New York – Down Syndrome Organizations

There are currently 27 Down syndrome organizations in New York:


Alexander’s Angels Inc.

Address: 425 North Broadway, #486, Jericho, NY 11753
Phone: 516-361-7263
Email: alexandersangels@gmail.com
Organization Leader: Esther Gómez-Nieto, President
Website: www.alexandersangels.org

Association for Children With Down Syndrome

Address: 4 Fern Place, Plainview, NY 11803
Phone: (516) 933-4700
Email: info@acds.org, msmith@acds.org
Organization Leader: Michael Smith, exec director
Website: www.acds.org

Bronx and Manhattan Parents of Down Syndrome

Address: 1045 Hall Place, #3, Bronx, NY 10459
Phone: 917-834-0713

Chautauqua Daisy (Down Syndrome Youth) Group

Address: 214 Arlington Ave., Jamestown, NY 14701

Down Syndrome Advocacy Foundation (DSAF)

Address: PO Box 12173, Hauppauge, NY 11788
Phone: 516-983-7008
Email: dsaf03@gmail.com
Organization Leader: Cathy Hoffman, Administrator
Website: www.dsafonline.org

Down Syndrome Aim High Resource Center

Address: 22 Corporate Woods Blvd., 5th floor, Albany, NY 12180
Phone: 518-438-1113
Email: info@dsahrc.org, dlang@dsahrc.org
Website: www.dsahrc.org

Down Syndrome Amongst Us

Address: 32 Rutledge St., Brooklyn, NY 11249
Email: info@dsau.org, downsyndrome@earthlink.net
Organization Leader: Sarah Sander – Editor, Publisher
Website: www.dsau.org

Down Syndrome Association of Central New York

Address: PO Box 5, Manlius, NY 13104
Phone: 315-682-4289
Email: dsaofcny@aol.com
Website: www.dsaofcny.org

Down Syndrome Association of the Hudson Valley

Address: PO Box 352, Gardiner, NY 12525
Phone: (845) 226-1630
Email: info@dsahv.org
Organization Leader: Melissa Deschamps Executive Director
Website: www.dsahv.org

Down Syndrome Association of St. Lawrence County

Address: PO Box 304, Canton, NY 13617
Phone: 315-562-2118
Email: dsaofslc@gmail.com
Website: dsaofslc.org

Down Syndrome Association of Westchester

Address: 85 Candlewood Road, Scarsdale, NY 10583
Phone: 914-723-6568
Email: ken@westchesterdsa.org
Website: www.westchesterdsa.org

Down Syndrome Connection of Long Island

Address: PO Box 2402, Halesite, NY 11743
Phone: 631-427-4395 or 631-533-2864, 631-721-3292
Email: info@dscli.org, vregan@dscli.org
Website: www.dscli.org

Down Syndrome Info Network of the Twin Tiers

Address: 300 Scenic View, Horseheads, NY 14845
Phone: 607-734-6151, 607-739-0272
Email: dsintt@gmail.com, hecklece@stny.rr.com
Website: www.downsyndromeintt.org

Down Syndrome Information Network of Southern Tier NY

Address: PO Box 59, Endicott, NY 13760
Email: kdevine@dsinstny.org, info@dsinstny.org
Website: www.dsinstny.org

Down Syndrome Parent Group of Western New York

Address: 547 Englewood Ave., Kenmore, NY 14223
Phone: 716-832-9334
Email: dspgwny@hotmail.com
Organization Leader: Presidents: Amy Monson Heidi Wieczorek
Website: www.dspgwny.org

Down Syndrome Parent Support Group of Genesee County

Address: 2121 Lewiston Road , Oakfield, NY 14125
Phone: 585-344-2092
Email: downsyn@iinc.com

Down Syndrome Support Group of Tompkins-Cortland Area

Address: 16 Ferguson Road, Dryden, NY 13053
Phone: 607-844-4050
Email: downsyndrometca@gmail.com

Family and Friends Down Syndrome Association of Niagara

Address: 4661 Lower River Road, Lewiston, NY 14092
Phone: 716-870-4904
Email: Trisominds21@aol.com
Website: www.dsaniagara.org

Flower City Down Syndrome Network

Address: 2117 Buffalo Road., #132, Rochester, NY 14624
Phone: 585-568-7421
Email: info@fcdsn.com
Organization Leader: Chris Tumminelli President
Website: www.fcdsn.com

Franklin County Down Syndrome Society

Address: 28 Third St. , Malone, NY 12953
Phone: 516-521-3012
Email: shannonmmcardle@gmail.com
Website: www.fracodssociety.synthasite.com

GiGi’s Playhouse (New York City)

Address: 106 W. 117th St., New York, NY 10026
Phone: 646-801-7529
Email: nyc@gigisplayhouse.org
Organization Leader: Britt Sady, Executive Director
Website: gigisplayhouse.org/newyork

GiGi’s Playhouse (Syracuse)

Address: 5885 East Circle Drive, Suite 250, Cicero, NY 13039
Phone: 315-288-7529
Email: syracuse@gigisplayhouse.org
Organization Leader: Ally Donofrio, Board President, 315-506-2463
Website: gigisplayhouse.org/syracuse

Kennedy-Willis Center on Down Syndrome

Address: 3 Chenango Rd, Edmeston, NY 13335
Phone: 607-965-8655, 607-965-8377 ext. 128
Email: info@pathfindervillage.org, info@pathfinder.tzo.com
Website: www.pathfindervillage.org

Manhattan Down Syndrome Society

Address: 124 West 121 Street , New York, NY 10027
Phone: 646-261-5334
Email: manhattandowns@gmail.com

Mohawk Valley Down Syndrome Support and Awareness Group

Address: 258 Genesee St., Utica, NY 13502
Phone: (315) 738-0794 ext. 223
Email: info@upstatecp.org
Organization Leader: Louis B. Tehan, Upstate Cerebral Palsy President and CEO
Website: upstatecp.org/mohawk-valley-down-syndrome-awareness-group

North Country Down Syndrome Associates, Inc.

Address: 64 Prospect Ave., Plattsburgh, NY 12901
Phone: 518-563-5553
Email: rotzt@westelcom.com
Website: www.ncdsasite.org

Trisomy 21 Foundation of Northern NY

Address: 130 West St., Black River, NY 13612
Phone: 315-788-0869
Email: info@downsyndromesupportnny.org
Website: downsyndromesupportnny.org

Westchester Arc Parent Assistance Committee on Down Syndrome

Address: 26 Blackthorn Lane, White Plains, NY 10606
Phone: 914-654-0238
Email: ebean37@hotmail.com
Website: www.westchesterarc.org/about/family_resource_groups.html

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