Illinois – Down Syndrome Organizations
There are currently 18 Down syndrome organizations in Illinois:
- Central Illinois Down Syndrome Organization
- Champaign County Down Syndrome Network
- Chicagoland Buddy Walk
- Family Ideas Network for Down Syndrome
- GiGi’s Playhouse Chicago
- GiGi’s Playhouse Deerfield
- GiGi’s Playhouse Hoffman Estates
- GiGi’s Playhouse McHenry County
- GiGi’s Playhouse Quad Cities
- GiGi’s Playhouse Rockford
- GiGi’s Playhouse Tinley Park
- Heart of Illinois Down Syndrome Association
- Lilly’s Playground
- Livingston Area Down Syndrome Society
- National Association for Down Syndrome
- Riverbend Down Syndrome Association
- Stateline Down Syndrome Foundation
- Ups for Downs (United Parent Support for Down Syndrome)
Central Illinois Down Syndrome Organization
| Address: | PO Box 595, Normal, IL 61761 |
| Phone: | 309-452-3264 |
| Email: | cidsofamilies@gmail.com |
| Organization Leader: | Deb Presley, President |
| Website: | www.cidso.org |
Champaign County Down Syndrome Network
| Address: | P.O. Box 1143, Champaign, IL 61824 |
| Phone: | (217) 778-6702 |
| Email: | info@champaigndsn.org |
| Organization Leader: | Connie Hilson, President |
| Website: | www.champaigndsn.org |
Chicagoland Buddy Walk
| Address: | 2325 E. Lincoln Hwy. Suite 210, New Lenox, IL 60451 |
| Phone: | 815-272-1068 |
| Email: | info@chicagolandbuddywalk.org |
| Website: | https://chicagolandbuddywalk.org |
Family Ideas Network for Down Syndrome
| Address: | PO Box 1441, Crystal Lake, IL 60039 |
| Phone: | (815) 529-7275 |
| Email: | president@findsownsyndrome.com |
| Operation Leader: | Michael Fisher, President |
| Website: | findsdownsyndrome.com |
GiGi’s Playhouse Chicago
| Address: | 3948 N. Lincoln Ave Chicago, IL 60613 |
| Phone: | (773) 583-7529 |
| Email: | chicago@gigisplayhouse.org |
| Organization Leader: | Grace Glenny, Site Coordinator |
| Website: | www.gigisplayhouse.org/chicago |
GiGi’s Playhouse Deerfield
| Address: | 2511 Waukegan Rd., Suite 106-107, Bannockburn, IL, 60015-1569 |
| Phone: | (847) 964-9604 |
| Email: | deerfield@gigisplayhouse.org |
| Organization Leader: | Shannon Powell, Site Director |
| Website: | www.gigisplayhouse.org/deerfield |
GiGi’s Playhouse Hoffman Estates
| Address: | 2350 West Higgins Road, Hoffman Estates, Illinois 60169 |
| Phone: | 847-885-7529 |
| Email: | hoffmanestates@gigisplayhouse.org |
| Organization Leader: | Alison Flores, Executive Director |
| Website: | www.gigisplayhouse.org/hoffmanestates |
GiGi’s Playhouse McHenry County
| Address: | 5404 W. Elm St. Suite A, McHenry, IL 60050 |
| Phone: | (815) 385-7529 |
| Email: | mchenry@playhouse.org |
| Organization Leader: | Jaime Griffiths, Executive Director |
| Website: | www.gigisplayhouse.org/mchenry |
GiGi’s Playhouse Quad Cities
| Address: | 3906 38th Ave. Moline, IL 61265 |
| Phone: | (309) 762-7529 |
| Email: | quadcities@gigisplayhouse.org |
| Organization Leader: | Pam Lynch, Site Director |
| Website: | https://gigisplayhouse.org/quadcities |
GiGi’s Playhouse Rockford
| Address: | 8801 N. Second St. Suite 2, Machesney Park, IL 61115 |
| Phone: | (815) 654-7529 |
| Email: | quadcities@gigisplayhouse.org |
| Organization Leader: | Karen Carlson, Executive Director |
| Website: | https://gigisplayhouse.org/rockford |
GiGi’s Playhouse Tinley Park
| Address: | 15954 S Harlem Ave Tinley Park, IL 60477 |
| Phone: | (708) 620-8400 |
| Email: | tinleypark@gigisplayhouse.org |
| Organization Leader: | Karen Connelly, Programs and Volunteer Manager |
| Website: | www.gigisplayhouse.org/TinleyPark |
Heart of Illinois Down Syndrome Association
| Address: | 325 E Queenwood Rd, Morton, IL 61550 |
| Phone: | 309-363-3125 |
| Email: | info@hoidsa.org |
| Organization Leader: | Mike King, Acting President |
| Website: | www.hoidsa.org |
Lilly’s Playground
| Address: | Wadsworth, Illinois |
| Phone: | (224) 637-8202 |
| Email: | lillysplayground@gmail.com |
| Organization Leader: | The Padilla family |
| Website: | www.lillysplayground.org |
Lincoln Land Down Syndrome Society
| Address: | One North Old State Capitol Plaza, Suite 501, Springfield, IL 62701-1323 |
| Phone: | (217) 415-8716 |
| Email: | info@lldss.org |
| Organization Leader: | Deb Gossrow, President |
| Website: | www.lldss.org |
National Association for Down Syndrome
| Address: | 1460 Renaissance Rd, Ste 102, Park Ridge, IL 60068 |
| Phone: | 630-325-9112 |
| Email: | info@nads.org |
| Operation Leader: | Linda Smarto, Executive Director Matthew Corso, President |
| Website: | www.nads.org |
Riverbend Down Syndrome Association
| Address: | Southwest Illinois |
| Website: | https://www.facebook.com/riverbendds |
Stateline Down Syndrome Foundation
| Address: | 716 N. Church Street Rockford, IL 61103 |
| Email: | penny@statelinedownsyndrome.com |
| Organization Leader: | Penny Wirtjes, President |
| Website: | www.statelinedownsyndrome.com/ |
Ups for Downs (United Parent Support for Down Syndrome)
| Address: | Hartford Plaza, 1070 S. Roselle Road, Schaumburg, IL 60193 |
| Phone: | 847-895-2100 |
| Email: | info@upsfordowns.org |
| Website: | upsfordowns.org |
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