Bronco games. One time Demaryius Thomas threw a football to me on the sidelines!”


Like this article? Join Global Down Syndrome Foundation’s Membership program today to receive 4 issues of the quarterly award-winning publication, plus access to 4 seasonal educational Webinar Series, and eligibility to apply for Global’s Employment and Educational Grants.
Register today at downsyndromeworld.org!

Making History: First-Ever Gerber Baby with Down Syndrome

September 27th, 2018 by Global Down Syndrome Foundation

From Down Syndrome World 2018 Issue 2 of 4

In February 2018, a little boy with Down syndrome took the world by storm with his contagious smile, bright blue eyes and charming personality. His name is Lucas Warren, and he’s the first-ever Gerber Spokesbaby with Down syndrome.

The nearly century-old Gerber Products Company is an iconic brand that sells baby food and baby products. Often recognized by its trademark logo, a drawing of the first Gerber Baby, Ann Turner Cook, the company selects a new Gerber Spokesbaby each year. The 1-year-old from Dalton, Georgia, was chosen from 140,000 other contestants to be the Gerber Spokesbaby for the entire year. The Gerber brand personifies the healthy, happy, perfect baby. Choosing Lucas as the 2018 Gerber Spokesbaby challenges negative stereotypes about people with Down syndrome and makes an important statement about inclusion and diversity of those who are differently-abled. Global was able to share the excitement of this historical moment during an exclusive interview with Lucas’ parents, Cortney and Jason Warren.

DOWN SYNDROME WORLD™: TELL US ABOUT THE MOMENT YOU LEARNED LUCAS WON THE GERBER CONTEST.
Cortney and Jason: Our first reaction was shock and doubt, followed by extreme excitement for Lucas! We weren’t able to tell our families and friends until after it was announced.

WHAT AN EXCITING TIME SINCE LUCAS WON! HE HAS MILLIONS OF FANS ON SOCIAL MEDIA, AND EVEN INTERVIEWS ON THE TODAY SHOW. WHAT IS IT LIKE TO BE FAMOUS?
It is a proud moment for us as par ents knowing that Lucas has a platform to spread joy, not only to people he comes in contact with daily but to people all over the U .S. We are so happy that he will have this moment to look back on in the futur e and feel proud.

WHAT ARE LUCAS’ RESPONSIBILITIES AS THE 2018 GERBER SPOKESBABY?
Lucas will represent Gerber in advertisements, social media, and more throughout the year, representing joy and love. In addition, he receives $50,000 for his Spokesbaby title, which we plan to use toward his education.

WHAT HAS SURPRISED YOU ABOUT LUCAS?
What has surprised us the most about Lucas is Lucas himself. Being our first child, and having Down syndrome on top of that, everything is new to us. Seeing him pick up on milestones faster than what doctors and therapists say he should makes us feel so proud of him. He continues to show his doctors, therapists, friends, and family that there are no limits for him.

WHAT DO YOU HOPE HAVING LUCAS AS THE GERBER SPOKESBABY WILL DO FOR THE DOWN SYNDROME COMMUNITY AND SOCIETY IN GENERAL?
We hope this announcement will impact ever yone and shed light on the special needs community. We hope Lucas as the Gerber Spokesbaby will help educate more people that individuals with special needs should be accepted, not limited, and therefore have the potential to change the world.


Like this article? Join Global Down Syndrome Foundation’s Membership program today to receive 4 issues of the quarterly award-winning publication, plus access to 4 seasonal educational Webinar Series, and eligibility to apply for Global’s Employment and Educational Grants.
Register today at downsyndromeworld.org!

Reversing the Alzheimer’s Catastrophe

September 25th, 2018 by Global Down Syndrome Foundation

WEBINAR AREA

September 21st, 2018 by Global Down Syndrome Foundation

Global’s webinar series is one of the many benefits of Global Down Syndrome Foundation membership. Without our members, these important webinars would not be possible. Each quarter, Global presents a webinar featuring renowned scientists, doctors, researchers, and/or professionals in the Down syndrome community. These online, interactive presentations range from medical care and health and wellness to crucial research including topics such as:

Physical Therapy

Behavioral Issues (in different age groups)

Speech, Language, and Communication

Alzheimer’s Disease and Down syndrome

Autoimmune Disorders and Down syndrome

Cancer and Down syndrome

These webinars are a wonderful opportunity to learn from the professionals in the Down syndrome community.
Click here for links to each of Global’s past webinars.

