Illinois – Down Syndrome Organizations
There are currently 15 Down syndrome organizations in Illinois:
- BUDS (Bringing Up Down Syndrome)
- Celebrate Differences
- Central Illinois Down Syndrome Organization
- Champaign County Down Syndrome Network
- Down Syndrome Support
- Family Ideas Network for Down Syndrome
- Frankie’s Fund
- GiGi’s Playhouse
- Heart of Illinois Down Syndrome Association
- Kankakee Area Down Syndrome Society
- Lincoln Land Down Syndrome Society
- Livingston Area Down Syndrome Society
- National Association for Down Syndrome
- Riverbend Down Syndrome Association
- Ups for Downs (United Parent Support for Down Syndrome)
BUDS (Bringing Up Down Syndrome)
| Address: | P.O. Box 11, Arenzville, IL 62611 |
| Phone: | (217) 997-5879 |
| Email: | briggsj@frontiernet.net |
Celebrate Differences
| Address: | 14 Stonehill Rd, Unit E, Oswego, IL 60543 |
| Phone: | 630-885-3006 |
| Email: | info@celebratedifferences.org |
| Organization Leader: | Rebecca & Jeff Christiansen, Executive Director & Founder |
| Website: | www.celebratedifferences.org |
Central Illinois Down Syndrome Organization
| Address: | PO Box 595, Normal, IL 61761 |
| Phone: | 309-452-3264, 309-874-2038 |
| Email: | info@cidso.org |
| Organization Leader: | Steve Newbold, President |
| Website: | www.cidso.org |
Champaign County Down Syndrome Network
| Address: | P.O. Box 1143, Champaign, IL 61824 |
| Phone: | 217-351-4163, 217-721-2350, 217-355-6289 |
| Email: | info@champaigndsn.org, president@champaigndsn.org, newparents@champaigndsn.org |
| Organization Leader: | Melissa Hoerner |
| Website: | www.champaigndsn.org |
Down Syndrome Support
| Address: | 2325 E. Lincoln Hwy. Suite 210, New Lenox, IL 60451 |
| Phone: | 815-272-1068 |
| Email: | info@dssupport.net |
| Website: | www.dssupport.net |
Family Ideas Network for Down Syndrome
| Address: | PO Box 1441, Crystal Lake, IL 60039 |
| Phone: | 815-575-9864 |
| Email: | onepercent2@gmail.com |
| Operation Leader: | Michael Fisher, President |
| Website: | findsdownsyndrome.com |
Frankie’s Fund
| Address: | 700 Arbor Ave., Wheaton, IL 60189-6309 |
| Phone: | 630-665-7077 |
| Email: | frankiesfund@sbcglobal.net |
GiGi’s Playhouse
| Address: | 1069 W. Golf Rd, Hoffman Estates, IL 60169 |
| Phone: | 847-885-PLAY (7529) |
| Email: | gianni4567@aol.com |
| Organization Leader: | Nancy Gianni, President and Founder, ngianni@gigisplayhouse.org |
| Website: | www.gigisplayhouse.org |
Heart of Illinois Down Syndrome Association
| Address: | 325 E Queenwood Rd, Morton, IL 61550 |
| Phone: | 309-712-4852 |
| Email: | info@hoidsa.org |
| Organization Leader: | Carol Nepolello, Board President, c.nepolello@comcast.net |
| Website: | www.hoidsa.org |
Kankakee Area Down Syndrome Society
| Address: | 730 Bunker Hill Drive, Bourbonnais, IL 60914 |
| Phone: | 815-210-8944 |
| Email: | info@kadss.org, sara@joshlundmark.com |
Lincoln Land Down Syndrome Society
| Address: | One North Old State Capitol Plaza, Suite 501, Springfield, IL 62701-1323 |
| Phone: | 217-622-3500 |
| Email: | jsat870@sbcglobal.net, info@lldss.org |
| Organization Leader: | Julie Ressler, LLDSS President |
| Website: | www.lldss.org |
Livingston Area Down Syndrome Society
| Address: | 13298 N. 3400 E. Rd, Chatsworth, IL 60921 |
| Phone: | 815-589-2202 |
| Email: | info@ladss.org, david@ladss.org |
| Operation Leader: | Mary & David Melvin, Founders |
National Association for Down Syndrome
| Address: | 1460 Renaissance Rd, Ste 405, Park Ridge, IL 60068 |
| Phone: | 630-325-9112 |
| Email: | info@nads.org |
| Operation Leader: | Steve Connors, President |
| Website: | www.nads.org |
Riverbend Down Syndrome Association
| Address: | 528 Grafton Hills Dr, Grafton, IL 62037 |
| Phone: | 618-667-8771, 618-288-2555 |
| Email: | secretary@riverbendds.org |
| Operation Leader: | Marc Mitchell |
| Website: | www.riverbendds.org |
Ups for Downs (United Parent Support for Down Syndrome)
| Address: | Hartford Plaza, 1070 S. Roselle Road, Schaumburg, IL 60193 |
| Phone: | 847-895-2100 |
| Email: | info@upsfordowns.org |
| Website: | upsfordowns.org |
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