 


 

FALL 2018

Supporting Aging Adults with
Down syndrome and Alzheimer’s Disease

 
 


Bryn Gelaro, LSW
Huntington Potter, Ph.D
Director of Alzheimer’s Research, Linda Crnic Institute for Down Syndrome
Department of Neurology, University of Colorado Denver
Bryn Gelaro, LSW
Director of Adult Initiatives & Special Projects for Global Down Syndrome Foundation
 

Tuesday, October 30, 2018
12pm – 1pm MST

Global Members – Free
Non-Members – $10

Become a Member!

Register Now

 

This webinar will review the most recent research discoveries related to Alzheimer’s disease and Down syndrome. Huntington Potter, Ph.D, will review the most recent research discoveries related to Alzheimer’s disease and Down syndrome and Bryn Gelaro, LSW, will discuss key behavioral strategies to support aging adults with Down syndrome. Find out what families and professionals need to know about Alzheimer’s disease to provide great care for adults Down syndrome. Key takeaways from this presentation are:

  • Recent Research Discoveries
  • Common Behavior and Mental Health Concerns of Family Members of Aging Adults with Down syndrome
  • Behavior Based Interventions that Utilize Common Behavioral Strengths of Adults with Down syndrome

Huntington Potter, Ph.D. is Professor of Neurology and Director of Alzheimer’s Disease Research in the Department of Neurology and the Linda Crnic Institute for Down Syndrome at the University of Colorado, Denver. He discovered and is devoted to studying the mechanistic relationship between Alzheimer’s Disease and Down syndrome. Prior to joining UC Denver, Dr. Potter studied, researched and taught for 30 years at Harvard University. He is author of over 100 scientific articles and books, is the holder of 15 U.S. and foreign patents, and has received numerous awards for his work.

Bryn Gelaro, LSW, is a social worker with a background in behavioral health with adults with Down syndrome. As the Director of Adult Initiatives and Special projects at Global, he work includes furthering Global’s adult care initiatives, serving as a project manager and co-author on the Adult Medical Health Care Guideline update and supporting Global’s efforts to open a World Class Medical Clinic for adults with Down syndrome. She also provides behavioral health under the supervision of Dr. Dennis McGuire, LCSW, at the pilot Adult Down Syndrome Clinic at Denver Health.

 

 

 


Important Notice

The Global Down Syndrome Foundation’s employees and/or volunteers are NOT acting as your medical professional or attorney. Responses you receive via electronic mail, phone, or in any other manner DO NOT create or constitute a doctor-patient or attorney-client relationship between you and the Global Down Syndrome Foundation (Global), or any employee of, or other person associated with, Global.

Information received from Global’s employees or volunteers, or from this website, should NOT be considered a substitute for the advice of a medical professional or lawyer. www.globaldownsyndrome.org DOES NOT provide any medical or legal advice. You should consult with your own doctor or lawyer for medical or legal advice. This website is a general service that provides information over the internet. The information contained on this website is general information and should not be construed as medical advice to be applied to any specific factual situations.
 


 

NEWSED’s Civil Rights Awards are back

September 19th, 2018 by Global Down Syndrome Foundation

September 2018 Newsletter

September 17th, 2018 by Global Down Syndrome Foundation

Celebs, Awards & A Cancer Connection

Colin Farrell to Receive Advocacy Award

September 16th, 2018 by Global Down Syndrome Foundation

Norm Macdonald Apologizes for ‘Unforgivable’ Comment About Down Syndrome

September 13th, 2018 by Global Down Syndrome Foundation

Beaver Dam nonagenarian becomes children’s author

September 13th, 2018 by Global Down Syndrome Foundation